Found a very informative Book about Lyme, that will not make you cry!

what are some good books out about lyme?
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cure unknown - 100.0%
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Martha's Vineyard
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   Posted 10/11/2008 11:27 AM (GMT -6)   
I have read all the books about Lyme. Cure unknown was a scary book and make me want to jump off of my roof. Having my whole family sick with lyme I wanted answers and some options.
The book
Coping with Lyme Disease, third edition, By Denise Lang is very informative and gives the reader some hope and some answers. It is a easy read and will leave the reader with some good knowledge and some sense of direction. I found mine at Barnes and Noble and after reading it I orderd 15 more and I pass them out to any one that I care about that has a bunch of kids who play outside...and of course I force them on people who summer in the norhteast.
The more you read and educate yourself about your battle with Lyme. And believe me it is a battle! Stand up for yourself. Get smart, and know what you are up against. I have found that every book that I have bought says almost the same thing.
Yet the one thing that they do not seem to agree on it weather Lyme can be sexually transmitted or not.
I got Lymes in 2004. So did my 11 mos old daughter and my favorite dog Toto.


Dowa
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Date Joined Sep 2008
Total Posts : 1120
   Posted 10/12/2008 12:03 PM (GMT -6)   
May I ask, as far as being sexually transmitted, is it leaning toward yes or no? An ex of mine also has Lyme but being from the Northeast it is not surprising, but I always wondered if maybe I got it from him. My Golden Retriever also died of Lyme and a lady I met in Boston once told me that if a dog kisses you on the lips you can catch it from the bacteria. Dont know if there is any truth to any of it, but I was always curious about it as I never saw a tick bite or rash. D 

Martha's Vineyard
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Date Joined Jul 2008
Total Posts : 1119
   Posted 10/12/2008 12:56 PM (GMT -6)   
Well....I have never read that you can get Lyme from a animal, unless you were to get the urine of the animal say it splashed in your eye. That is actually how the man " Burgdorferi" sp? Who this nasty little virus was named after. He got lyme that was from a rabbit.
But my dog got it at the same time as me, and he has not given it to my other 4 dogs, and he did not pass it to his female companion of 4 years.
But....I am confused too about the sexually transmitted side for us as well. I have read a lot about it and it seems to be a split. I have never given it to a man. My boyfriend does not have it. But then again, it does not show up in my blood work either. I have all of these other things that are wrong with me, but it is because my autoimmune system has been hit by this disease.
My opinion is that it would be easier for a man who has it to pass it on to a women, being that he fills her up with his bodily fluids. But that is sort of like the whole aids deal too.
The place where I am being treated in scottsdale arizona says that for sure you can transmit lyme sexually. My last intern told me that I do not have lyme but have epstein barr.
My boyfriend does not believe he can get it from me. Because I do not look sick, this is so dumb. My x husband lived in Martha's Vineyard. So? It could explain why he was in such a fog all the time. But who knows. Protect yourself.
Most people do not see the tick. The babies are the size and color of a grain of salt. Only 50% get a bullseye or rash. It is so darn tricky. I do think the tick gave it to me, because I went down in flames when I found it, like I had been drugged and then the high fever..and the neck pain and then whammo...it hit me like a ton of bricks. You know it when you get it. ....lol..does that help at all..:>)

Post edited: Please see Rule no. 12: If it shouldn’t be viewed by minors, then it shouldn’t be posted to the forums or chat rooms.  This is a public, family-friendly forum. In addition, if something would not be considered “work safe” (to a boss or co-worker), then it shouldn’t be posted.

Post Edited By Moderator (alfers) : 10/29/2008 7:55:45 AM (GMT-6)


RMV
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Date Joined Oct 2008
Total Posts : 18
   Posted 10/29/2008 7:16 AM (GMT -6)   
Hi All... My wife finally tested Positive for Lyme after three months of searching for answers. I visited the camp site on weekends to spend time with my family. whether or not I was bit by a Tick is beyond me, one always expects the probability being in such a place. However, I too am wondering if I caught it from her. I am still experiencing a lot of the anxiety related issues, some heart palpitations, some minor GI discomfort. My symptoms are mild enough to control but persistent enough to know I am not well. She is convinced it is communicable. Any thoughts?

kendal122
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Date Joined May 2007
Total Posts : 1088
   Posted 10/29/2008 7:44 AM (GMT -6)   
Good Morning Martha's Vineyard, scottsdale arizona whats the name of the place your at? do they have a web site? Thanks,

Goldfinch
Regular Member


Date Joined Mar 2007
Total Posts : 96
   Posted 10/29/2008 9:54 AM (GMT -6)   
Kendal,

Acoording to one of Martha's earlier posts she mentioned the name Envita. This is the webisite that I found for Envita-www.envita.com. The website says they are located in Scottsdale, AZ so I'm almost sure this is where she is going.

Dx History: Lyme and Possibly Bartonella (Did not test positive for Bartonella yet)

Rx History: 400 mg Doxycycline daily (2 months),  2,000 mg Amoxicillin daily (1month), Currently taking 2,000 mg Amoxicillin and 500 mg Zithromax daily. I will be adding Rifampin soon.

Supplements: Vitamin D3/Ca supplement and a Probiotic


kendal122
Veteran Member


Date Joined May 2007
Total Posts : 1088
   Posted 10/29/2008 10:03 AM (GMT -6)   
Goldfinch, thanks

kitty9309
Regular Member


Date Joined Oct 2008
Total Posts : 163
   Posted 10/29/2008 12:33 PM (GMT -6)   
I just want to correct something above.
Lyme Disease is caused by bacteria, not a virus.

Martha's Vineyard
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Date Joined Jul 2008
Total Posts : 1119
   Posted 10/29/2008 9:50 PM (GMT -6)   
I don't know why the forum moderator made a comment to me above. Was it because I said the word sex? My daughter has sex education in school. She attends a private school. I don't know any kids that are in Junior high who have not heard the word sex, nor do I think that teaching a child that things can be sexually transmitted is harmful. To the contrary.


Kitty, I do not see the words virus above.

Yes I am in a place called Envita. I am very happy there.

I feel better than I have felt in 4 years.

Abx did work for me for many years. Maybe this is why the New England of medicine who the whole world follows, also say that taking abx does not cure lyme.

I am not interested in being on a site that thinks that Dr.s are evil and that the New England journal of medicine are out to kill people.

This site is totally against the best medical the best Dr.s in the world. I am looking for answers to help people. That is what is important.
But making people scared out of their minds and pushing the "cure unknown" is not productive.
The Dr.s that are being brought up on charges for drugging helpless sick people with horrific amounts of abx is in fact criminal.
I know that abx do not work. And everyone on this site who is over dosing on abx are sick and now broke as well.

There was a very common drug used for 2,000 years before abx hit the market.
It is called collietal silver.
It has made all of my symptoms away. I feel great. I have been given lyme over 4 times. I have been so tired of being so ill.
It has worked for me.
I got Lymes in 2004. So did my 11 mos old daughter and my favorite dog Toto.


kitty9309
Regular Member


Date Joined Oct 2008
Total Posts : 163
   Posted 1/22/2009 11:39 AM (GMT -6)   
I just saw this post. Sorry so late.

MV:
This is from your post above:

"Who this nasty little virus was named after. He got lyme that was from a rabbit. "

Lyme is a bacteria, not a virus.

I just don't want folks misled- I am a microbiologist and it "bugs" me.

~Kitty
14 years undiagnosed Lyme. I had a bulls-eye rash following a camping trip to NC in 1994. Swollen knees and replapsing and remitting vertigo followed for the next 14 years. All Lyme tests negative. Could possibly be B. lonestari due to being bit in the South.
Just began treatment with low dose Minocycline and Benicar.


Martha's Vineyard
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Date Joined Jul 2008
Total Posts : 1119
   Posted 1/22/2009 12:37 PM (GMT -6)   
hey kitty
Yes some time I do not write things correctly. You are right it is a bacteria for sure.
I meant to bring up the disease that was told to be only in the rabbits in Martha's Vineyard.
Tularemia. Which will kill you in about two weeks flat. It comes on like a flu. It has killed abut 4 of my yard men in martha's vineyard in the last 7 years. Yes I got rid of the houset there.
But the whole rabbit thing is a lie. Since we all know that ticks move from host to host and that they can carry this along with a bunch of other disease's as well.
Some coctail.
Can't expect lymies to write everything just so kitty. Relax...meow....:>)
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


kitty9309
Regular Member


Date Joined Oct 2008
Total Posts : 163
   Posted 1/22/2009 1:29 PM (GMT -6)   
Relaxed. Just wanted to clarify.

The deer fly can also carry the bacteria that causes Tularemia, though it is a less common vector. Landscape workers are at high risk for this disease.

I am sure no one really knows all the pathogens each vector is capable of transmitting.

Did your workers actually get tested for Tularemia?
14 years undiagnosed Lyme. I had a bulls-eye rash following a camping trip to NC in 1994. Swollen knees and replapsing and remitting vertigo followed for the next 14 years. All Lyme tests negative. Could possibly be B. lonestari due to being bit in the South.
Just began treatment with low dose Minocycline and Benicar.


stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 1/22/2009 4:01 PM (GMT -6)   
Marthas Vineyard, my husband bought me that book "Coping with LD" and I agree with you that it is an easy read with useful information. Could you maybe tell me a little about COLLIETAL SILVER? thanks, amey

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 1/22/2009 11:26 PM (GMT -6)   
meow...the word about the workers who got lularmai was that they got it from not wearing masks while mowing the poperty. And that when they mowed over the rabbit droppings that the disease then became air born and that inhalling it is what got it into thier lungs and it killed men that were about 25 in 2 weeks.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 1/22/2009 11:31 PM (GMT -6)   
Shutter bug
You have a nice husband. It is a informative book that does not make it seem like the end of the world.
The internet has a lot of stuff about MSP, or collidal silver.
What I liked about it was that is was used for many many years as a abx till about 1950, and then was sort of tossed out after the big pennicilans came out on the market.
MSP has the micro shape of a arrow and supposedly the lyme spirochett does not recognise the MSP as a threat and therfore it does not protect itself and so it gets killed.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."

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