I have to disagree with Dr J's proto for Bartonella. I have not heard of anyone curing Bart (BLO) compeletely...who tested positive for it. The only Doc who states that he can and has in some people is Dr Zhang.
I agree that a detoxification diet and detoxing is important...as I am about to start. If I were trying to sell someone on the fact that Dr J's proto was able to cure BLO...I wouldnt hold my breath.
I havent posted much in a while...but while I have been off I have talked to the leading Dr on Bartonella who has a DNA smear of the demon, many others who are influential in the Lyme community and there is no cure. If Dr J has a something that will break up the biofilm that is causing this problem, then he will win the NOBEL PRIZE.
Hiker- does your doctor undertand what Vanomycin IV can do to a person?
If there is no cure for the Bartonella like organism I might as well give up now. I am in big trouble as this is the only thing that has been found.
I have an infection in my urethral glands that the doctors can't identify and can't get rid of.
If Dr. F has the DNA when will he tell us what the organism is - is it like a mycoplasma or is it like Bartonella?. I think there are alot of people in a situation similar to mine who have been diagnosed with chronic prostatitis or Interstitial Cystitis and they are taking antibiotics for Bartonella in the hope of eradicating this organism. If they are wasting their time then he should let them know.
- sorry, just feeling very fed up today! - Louise
I do not understand why this KC doctor requires people to relocate there for IV treatment. This is insanely expensive, and it is not necessary. IV treatments can be done at home, in most cases by the patient. Insurance often covers the cost or part of the cost of medication, so I see no reason to pay for all of this expense. When you add on relocation and living expenses plus the stress of it all, it is a very high price to pay.
I recommend that people who are considering seeing this doctor consider other options.
Dr. R told me I did not have to move to kc for her to monitor the i.v's. I teach jr. high science and the way our school system works in Illinois is after you have used up the 12 weeks and if you are out of sick days your are fired. I am about at that point.
Do you think the i.v.'s with Dr. R helped? do you have bart? What was your treatment protocol with her?
I stand corrected on I.V.'s and Dr. R. She told me that I would have to relocate to KC for the I.V. treatment, but not for orals. I do not intend to relocate as my whole support system is here (Normal, IL) and my elderly parents are a hour away.
I did get ticked at Dr. R for several reasons. I asked her to tell me exactly what tests she was running and she ran a whole bunch extra that I just had run this summer. She also will not mail the results before we have a phone conference and that is not until December 23. I wanted the results beforehand to be able to ask intelligent questions.
When I asked how she breaks up the biofilm for bartonella, she refused to tell me saying I might take it to another doctor. I thought that was ridiculous, so I doubt I will pursue treatment with her.
What I.V's did you have with Dr. R? Do you have bart? How did she break up the biofilm?
When I meant I would lose my job, I would lose the job, but be on disability, which does not pay much at all and I still have 10 years before retirement. The retirement disability would be much much less than if I could work 10 more years and retire with 35 years in.
I did do 3 months of I.V. while working--not easy, but after the first 2 months of sitting home, I was going crazy and we cut down the number of times I infused per day, so I went back to work. Took a year off 2 years ago, though and am very short on sick days.
Let me know how your trip to Jernigan's works out. Hiker53
Post Edited (hiker53) : 10/17/2008 2:29:41 PM (GMT-6)