Hi marlylandgirl, welcome to the board!
How long have you been sick? Some people who have Lyme disease were first diagnosed with other diseases inlcuding CFS, Fibromyalgia, MS, and ALS. My recommendation would be to see a Lyme doctor and rule out or confirm Lyme disease. From what I understand, MS is often treated with steroids. Steroids can make Lyme symptoms worse.
Below is a Lyme symptom list. You can have any combination of symptoms.
When Lyme disease is possible, it is very important to see a knowledgeable doctor. No test is completely reliable and results can vary by lab. Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.
You can email me at email@example.com for doctor recommendations.
It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/burrascano_0905.html He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. He also lists diet, supplement, and exercise recommendations. I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singelton MD.
I hope you can get answers soon.