Face pales, madman syndrome starts then feel better...anyone else?

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nunntrio
Regular Member


Date Joined Jun 2008
Total Posts : 51
   Posted 10/14/2008 5:05 PM (GMT -6)   
Since the beginning I have had a majority of my symptoms cycle. Really
bad in the AM and generally better by bedtime. My face pales when I feel
the worst and looks fine when I am feeling better. If I have a really bad
"madman" episode, I tend to feel a lot better. Never do my symptoms all
resolve themselves, but they do cycle. Can anybody explain this?

petma
Regular Member


Date Joined Jun 2008
Total Posts : 53
   Posted 10/18/2008 6:43 AM (GMT -6)   
HI! I am being treated for Bart and doing quite well.....when my symptoms were bad my face would go pale as well, and then I would go into one of my seizure like episodes....I'm not certain I understand the madman symptoms, but my episodes did seem to be cyclical....it seemed that as this delightful little creature went through its cycles, my symptoms would wax and wane accordingly.....don't know if this helps or not......are you currently being treated?
Petma

maggiemoo
Regular Member


Date Joined Oct 2008
Total Posts : 56
   Posted 10/18/2008 9:32 AM (GMT -6)   

nuntrio

I'm not sure what "madman" is but it doesn't sound fun.  I'm like petma mentioned with seizure like activity.  My symptoms also wax and wane and sometimes I do go very pale but my LLMD thought it had to do with my anemia.

nuntrio, what are you being tx for?  lymes and babesia or both?

maggie


petma
Regular Member


Date Joined Jun 2008
Total Posts : 53
   Posted 10/19/2008 12:53 PM (GMT -6)   

Hi Maggiemoo!

Could you explain further about your symptoms? It took me forever to finally find a doc that would even listen to me....my neuro insisted that I stay on the anti-seizure meds when I knew from personal work experience and tons of research that Bart was the problem.....since being on the Doxy (a ridiculously easy solution if only someone had taken the time to listen) I am feeling much better.....the seizure activity has stopped and the tingling in my face and hands is beginning to dissapate as well.....I would love to hear from you regarding your story, if you feel like sharing...:)

Petma


maggiemoo
Regular Member


Date Joined Oct 2008
Total Posts : 56
   Posted 10/19/2008 8:22 PM (GMT -6)   

Petma,

Hi, my LLMD was my last resort after seeing 4 neurologist and a rheumatologist who couldn't find what was wrong.  I never thought that my problems were anything related to my lymes since I was post lymes 5 years. 

My symptoms: At night I would have seizure like activity with at first my right foot "posturing" (pulling in very tight with my toes pointed and my ankle pulled inward).  Then my wrist started doing the same thing.  I would "posture" so hard, I sprain my wrist in my sleep while wearing a carpal tunnel support!!!)

MRI with and without contrast was all normal and during the day i had no other seizure like activity.  If you can imagine, having my feet in that position all night I have a very difficult time walking during the day.

I truly felt in my heart that my problems were not related to lymes.  I had been trying to get into Mayo clinic in MN to see the doc's up there.  Mayo put my name on the waiting list but as they waited my problems were getting worse.  I made an apt to see my LLMD to either bring light to these problems or write a letter to get me to mayo quicker.

He looked at all my previous tests results I had brought with me, listened to my problems and then said two things:

I could have a co-infection (I had not seen him in 4 years) and that my seizure like activity could be related to chronic anemia.  Now my labs have always been "normal" but at the very edge of normal.  He said that sometimes neurological problems can manifest from low iron.  He said my red blood cells were very small. 

Which when the tests came back to show the babesia then it all made sense.  Since babesia ruptures the red bl cells, that would acct for the problem.

I just started Mepro with zithro 4 days ago.  I'm starting IV iron this week to help with my anemia.  I'm not able to take iron orally, i have a bad reaction to the delivery.

That's my story and I'm sticking to it! LOL!

 love to hear from you too

maggie



kendal122
Veteran Member


Date Joined May 2007
Total Posts : 1088
   Posted 10/20/2008 12:22 PM (GMT -6)   
petma, what are you taken for your bart? Thanks,
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