Hormone Levels , Menopause and Lyme ???

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janem
Regular Member


Date Joined Nov 2005
Total Posts : 423
   Posted 10/17/2008 11:37 AM (GMT -6)   
Three years ago when I was officially diagnosed with Lyme /Babs/Erlichthia/Bart/Mycoplasma/H Pylori/TB ( what a host body !! ) I had already started the erratic periods and hormone fluctuations my OBGYN diagnosed as early menopause ( I was 44 ). I had been sick for two years before the diagnosis - and was in pretty bad shape. about two years ago I had what I thought was my last "official" period ....and sure enough hormones tested as completed menopause.
 
Am feeling on top of the world after three years treatment : test negative for everything except Lyme and babs now - not taking any symptom control meds any more , just ABX and supplements , back to working out , working , etc - and actually looking forward to doing things again .
 
Thought nothing more of it until the last three months : where period have suddenly appeared once more out of the blue ! ( along with PMT and emotional swings - great !)
 
Have an appointment with an OBGYN next week to make sure that its nothing nasty ( don't you just HATE having to have this type of appointment - with all the weird and wonderful symptoms I think I now have more pictures of the inside of me than I have of the outside )
 
But I wondered - anyone else seen their hormones dramatically waver ...and then surge back ?? Anyone else whose periods stopped only to start again ?

petma
Regular Member


Date Joined Jun 2008
Total Posts : 53
   Posted 10/19/2008 1:01 PM (GMT -6)   

HI Janem!

I can relate to your situation....my periods stopped for 2 years and I thought YEAH!!!  Then mother nature decided to play a cruel joke and the periods came back with a vengence, only this time I had Bart to go along with them....so, anemia was a huge factor....I would bleed excessively for days, stop for about 4-5 days then start back up again....when it reached a time span of 3 days or less between bleeds, with major clotting, etc...I decided to go to my OB/GYN.....when I got there he told me I was one tough woman,and why the heck wasn't I in the ER!!!  I was bleeding so heavily he was amazed I could even walk into the place......I had an ablation procedure done and that seemed to help for a while, but I wasn't being treated for Bart at the time, and the anemia continued to be a problem.....now, I am being treated for Bart, feeling much better, and my periods are somewhat regular and less heavy........just thought I would share with you so you know you are not alone.....there is help.....often it just takes a long time to get there........God Bless!

Petma


lillimul
Regular Member


Date Joined Jul 2008
Total Posts : 104
   Posted 10/19/2008 3:23 PM (GMT -6)   
hello! i was thinking of posting on this subject of menopause and lyme....i can't tell what's what. i'm 52 and started getting erratic periods when I got lyme Sept. 07. Didn't have one for 3 months, then started getting it again every 3 weeks, then skipped, then started getting them every 2 weeks, heavy, then light spotting once a month and now nothing for close to 2 months. I was feeling a lot better(energy, cognitition and have been thinking I'm probably getting close to coming off the abx (tested pos. for lyme and babesia) but then the last week i've been having sweats, anxiety attacks out of nowhere, muscle aches again, neck pain and insomnia. what's the difference between a hot flash and babs sweats? I get insomnia with pms as well as the mood issues. what's menopausal hormones and what's lyme? i guess i'll discuss with my llmd in about a week and also am due to see my gynecologist. so- i can relate!

janem
Regular Member


Date Joined Nov 2005
Total Posts : 423
   Posted 10/20/2008 10:56 AM (GMT -6)   
Thanks for the responses ....I am sure Lyme causes huge hormonal swings .....and certainly never sure whether its Lyme or Menopause !

BigRed
Regular Member


Date Joined Aug 2005
Total Posts : 66
   Posted 10/20/2008 11:25 AM (GMT -6)   

Hi Janem:

My period went from regular to stopping completely after getting lyme.  I was 45 at the time. In fact, I thought all of my symptoms were due to menopause.  I thought to myself, geez I don't how women get through this.  Little did I know what was really down the road.  I'd take menopause anyday.

 

Good Luck, 

Big Red    


spaztick
Veteran Member


Date Joined Oct 2006
Total Posts : 851
   Posted 10/20/2008 10:24 PM (GMT -6)   
Hi Everybody,

I was dx'd with Lyme and babesiosis in Jan/08, after being sick for 7+ yrs and dx'd with Fibromyalgia.

Yes, I have had a lot of hormonal fluctuations, which started in 2004. For some bizarre reason, my blood work came back showing only trace amounts of estrogen, progesterone and testosterone. When re-tested, I had a very high prolactin level. I couldn't really tell what was going on because I had been on the Depo Provera shot for many years. My last test showed an estrogen surge, indicating perimenopause.

Lillimul, that is a very good question about menopause sweats vs. babesia sweats! I have very often wondered the very same thing, to the point that I discounted my profuse night sweats, thinking they were just perimenopause-related, until my blood tested positive for babesiosis.

And another thing: How can you differentiate between the hot flushes you get from sickness vs. the hot flashes from menopause? Even with babs tx, I am still getting hot flushes, or heat rushes with sweating episodes. At this point, I'll probably breeze through menopause!
Oct 15/08: Biaxin + Plaquenil;
June 3/08: Biaxin + Flagyl;
Jan 18/08: 15 Wks, Mepron + Zithromax for Babesiosis (Positive IgM/IgG Igenex)
Lyme disease - clinical dx ’08; GERD '04; Essential Tremor ’03; Fibromyalgia ’01; Osteoarthritis; Depression; IBS; Interstitial Cystitis


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 10/26/2008 11:01 PM (GMT -6)   
Janen
You poor thing! How long did your periods stop for? So, wait...they told you that you had menopause at 44??? And then your period started again????
Gosh, well, I have been told by on my Interns that his wife had lyme twice. But she is going through hell with her menopause.
Had Lyme..???
Any ways. I had always been normal..like every 28 days. I am 45 now, had my 2nd baby at 40. I had wanted to have more kids..but not with this thing in my body. It was these periods out of hell..that well. Bleeding for 10 days..and not being able to control it at all. Messy and really tiresome.
I was told 3 mos. ago that I was going through menopause..by one Dr... but as you know I am sure. If you go to 10 dr.s you will get 10....
Did you have your blood tested to see how your hormones leves are.
Oh gosh you just reminded me. It can make your period stop...like I thought I was pregnant..for a while.
I don't know. Lyme seems to love Estrogen and stress. Be careful with the fact that the pill will not work with abx.
They lyme just screws everything up. I had a sonogram last month. And my gyno said that she saw a huge growth. And that it was bleeding inside...she did a pap smear and showed it to me on the screen.
It was painful but turned out not be be cancer. yippie. Lyme seems to screw up everything. But I think it is harder on women. My only words of advice would be is to try to keep a record of your period, like write down when you start and end and maybe a few comments. And then keep that up and then see if you have a pattern.
My 12 year old is going through puberty and she is really having a hard time. Estrogen really seems to feed this bug.
I am sorry that you have so much going on....your poor thing. Hope you have a good support system though all of this!
There is a cure out there..just hold on.
I got Lymes in 2004. So did my 11 mos old daughter and my favorite dog Toto.


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 10/26/2008 11:06 PM (GMT -6)   
jaynem
who did your blood work?
gosh we are the same age and so much of the same.
have you already had children?
and where the hell where you to find this ever so deadly little tick????????????????
Like your attitude!
You are positive and and strong!
I got Lymes in 2004. So did my 11 mos old daughter and my favorite dog Toto.


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 10/26/2008 11:23 PM (GMT -6)   
Petman.
My gosh anemia..that is the word...lol
I was bleeding so bad in june, then aug. then in sept I had so much blood coming out of me that I would leave a trace on the floor. I mean, you can't wear pants..and well it was awful. It makes you week and dizzy and It was hard to contain. to hide...to control, to stop.
My kids were like...oh mommy are you ok???
One time I was bleeding so badly that I really could not get up. I was having to hold on and the room was spinning. I was like..how could I bleed though all of this tuff....ya know. But it turned out that it was not that end, but the other.
I did not know that taking so many abx could make me bleed out the other side...so I had so much blood coming out of me of both side. I don't know how much a person can bleed for two weeks before....
It was like after birth for me.
I got Lymes in 2004. So did my 11 mos old daughter and my favorite dog Toto.


ktp812
Veteran Member


Date Joined Jul 2007
Total Posts : 715
   Posted 10/27/2008 6:24 AM (GMT -6)   

when I first became sick my PCP said I was starting pre menopause. So of course I believed him..but I asked does pre menopuase begin with a 102 fever-chills-back and neck ache-leg cramps-worse headache I ever had??? Plus the terrible fatigue and night sweats. This all happened overnight. Oh yes he said it can do all those things and decided I needed HRT to fix me up plus some antidepressants.

As I continued to get sicker and more symptoms cropped up he then changed his mind to CFS. It is very hard to tell the night sweats of meno and of a co-infection. I would have sweats for months and then they would go away for months. When I went to see Dr. H he asked about the sweats/chills and I said I was still having them and he mentioned it could be menopause. I told him I hadn't had a period in over two years so they said it had to be a co-infection. I haven't had sweats in 5 months now after being on Malarone for 8 months.

I think many of the symptoms are confusing and I did have the blood work to show I was premenopause at the time which makes it much more difficult dealing with the Lyme. But now over two years after my last period I am still sick with the same symptoms I began with so.. 


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 10/27/2008 3:07 PM (GMT -6)   
Our estrogen must be like a drug for the lyme. It loves that stuff.!

ktp812. keep it in your sight that you have lyme. And that it wil play all sorts of tricks to say that it is not there. It is not a stupid bacteria. And it loves to pretend to be everything else to get you off track.

how old are you? if you are 55, then bet it is meno. and your meno will be much worse than everyones elses because of your lyme.

raw ginger is good for meno.

antidepressants feel like a good thing...but watch out for the suicidal side effects.
It is confusing as hell. you go to 10 dr.s and depending on their specialty they will tell you a whole different story..
ha my gyno asked me how I was doing....she did not really want to hear it....she cut me off...in my long ass list of bs...and he stopped me....she said....gyno marie...
I said..hmmm...ok well...all she wanted to do was spread my legs and did a sono on me and asked about my sex life and birth control etc...gyno stuff
she did a ton a blood work on me and told me I was fine...except..oh by the way, you test positive for lyme...hmmmmm. but that is not really her concern for she is a gyno not an infectous disease dr.
even though she did lose her best friend and her little boy to lyme. they both had strokes.
so she then was very curious. I told her to go back to school. or read a book...for I do not have time to educate dr.s not with the huge amounts of money they charge me.
my female phyciatrist told me that i was going through meno...but then my MD told her, no...my hormones checked out fine....
I have had such many test and so much blood work done...wow....
read up., and know that you have a much better understanding of what is really wrong with yourself. And you think out side of the box. don't let then make you question yourself.
It is maddening and a huge waste of time...but guess we all have to search and kick down a lot of doors. what else can we do? sit back and cry...no....
I got Lymes in 2004. So did my 11 mos old daughter and my favorite dog Toto.


ktp812
Veteran Member


Date Joined Jul 2007
Total Posts : 715
   Posted 10/27/2008 3:53 PM (GMT -6)   
I am past meno now by 29 months..I always knew I was sick but getting the doctors to believe me was another story. You know just because you are of menopause age they just assume that is the problem. Even the people I worked with kept telling me it was menopause and everyone feels crappy. Yeah right..I loved showing them my WB and positive Bart test. That changed their minds quickly!

Mims
New Member


Date Joined Jan 2017
Total Posts : 1
   Posted 1/16/2017 12:33 PM (GMT -6)   
I have been having NO periods since Babs and Lyme and chronic gut problems and skin problems ever sine and horrible weight and illness, fatigue, can't sleep. What makes it hard is I homeschool a special needs child, and I don't have the energy anymore to do it, plus menopause symptoms, chronic sleep problems, gut problems and nasty weight gain. I haven't been this big since the last time I was five months pregnant. I don't think I can be pregnant since I have already been perimenopausal and are only nine months away from my 50th birthday! I have started exercising again but previous intolerances I had, like lactose, beans, onions, etc and sensitivity to fiber has only GOTTEN worse. I am tired and hungry all the time and have no energy and I frustrate my special needs child because I can't engage like before and I just think I am not as "interesting" and "fun". I am not sure I could have been this way for the gifted one, either. I don't know what to do. People say, get more sleep, each a less irritating diet, but that would require major changes it seems the others are not willing to do. It's really getting me down. My spouse doesn't understand I NEED a BREAK to recover. I NEED HELP. Not just "time heals all things", not "we just don't have the money" I literally don't have the ability to function anymore. I am willing to exercise more and make diet changes, I have started, but I need more sleep, more help in teaching our special needs kid, more change to the diet, not just a little. Everyone likes onions, I can't handle them even well cooked. My sweet spouse made a dinner last night with none, but it had beans and even after a little I felt SICk and gassed ALL NIGHT and couldn't sleep as I was up every 60-90 minutes in the BATHROOM! My special needs kid is FRUSTRATED with me because I find it hard to teach and do things he finds interesting. I really need some time to myself a couple of hours a day, not just for exercise, but to relax, take a slower pace. I want to see a doctor but all I hear "not yet.." No I need to see one NOW and I NEED HELP. I can't even carry on today, it seems. I need more than just a "you'll get better." Sure I will but I am really suffering NOW. It sounds hopeless, it's not, I just don't feel good at all today and needed to vent!

Post Edited (Mims) : 1/16/2017 11:36:48 AM (GMT-7)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 21158
   Posted 1/16/2017 12:37 PM (GMT -6)   
Hi Mims, welcome to our community!

Who is telling you not to see a Dr.? Your husband?
I think you should see a Dr.

Are you suspecting Lyme disease?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14; added biaxin Sept. 26/14 Disc. amox,added Ceftin Nov. 20th.; Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin); Abx/herb break Apr-July/15; July-mino; Aug. added Rif; Nov. switched mino to

multifacetedme
Veteran Member


Date Joined Jan 2016
Total Posts : 1501
   Posted 1/16/2017 1:59 PM (GMT -6)   
listening and caring
Lyme Forum Moderator: IGEN-X IGM ++ band 41, ind band 31 IGg, ind band 41. Clinical diagnosis of lyme by CMD and Naturopath. Used Herbal protocol: Buhner, Chinese herbs, Zhang herbs, support from this community. Targeted in this order: lyme, bart, babesia, cysts/bio-films, candida & fungus, back to lyme and bart. Feeling symptom free in the moment.
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