Head Pressure-- Could this be Lyme?

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Batman55
Regular Member


Date Joined Aug 2008
Total Posts : 136
   Posted Yesterday 5:29 AM (GMT -6)   
I've posted this description on quite a few health boards, now. I was on another forum that deals with Brain/nervous system disorders and quite a few people saw my description and thought it might be Lyme.
 
I hope you guys can look over this and tell me what could be the "tell tale" signs of Lyme, if I have any. I don't think I have Lyme, but I do have something very annoying and odd going on with me, and it's been going on for 4 years now.

I was bitten by a "large" tick about 8 years ago now at a camping trip, but it was removed before the 36 hour mark. about 5 years ago I was bitten by someone's dog on the leg, and I was told by the carer that the dog "had all its shots". I went in and got a tetanus booster the next day.

In closing, I would ask that some of you be careful with suggesting Lyme, because I also have anxiety problems, and some of these could be caused by anxiety.


---------------------------------------------
I'm 27, male, with no diagnosed diseases. Recently I had a battery of blood work done (the usual, cholesterol, enzyme/vitamin levels, thyroid) and nothing abnormal was found. I have no history of neurological diseases in either side of my family. I do not have high blood pressure. I am very myopic however and I do have mild astigmatism.

about 3-4 years ago, after a prolonged episode of drug addiction, I experienced a feeling of "head pressure" that got steadily worse. That part may be important... it started off as tolerable, and over time, got worse and worse. It is now at an unbearable stage, and shows few signs of slowing down. It is almost a constant sensation--it can occur anywhere in or around my head, no preference for any side or area. It also extends into my neck (usually around the left side of my neck.)

Much more alarmingly, along with the head pressure getting worse, other symptoms have slowly appeared.. few, if any, going away. Whatever new symptom crops up, seems to stay. These symptoms include:

- Lots of floaters in the eye, which may appear out of nowhere and change on the fly--tolerable, but very annoying
- Daily tinnitus (mostly in the left ear, but occasionally "switches" to the right ear)
- Slight lessening of sensation on different areas of the body
- Visual problems, most noticeably (right now) is slight double vision, slight difficulty moving my eye muscles (seems to be tied in with head pressure)
- The double vision started 7-8 months ago, it just seems as if the "calibration" of my eyes is slightly off... hard to describe though.
- Stiffness/postural problems, makes for awkward walking, but no actual problems with mobility. Could be partially due to sitting in front of a computer too long, lack of proper exercise, etc.
- Stiff neck (could be from postural issues)
- Snapping jaw, like it's out of alignment (sometimes my jaw "tweaks to the left" involuntarily)
- My constipation (always a problem) is out of control
- Caffeine ingestion seems to cause occasional blurred vision and floaters, but not always.
- Alcohol intolerance. It makes most of my symptoms worse, especially the eye twitching/involuntary eye movement stuff--more than 3 drinks and I notice worsened symptoms the next day, even past the hangover stage

The head pressure was the first symptom of this "condition."

So, there are several aspects to this "thing" I have. I do have an anxiety disorder but low incidence of actual panic attacks.

So, is anyone familiar with the head pressure at least, and found a way to relieve it?
------------------------------------------------------------
 
Thanks,
Batman
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Batman55
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Date Joined Aug 2008
Total Posts : 136
   Posted Yesterday 5:44 AM (GMT -6)   
One additional thing.. and this is the MOST RECENT abnormal occurrence..  it's causing a lot of concern for me, too.  about 3 months ago I noticed a raised, reddish area on my right breast and it looked like some kind of "pimple."  If I had to guess it would have been a bug bite.  But I don't remember a bug biting me there.  Later on a few smaller pimples appeared in the same area, and I still have 1-2 there.
 
Now there is a bit of a bulge in that area too, it just feels like fullness in the breast...  I really don't want to raise the "C" word here...  could this be related to a swollen gland, or something?
 
Could this have anything to do with Lyme?

LF1980
Regular Member


Date Joined Jul 2008
Total Posts : 78
   Posted Yesterday 8:12 AM (GMT -6)   
I would say see a lyme doctor ASAP. My lyme disease started with 'head pressure' followed by a lot of the symptoms you are describing, including swelled lymph nodes in the breast/under arm area.
let me know if you need help finding a doctor

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted Yesterday 7:56 PM (GMT -6)   
Have you had a cat scan or m MRI of your head?? Or, seen a neurologist?

Batman55
Regular Member


Date Joined Aug 2008
Total Posts : 136
   Posted Today 1:48 AM (GMT -6)   
Dowa said...
Have you had a cat scan or m MRI of your head?? Or, seen a neurologist?


This is going to sound idiotic, but no I haven't, and it's because I don't have health insurance...

Are there any activities or dietary measures that make neuro symptoms (head pressure esp.) worse for you guys?

Do you guys have alcohol intolerance?  Unpleasant effects from 3-4 drinks which can last throughout the next day, or even 2 days later?


Batman55
Regular Member


Date Joined Aug 2008
Total Posts : 136
   Posted 10/21/2008 12:13 AM (GMT -6)   
Anyone else?

saxmar
Veteran Member


Date Joined Feb 2007
Total Posts : 670
   Posted 10/21/2008 1:20 PM (GMT -6)   

I absolutely have no alcohol tolerance.  Most of the time half a beer or a few sips of wine will give me an instant hangover.

I also stopped doing any alcohol to make sure my antibiotics aren't weakened by the alcohol.

You really need a SPECT scan of your brain. Is there a University with a medical school near you?  Sometimes they will take you on.  You just have to deal with student doctors.

Cat's Claw can be bought over the counter and has antibiotic qualities.

What part of the country are you in?

 

saxmar

 

 


chief #7
Regular Member


Date Joined Apr 2008
Total Posts : 124
   Posted 10/22/2008 10:02 AM (GMT -6)   

I hate to say it Batman.  But it this is very similar to my story (with lyme).  It all started with head pressure/headache.  See a lyme doctor ASAP.  No health insurance, try to find naturalpath type who knows/understands lyme.  In the meantime, no alcohol and no sugar.  Read these message boards and look at things like the Zhang's and Cowden Protocol.

chief


tickbattler
Regular Member


Date Joined Jul 2007
Total Posts : 327
   Posted 10/22/2008 6:32 PM (GMT -6)   
Hi Batman,

Sorry you have been dealing with this. Your symptoms sound very much like Lyme and most likely coinfections as well such as possibly bartonella and babesia. My husband has all three. All three of my children are infected so I have seen a lot of symptoms. Yours are very similar to many I see in my family.

You need to be careful to see a doctor who is lyme literate to get the appropriate testing done. Most doctors do not believe in chronic lyme so this is very important! Also, the testing is not entirely accurate (many false negatives), so you need to see someone who can diagnose you based on symptoms alone. I would start reading books about Lyme to see if you think your symptoms fit. The most recent book just published is Cure Unknown by Pamela Weintraub. It is excellent.

Best of luck to you.

tickbattler

Batman55
Regular Member


Date Joined Aug 2008
Total Posts : 136
   Posted 10/23/2008 1:04 AM (GMT -6)   
Thanks to all who have replied.
 
I'm guessing the lump on my chest would be a swollen lymph gland?
 
I also have a raised lump in the top left area of my neck..  some have suggested this is a swollen lymph node.  Still speculative though...
 
Could I hear a little bit about how Lyme Disease affects digestive health/bowel movements for some of you?  I have a strange thing where my symptoms get a lot worse after a bowel movement..

BUbear85
New Member


Date Joined Oct 2010
Total Posts : 3
   Posted 10/13/2010 1:38 PM (GMT -6)   
I have almost the exact same symptoms. Did you ever figure out what was wrong???

raw runner
Regular Member


Date Joined Oct 2010
Total Posts : 168
   Posted 10/13/2010 3:32 PM (GMT -6)   
If I drank 3 drinks I would be in bed for as many days. I have head pressure as well, often accompanied by the feeling someone is stabbing me in the head with a knife. Good times, no? Bowel issues as well, though now that I am on doxy, not so much...
 
Alcohol intolerance is common in other illnesses, not just Lyme BUT since you know you were bitten by a tic...
 
Not having nsurance will make this road slightly harder to travel. Sadly you have to do what most of us have done and become your own Dr. There are TONS of websites that will detail what the symptoms of Lyme (and other similarly presenting conditions)are and you can see what sounds like the best fit. If you can afford to go to the Dr. than do not waste any time with a regular Dr...get thee to a LLMD. I know someone here can email you the name of someone in your area. Otherwise try to see what you can learn on the interwebs and see if there is a protocol that feels right to you that you could follow. I ended up doing that for YEARS before I basically went in and demanded someone treat me. But, that doesn't always work, lol...
 
Read back through this forum. LOTS of good links and info righ here that may clear up what you are looking to find out. Good luck...

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 10/13/2010 7:08 PM (GMT -6)   
For many years before finally being diagnosed, I had alcohol intolerance, head pressure and swollen glands in addition to many other symptoms that didn't seem to make any sense.

The best thing you can do for yourself right now is research as much as you can and ask questions on this forum. Try to totally restrict all sugar and carbs which feed the lyme bacteria and if you can afford to add some of the supplements suggested for lyme in Burrascano's treatment guidelines. If you can't afford to see an llmd, then possibly you can look into one of the herbal protocols such as Zhang's or Cowden's that might be more affordable than going the traditional llmd route. If there's any way you can afford to see a lyme literate doctor, please do so as soon as possible. Believe it or not there are a few out there who do not charge a fortune although I personally know of none. You can find an llmd in your area by contacting stephanie@turnthecorner.org....just be sure to include your zip code in the message.

Good luck

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 10/13/2010 7:09 PM (GMT -6)   
BTW, Lyme Disease can be the cause of anxiety.

Antionette
New Member


Date Joined Oct 2010
Total Posts : 2
   Posted 10/18/2010 8:20 PM (GMT -6)   
I have read everyone's post. I am 28 and have been having the same problem. I have constant head pressure and sometimes feel like fluid is running down the side of my head for years. I have been to Drs and had MRI's and Ct scan but they all come back normal. the pressure in my head is getting really hard to deal with. As time progress it is getting worse. Could this be lyme disease.

Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 10/18/2010 9:29 PM (GMT -6)   
Normal test results are normal for Lyme patients. I went through years of worsening health and exemplary test results. I look healthy. It was difficult to be taken seriously. I had to get very sick to the point where I could no longer function in life before finally I got the help I needed. Your symptoms could be Lyme symptoms; you will need a good LLMD and testing to find out if you have coinfections and/or Lyme. Lyme is called the great imitator because its symptoms are the same as those for many other illnesses. Testing and an evaluation by a qualified Lyme doctor are necessary to determine if this is your problem.

I agree with Scorpio - cutting out sugar and alcohol would be a good step, and investigating alternative therapies may help you get some relief until you can find the resources or the proper doctor to help you within your budget.

Were it me, I would see a doctor about the breast spot. Have you seen a doctor about that? Maybe it could be Lyme or coinfection related, or it could be just a skin condition, or it could be something more serious. If it's been there for a few months, and it is changing, I'd think getting it checked would be prudent. That's not something you can diagnose on the computer and just in case it is something more serious, the sooner you get it checked, the better off you will be.
I have Lyme; it doesn't have me.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted Yesterday 9:48 AM (GMT -6)   
Hi Batman!
Welcome to our forum!!! I am sorry that you have a need to be here, but am sure glad you found us!! Like the others, I would highly recommend that you get in to see a Lyme Literate doc. Blood testing is sooo inaccurate & those that read these tests don't have a clue as to what they are looking at, that there are many false negatives - this would be the main reason for you to be 'clinically' (by symptoms, not tests) diagnosed. Lyme Disease is known as the 'New Great Imitator'. It shares the same symptoms as so many other conditions, that it is easily over-looked as a cause of patient's suffering. This is why we go from doc to doc to doc trying to find out what is really going on. I would highly suggest that you find a doc that sees the body as a whole unit, rather than just seeing a doc that sees only parts of the body.

Lyme can most definitely cause anxiety - I just had to go back on anxiety meds myself.

One of my biggest hurdles to get over has been serious constipation. I was on a seriously high fiber diet, taking stool softeners, & doing the fiber drinks every day & still couldn't count on that working. I had to go on a 'script for intestinal cramping 10 years ago & I was told by that doc that if I went more than 3 days without anything 'moving', that I need to be in an E-room!! ACK!! My Acupuncture Doc has been able to really help me out with the herbs she has me taking - she's a Master Western & Chinese Herbologist as well. I believe that it is critical to have your intestine working well, as they play a large part in the body's ability to rid itself of toxins. And I do believe that this issue, for me, was due to Lyme.

A lot of people infected with a tick-borne infection (tbi's) have issues with alcohol intolerance. I have had my tick-borne infections fr a long time, but am only recently experiencing this symptom.

Another thing that is fairly common for those with tbi's is wheat & dairy intolerance. This could be part of the reason for your head pressure. I seem to have a sensitivity to them, but as long as I limit the amount I take each week I seem to do just fine.

I don't believe that a tick has to be attached for 36 hours. I have had positive test results come back after a tick had only been attached for an hour at most.

A lot of great advice is given here by other members, I hope it helps some...
Trav
Blessed are we who can laugh at ourselves, for we will never cease to be amused!!!! :)

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted Yesterday 9:53 AM (GMT -6)   
Hi Antionette!!
Welcome to our forum!!! With the symptoms that you describe could be caused by Lyme Disease. The "fluid running down the side of your face" feeling is a nerve issue - I get these types of feelings all over my body - quite irritating.

Maybe you could tell us a little more about your situation?
Blessed are we who can laugh at ourselves, for we will never cease to be amused!!!! :)

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav

Antionette
New Member


Date Joined Oct 2010
Total Posts : 2
   Posted Yesterday 12:14 PM (GMT -6)   
hi everyone my problems started years ago, when I came home for college one summer. I have been to alot of doctors. i started going to ear nose and throat doctors but that wasn't it. The head pressure contuined and caused me to feel nerves. most recently I had to stop driving distances because it started affecting my eye sight, because the pressure would get so bad. Also recently I went to UMC which suppose to be the best and largest hospital in the state of Mississippi but they couldnt find anything either.

Like I said stated earlier I have gotten a number of MRIs and CT scans but they all came out normal.

Since the head pressure I have been having alot of anxiety attacks. This lead me to go to a doctor and get on anxiety and depression meds.

But I have learned to cope with it as much as I can. But its just upseting when I go to different doctors and they cant find anything wrong, but I know that there is something very wrong.

The pressure that i have feels like fluid is in my head and at time its makes me feel nerves and dizzy. I have had a doctor tell me that its a migrane. But I know its not that.


But I just keep living and trying to deal with it the best i can. I know that one day I will get to the bottom of my illness.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 10/22/2010 7:56 AM (GMT -6)   
Antionette,

I have had a number of MRI's & CT scans & they have all come back as 'normal'. This is actually typical of tick-borne illnesses, as they have the ability to mimic a number of other diseases.

Are the head issues the only symptoms you have? I believe that it would be unusual for any tick-borne infection to only have symptoms in your head, but I don't know all the different ways tick-borne infections can show themselves. Have you seen the list of possible symptoms in the thread at the top of the forum titled "New to Lyme?...Start here" ? If not, it would be a good idea to read through it.

Could you please explain what you meant by "makes me feel nerves"? Did you mean nervous?

I used to have a lot of head pressure & can relate to the need of anti-anxiety & anti-depression meds - I'm on both.
Blessed are we who can laugh at ourselves, for we will never cease to be amused!!!! :)

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav

Sharon2011
New Member


Date Joined Jun 2011
Total Posts : 2
   Posted 6/30/2011 7:22 PM (GMT -6)   
Hi Batman55,

Please let me know how you are doing. I also have the same problem now. My symptoms are so bad, I had to quit my job, and cannot take care of the household. My poor husband has to do everything. I don't get headaches, but different parts of my face swell. It's hard to pinpoint, but right now I feel swelling in my left temple, and roof of mouth, and neck on left side. Although the pressure can change. I too have been told that it could be Lyme. I am currently seeing a LLMD in CA. She has done the following tests. Western Blot, Igenex, Cd57, and My lyme immune id test. Honestly I cannot deal with this anymore. It's been going on for almost 2 months, and it's absolutely debilitating. Do you have any tingling that goes with your pressure. Mine all started after getting treated for what I thought was a sinus infection. Turns out there was no infection in my sinuses, yet I still feel horrible. I'm hoping to get treated soon. On a bright note. I got in touch with 2 ladies who had the same problem as I have. They went to an LLMD, and got treated. It is not a quick fix, and took some time, but they are feeling much better now. Not 100%, but they have better quality of life now, and can go out and do things. I wish the best for you Batman55. My prayers are with you. Take care of yourself.

Neurogurl
Regular Member


Date Joined Dec 2006
Total Posts : 373
   Posted 6/30/2011 9:06 PM (GMT -6)   
Hi Sharon, I am in the same boat as you......I am desperate to talk to someone over the phone ... I am completely losing it and need to talk to someone about my symptoms....do u all think its possible to have lymes without arthritis or intense joint pain? i never had any noticeable joint pain, but after being on doxy for only 5 days ...about 1 month later i started getting pains in my shoulder and knees....

achievinggrace
Forum Moderator


Date Joined Nov 2009
Total Posts : 3266
   Posted 7/1/2011 6:45 AM (GMT -6)   
Neurogurl,

Have you been able to find a Lyme Literate Doctor. You seem to be having a lot of anxiety -- getting treatment could really relieve that and your other symptoms.

Hope you are feeling better.
Co-Moderator Lyme Disease Forum
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