Does it seem like EVERY medication gives you a bad reaction?

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Chris L
Regular Member


Date Joined Aug 2008
Total Posts : 189
   Posted 10/20/2008 5:36 AM (GMT -6)   

Due to a number of clinical symptoms, this week my doctor tested me on a very low dose of Armour.   My Igenex test has confirmed Lyme, but since my quality of life is so horrible and all my hormones are low (but in the bottom range), he decided to give me a test run on this medicine.   Basically, the worse symptom was the feeling that any of my limbs could just be pulled right off my body with the slightest tug.  This is obviously not a normal side effect of the medicine.  Anyway, that is not the point.   At first I thought it was in my head, but after this test run, I am absolutely certain now that I am having severe, uncharacteristic reactions to 99% of all medicines and supplements that I try.   Even aspirin gives me a moderate reaction.   I also have become very intolerant to gluten, high levels of sugar, peanuts, alcohol, and chocolate. 

 

Does anyone else have this symptom?  I'm curious to see how many people with Lyme have this same symptom.  I guess it's worth mentioning that Lyme has affected my GI tract quite a bit. 

 


*Bella*
Veteran Member


Date Joined Jan 2007
Total Posts : 1254
   Posted 10/20/2008 10:52 AM (GMT -6)   
Hi Chris,

I can absolutely relate to what you're saying. I get strange symptoms from a lot of different medicines, foods, etc. My GI tract isn't good either, so I wonder if maybe that has something to do with it.

Chris L
Regular Member


Date Joined Aug 2008
Total Posts : 189
   Posted 10/20/2008 1:14 PM (GMT -6)   
Hey Bella,

Thanks for responding. I would guess it might have to do with both the GI tract and the way the liver is handling the medicine in question. I've been tested in both these areas and everything is normal. Have you been tested in these areas?

*Bella*
Veteran Member


Date Joined Jan 2007
Total Posts : 1254
   Posted 10/20/2008 1:26 PM (GMT -6)   
Hi Chris,

I've had my liver function checked and it was normal, but I haven't had much testing in the GI area. My blood test came back negative for H. Pylori, which I had a lot of symptoms of. I think the next step would be an endoscopy to see what else is going on.

bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 10/20/2008 1:36 PM (GMT -6)   
Hi Chris,

Just a quick note to let you know that food and chemical sensitivities seem to be common among "lymers". Also, heavy metal toxicity can also cause this. Conventional "western" medicine did nothing to help us, but the "alternative" med. world is trying to help us. The approach is to support the liver/gall bladder, the adrenals, the gut, and probably kidneys. Maybe a good naturopath or alt. med. chiropractor could help you with this. Best wishes. bablymers mom

Chris L
Regular Member


Date Joined Aug 2008
Total Posts : 189
   Posted 10/21/2008 6:59 AM (GMT -6)   
Thanks Bella!

Bablymers...I have actually gone that route as well - Homeopathic. Unfortunately, I just can't get into their treatments. They always seem to want drastic things done like having all of my fillings out, take unsafe amounts of vitamins and minerals, take TONS of herbs and supplements I have never heard of before or that have very little scientific research behind them, or they want me to go to Mexico for 4 weeks to get IV's that will detox my system at $8,000 a week...apparently the "only way I'll ever cure the lyme." They also seem to use a lot of tests that just don't have enough scientific backing around them for my taste. I have seen at least 3 naturopaths that are considered very good doctors in my area.

I absolutely believe these doctors have something to offer, but I just need something more then blind faith and their word to undergo their drastic treatments. Thanks for the suggestion though!

peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 10/21/2008 12:55 PM (GMT -6)   
Chris, you've had some bad luck with ND's. Anyone who tells me I would need to go to Mexico, would make me wonder as well.
I also did some homeopathy for lyme, but this homeopath I went to see was totally uneducated about lyme and she was a kook.
Full of herself and was ticked off when I questioned her.
Anyone practitioner (allopathic or natural) who gets miffed at your questioning, well you need to walk out of there 

I agree with having fillings removed though. It's a known fact that mercury keeps illness alive and well.
Also vits and minerals nourish our cells

Because of my stint with lyme and trying to heal with abx and natural ways, I've been taking courses towards my naturopathic cert. Not to be an ND, but just a practitioner. You need to have a little more faith and also need to find a good ND who comes recommended.

I never got well on abx but did when I started naturally healing


The world breaks every one and afterward many are strong in the broken places


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4395
   Posted 10/21/2008 4:53 PM (GMT -6)   
Yeah, I too have a lot of reactions to things, and have a totally messed up GI tract. You might look into NutriGenomic testing to find out if your body has genetic predisposition to process things differently than the average person. I've got one genetic polymorphism that causes me to need far less of certain medications than the average person, and if I am given full strength doses, my body acts as if I've been totally overdosed because the enzymes necessary for detoxing these meds can't go as fast as "normal."

On the fillings, if you aren't having obvious outgassing from them, then don't bother. The exposure during removal will be far more than what you're getting by leaving them in. I was told by a biologic dentist that most people don't have trouble with them, that it is only certain folks who do, and those are the only folks he takes the fillings out for - everyone else he just recommends good dental care and just replace the ones that need replacing when they need it, and that's it (obviously, the replacement fillings would be non-mercury fillings).

If you have no confidence in the Naturopathic practitioner you see, then you should find someone else. I've "fired" many doctors and Naturopaths, including a world-reknown LLMD, because of lack of confidence in them.

Most Natural/Complementary medicine does not have much peer-reviewed, double-blinded, placebo controlled studies backing it, mostly because not many studies have been done. Doesn't mean the medicine doesn't work or isn't safe, just means the kind of info you seek on it is lacking especially in the USA. Other countries are starting to do more and more studies on this stuff, but it still is outnumbered by traditional Pharmaceutical research by quite a bit. But you can do your own research on this stuff if you want to: http://www.pubmed.gov/ is the best site to search for medical journal articles about various things...this site ties in to the National Library of Medicine's archive of medical journal articles. Some of the article abstracts even have a link out to the actual article and sometimes they are available for free (most cost $15-30 or more per article).
 
Stephen Harod Buhner does list a number of studies in his book, "Healing Lyme" to support his herbal protocol for Lyme and coinfections, so you might find the type of info in his book that you seek.

Another thing you might look into is the ability of essential oils to heal the body. Dr. Jernigan uses essential oils in his Lyme protocol. There are studies listed on PubMed.gov about all sorts of research with essential oils that may interest you.

I hope this helps - take care,


-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G-J Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).

Post Edited (Razzle) : 10/21/2008 4:57:20 PM (GMT-6)


Chris L
Regular Member


Date Joined Aug 2008
Total Posts : 189
   Posted 10/22/2008 7:13 AM (GMT -6)   
Razzle said...

Another thing you might look into is the ability of essential oils to heal the body. Dr. Jernigan uses essential oils in his Lyme protocol. There are studies listed on PubMed.gov about all sorts of research with essential oils that may interest you.

I hope this helps - take care,

Thanks everyone.  Its reassuring to know that I'm not the only one.   turn
 
 
Razzle,
 
Thanks for the info.  I use Pubmed quite a bit.  I'm actually very, very tired of doing my own research on all this.  It's been almost two years and I've done more medical research then any 10 people should have to do in their lifetimes.  But I'm preaching to the choir I'm sure.   Ironically, I've had doctors get very upset with me when I would give them copies of studies from Pubmed.   
 
I am looking into essential oils at this point.  The information on Pedmed is very encouraging.   Again, thanks for all the great info!

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4395
   Posted 10/22/2008 11:10 PM (GMT -6)   
Chris L said...
 
Razzle,
 
Thanks for the info.  I use Pubmed quite a bit.  I'm actually very, very tired of doing my own research on all this.  It's been almost two years and I've done more medical research then any 10 people should have to do in their lifetimes.  But I'm preaching to the choir I'm sure.   Ironically, I've had doctors get very upset with me when I would give them copies of studies from Pubmed.   
 
I am looking into essential oils at this point.  The information on Pedmed is very encouraging.   Again, thanks for all the great info!
Yeah, I hear you on the research.  I've been researching stuff off and on for at least 10 years, and still the doctors tell me they don't know what's all wrong with me -- these are the doctors who say it couldn't possibly be Chronic Lyme...but we know how that arguement goes... 
 
Glad you found encouragement in PubMed about the essential oils.  Just make sure you get 100% pure theraputic grade essential oils.  The oils used for perfume usually are not pure enough for theraputic purposes, and many have been diluted or extracted with solvents, etc.  Most health food store brands are terrible, so make sure you do your research on the ingredients and extraction methods first...  Email me if you want more specific details.
 
Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G-J Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).

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