I am so sorry been out of touch. I have been on Tygacil now for the past 3 months. It has been on and off a little due to some set backs. For some reason, I am having trouble with my hickman-central line, it has fallen out twice. Doc thinks I am not producing enough collagen for it to integrate into my body/skin. has anyone had any experience with this?
The tygacil/tygacycline is a strong med-atleast for me. it makes me feel pretty bad. I take 35mg in a 500cc bag over 2 -3 hrs everyday. I take zofran a half an hour before to help with the nausea. about one hour after, I feel just aweful, can't really explain but just bad-malaise, nausea, sick feeling. Finally, I fall asleep and usually feel a better in the morning.
I do beleive the tygacil is working, ofcourse somethings are babysteps but, I have had an appetite-which I did not have before and have gained some weight (in the past year I lost 40lbs), mental clarity is better, energy is a little better-depends on the day and hte stress level.
hang in there and keep searching till you find your answers. Watch/order Under our skin if you haven't already. I learned of 3 children this week who werediagnosed with Lyme, it is so scary. I don't want anyone to have to gothrough this!
Blessings and Smiles-peanutclass99 :)
Hi Noelle - I have a Perl and think it is helping. A few people in my Lyme Support Group have various machines and they all believe in them.
After almost 3 years of abx, with 7 months IV rocephin, I relapsed almost immediately after going off abx. I built a Doug Coil as a last resort as my doctor said no more abx. It has been almost a year, and although I cant say that I am 100% better, by symptoms are slowly subsiding, and I feel as if I am at the 95% mark. I just had a CD57 test and it was 144.... wahooooo!!! it was 25 before starting on the Doug Coil. You have the right machine, but keep in mind it is a slow process and you have to give the cysts and cwd forms a chance to come out and play.... then you zap them. I just wish I would have started out with the coil instead of abx. Oh well... live and learn. Good luck to you.
Fishfartus- I too started out with abx (IV & oral). I'm now trying alternative.