Sorry you are having such a hard time . We have all been through it ...and this board is a GREAT source of help to everyone.
The Mepron /Zith Combo is typically prescribed for Babesia and Lyme - I take it you have all been tested for co-infections.
Unfortunately it does take time to see results : expect to feel worse before you feel better ( see all the posts on Herx reactions ) but you can and will get there.
WRT Insurance or financial help for meds : my insurance was not so sympathetic to Lyme , but once I tested +ve for babesia , has never questioned coverage. I believe that if you reach out to some of the pharmaceutical manufacturers they have hardship programs. Finally - buying Mepron from Canada is much cheaper.
Hope this helps.
Hi RMV, welcome to the board!
I am sorry you and your family have Lyme. How long have you been sick? Mepron and Zithromax is prescribed for the co-infection Babesiosis, which is simliar to malaria. What doses of each are you taking? When did you start treatment?
Below is a Lyme symptom list. You can have any combination of symptoms.
It is very important to see a knowledgeable doctor. Besides Lyme and Babesiosis, ticks can also transmit other infections including two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Have you all been tested for these?
If you would like a doctor recommendation, you can email me at firstname.lastname@example.org
Be aware of the Jarisch-Herxheimer Reaction (herx). Often, when people who have Lyme take antibiotics their symptoms get worse or they get new ones. When the antibiotics kill the bacteria, toxins are released making them feel worse. It can be scary when it happens, but it is a sign the antibiotics are working. Although this reaction can vary individually, many people experience this at the beginning of treatment and every three to four weeks.
During treatment, it is good to document your symptoms daily. One way to do this is to list the three main symptoms you have each day with a numerical rating of their severity from 1-10. Over time when you review this, you can see when your herxes occur and how you are responding to the meds.
Many drug manufacturers have patient assistance programs for people who are uninsured or whose insurance will not cover the meds. These programs provide meds at low or no cost. Google the meds you are taking and find out who manufactures them. Go to their website and see if they have patient assistance programs or call to find out.
It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/burrascano_0905.html He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. He also lists diet, supplement, and exercise recommendations. I also recommend the books "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton MD.
Good luck with your treatment!
Post Edited (RMV) : 10/23/2008 7:36:11 AM (GMT-6)