I'm new to the lyme forum, not lyme. I found out I have lyme in July 08.
I'm not sure when I got lyme...started to get really bad in Sept. 07. I've had on and off joint pain in my back and neck for years, but I also did physical labor for a job and figured it was from that. My hands hurt a little too, once in awhile. Nothing that wasn't livable.
I think my worst symptom by far was unrelenting anxiety attacks. They only happened twice and caused insomnia. Has this happened to anyone else?
My main symptoms are in my head. I've been on rocephin for 3 weeks now and since starting it I've gotten headaches and severe stabbing pains in my feet a few times. Mostly I have severe brain fog and weakness. I can't do much of anything. I feel like I have ADD and I used to be a fast thinker. And busy all the time. Now I can't move off the chair.
I tried other abx before the rocephin and they didn't do anything.
I'm not even sure if I herx or not.
I see an LLMD and had an Igenex test done that was IGM positive. My co-infections came out negative. The bands that were pos. were 41+, 31++, 34, 45+. I think 34 was IND.
My CD57 was 12 and C4A was almost 50.000. Anyone know anything about these tests? My doc doesn't communicate much and I'm wondering how bad I really am. I know I'm bad....but can I recover?
My story is a long one and I was really knocked down before I found out I had lyme. I was never sick before and all this new information about what you should and should not do has my head spinning. I'm overwhelmed.
Now after reading everyone's stories I'm terrified that this will be lifelong. Like I may never get better. I'm already losing everything I can't imagine losing any more.
Does anyone just have brain problems and weakness? Sometimes I wonder if lyme is what I really have. Of course my regular docs don't think I do. Not surprising.
Lyme also triggered Celiac disease and many alllergies.and I lost most of my hair. I can't grasp how unhealthy I've become.
Shouldn't I feel worse or better or be herxing? I'm self pay for IV and want to be doing the right thing. My LLMD is a good one, he just doesn't give me much information. I always feel rushed.
I'm desperate to hear that people do get better even if they're bad to begin with. Maybe they just don't post on forums. There has to be some hope. I'm losing mine fast.
Does it sound like my problem is lyme?? I guess I just expect to have more typical symptoms.
I'd love some opinions....thanks