Dejavu - Info on Dr. J's protocol

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Jeminij
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Date Joined Dec 2005
Total Posts : 1336
   Posted 10/27/2008 12:11 PM (GMT -6)   
I hope you are online to see this as I have a couple questions. As most of you know I have had lyme off and on for 10 years now. Well after 3 years on abx treatment (in conjunction with exercise), I got 100% well and stayed well for 3 years. Then I relapsed after a very stressful event in my life. Well, back on abx for 2 years and got better (not 100%), but then got pregnant. After having my daughter, I felt great (no hormones). Well, when I stopped breast-feeding, the hormones returned as did some lyme symptoms. Now, she is 7 months old and the joy of my life. I hate that my lyme symptoms are creeping back up, but I have ordered Dr. J's newest book but don't know where to start. I basically at this point have no desire to back on abx. I don't feel that I am so bad as it comes and goes and my good days are really good and my not so good days are more a pain trying to take care of a little baby. Well, I wanted to know where to start. I am willing to try some of his products in hopes that it can more detox what is leftover as I don't believe I have active lyme at this point, more just toxins that need to come out. My last lyme western blot and pcr-dna tests both came back clean and that was just a few months ago.
 
So, what did you start with and what do you think is the best to start. I see a lot of products and my main symptoms have and always have been neurological. Any advice you have would be great. Hopefully I can nip this in the bud before it comes back again.
 
If anyone knows how to stop hormones I think we could all be cured. I am only 33 so menapause is much too far away for me. But I truly believe that hormones play such a huge roll in how we feel with lyme. Why else would I have felt the best ever during my post-partum months. I wish they would do some more research on that.
 
Thanks D!

Maureen21
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Date Joined Apr 2007
Total Posts : 1599
   Posted 10/27/2008 1:38 PM (GMT -6)   
Hi,
 
I am sorry to hear that you have some lyme symptoms coming back. 
 
I am going to try to get pregnant early next year.  I am mostly symptom free at this point and taking an abx. break after being on them for 17 months.  I will go back on abx. before trying to conceive.
 
I was wondering if you only took amoxy during pregnancy and what dosage?  I know Dr. Jones recommends zithromax with either ceftin or omnicef.
 
You mentioned you breastfed- did you stay on abx while breastfeeding?  How long did you breastfeed?  I would love to breastfeed, but not sure I am comfortable with doing it.  I breastfed my son for almost 2 years, so it is a major disappointment to not breastfeed the next one.
 
Thanks, Maureen

wacko woman
Regular Member


Date Joined Mar 2008
Total Posts : 182
   Posted 10/27/2008 5:24 PM (GMT -6)   
Jeminij,

I am sure Denise will be on to answer your questions, but meanwhile there are a couple of threads that you can check out from her.

One is:

http://www.healingwell.com/community/default.aspx?f=30&p=2&m=1231902

The other one I bumped up to the top named "More on Toxins, Viruses,and Herx reactions" (it is one that she started).

And I adamantly agree with you on hormones! Suzanne Summers has a good book out on bio-identical hormones. She has been given a bad rap about the book (because of the ditzy blond part she played on Three's Company) but my Dr. had recommended it and it is actually a very informative book. I have been using these hormones for over a year with very good results.

Be Well,
Wacko Woman

ticker
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Date Joined Feb 2003
Total Posts : 9208
   Posted 10/27/2008 6:09 PM (GMT -6)   

Hi Jeminij.  I am sorry you are having symptoms.  From what I understand, some women with Lyme feel worse after delivery.

Lyme disease definitely affects thyroid, adrenal, and hormone levels.  I think it is a good idea for anyone with Lyme, male and female, to have these levels tested.  When they are not optimal, they can cause many symptoms similar to Lyme disease.  If you want more information about specific testing, let me know and i can post it.

Did you have testing done at IgeneX?  Did you have any Lyme-specific bands present?  If you were not tested there, you may want to consider having a Western Blot done there to see what it shows.  There are many different treatment protocols available, both natural and antibiotic.

There are many things you can do to detox inlcuding exercise, detox baths, saunas, and/or steamroom, and certain supplements you can take such as Milk Thistle and NutraMedix Parsley.

I hope you can get started on a protocol soon.


Jeminij
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Date Joined Dec 2005
Total Posts : 1336
   Posted 10/28/2008 7:42 AM (GMT -6)   
Thanks. I did get my testing at IgeneX and no positive bands. I knew that I could possible feel worse after delivery, but for the first 5 months or so I felt great. I had a few bad days, but nothing to cause concern. Usually they pass on the their own and then I feel well again, but for some reason they seem to be lingering now so I am a little concerned and trying to avoid a relapse at all costs. I haven't had my hormones tested since pregnancy, I have had my thyroid tested so I would love more information on that as I know it plays a huge roll in how I feel. I have a great lyme doctor here in Boston, but am going to start acupuncture.

I credit exercise for getting me 100% the first time around and keeping me well for so long. I never thought I would have any lyme symptoms again, but I think (at least in my case) it is something I will on occasion have to deal with. I guess my excuse is that with a 7 month old who now is crawling everywhere and a fiance that works 75 hours a week I don't have much time for myself to exercise or eat right. She does sleep through the night and always has, thank God, but need to make the time to work out even if I have to lug her on my back to do so.

As for the pregnancy questions: Yes, I was on amox during the pregnancy and while breast-feeding. I also saw a high-risk doctor throughout my pregnancy. I had my lyme doc as well treating me, my ob/gyn and a high risk doctor so I was under very good care. All three assured me that breast-feeding would not be an issue and that I would not pass lyme onto the baby. I only did it for 3 months. I wish I had keep doing it longer as I felt great doing it. So far, the baby has tested negative for lyme as well, but something I plan to keep an eye on as she grows older. I will say, I did not have a good pregnancy. I was deathly sick the entire time. Hospitalized for 3 days and regular visits to the ER for fluids. I lost a lot of weight in the beginning and they weren't even sure I would get through the pregnancy. The worst case my ob had ever seen actually, but somehow I survived it and the birth was quick (no time for meds- ouch!) and she is the happiest, healthiest, most well behaved baby anyone has ever seen. I got lucky, but it was a long 40 weeks and I think lyme could have attributed to my being so sick, but who really knows. It was well worth it now.

I don't take anything at the moment, but hoping some natural remidies will detox my body. I do the detox baths, and foot pads, but it seems I have to step it up. Giving up sugar may be the hardest thing I have to do as I love my sweets. I did it once for a year before getting pregnant, but in order to gain weight I had to eat anything that would stay down so in came the sugars and now it is a hard habit to break again. Although, it did help greatly and sugar does make me feel much worse.

Maureen21
Veteran Member


Date Joined Apr 2007
Total Posts : 1599
   Posted 10/28/2008 8:36 AM (GMT -6)   
Thank you for the info. regarding pregnancy.

how much amox. did you take?

did you take the amox. while breastfeeding?

i remember you having a hard time with it. i felt so bad for you.

i am so happy that your daughter is happy and healthy.

Jeminij
Veteran Member


Date Joined Dec 2005
Total Posts : 1336
   Posted 10/28/2008 12:51 PM (GMT -6)   
I took 500 mg twice a day throughout and during breast-feeding. I stopped as soon as I stopped breastfeeding. I felt bad for me too, but thankfully she is wonderful and healthy and the best thing to ever happen sick or not. I can say that now because it is over.

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4296
   Posted 10/28/2008 4:35 PM (GMT -6)   
Hi Jeminij and everyone else,
 
First of all, congratulations on your baby!  Perhaps you really didn't relapse but you are just feeling some symptoms due to the birth of your baby and the stressful event which in turn weakens your immune system.
 
If I were in your shoes, I would start with Dr. Jernigan's Borrelogen because it goes after viruses that are left over from lyme bacteria's.   It also helps restore balance to one's body. 
 
If you click on "for detailed information" you can read more about Borrelogen:
 
 
I would also most definitely take Dr. J's Neuro-Antitox formula, which one, I have no idea, it depends on your symptoms.   If you have brain fog or fatigue, then I would go with the CNS/PNS formula. 
 
Below is a link to "which Neuro-Antitox Formula do I use?"
 
 
I agree with everyone else that a person can't detox enough.  Dr. Jernigan believes (as well as myself) that most symptoms are the cause of toxins from the lyme bacterias.
 
Remember that these most of these products contain 20% grain alcohol but in the back of his book, he lists many ways of getting rid of the alcohol while preserving the botanicals which I had to do since I am a recovering alcoholic.
 
I wish I could give you advice about hormones.  I am going through peri-menopause and will soon start the bioidentical hormone replacement therapy that Wacko Woman (Jeanne) talks about.
 
I hope this helps and that you feel better!
Hugs,
Denise

It's all about the Immune System mixed with a large dose of Positive Thinking...
 
This song is about my years with chronic lyme and being in remission for over 2 years:
 

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 10/28/2008 5:52 PM (GMT -6)   
Hi Jeminij.  It is good not to ignore any symptoms.  I also believe that exercise is very important to recovery.

Regarding thyroid testing, it is important to have the Free T3, Free T4 (besides the T3 and T4) and thyroid antibodies tested in addition to the normal panel.  They are not usually done but are necessary for a comprehensive view.  If antibodies are present, it can indicate Hashimoto's Thyroiditis which is an auto-immune thyroid disorder.  It is fairly common.  If you have Hashimoto's, your other results may be in the normal range but treatment is warranted. 

Regarding adrenal and hormone testing, from what I understand saliva testing is more reliable than blood testing.  One lab that does this is ZRT Lab http://www.zrtlab.com/default.aspx?s=1 This lab can test cortisol, progesterone, estrogen, testosterone, estradiol, and DHEA levels.  I had this testing done and many of my levels were deficient.  Treating this and my thyroid problem has been very helpful.

If you have this testing done and everything is okay, you may also want to consider getting another opinion regarding Lyme.  I hope you can get answers soon.


Really Lyme
Regular Member


Date Joined Jan 2007
Total Posts : 219
   Posted 10/28/2008 9:21 PM (GMT -6)   

I would love to know what you decide to do. I was just thinking today that maybe I should start a natural protocol. My daughter is 3 months old, happy and healthy. I just stopped breastfeeding and have a few little nuero symptoms. I breastfed on instruction from my LLMD, who also discussed it with DR J who thought I should breastfeed. People like to jump on me for that.

 My daughter's Lyme tests were negative, what a relief. Now I can spend the rest of her life worrying about every little thing she does and Lyme. I have also stopped my antibiotics my stomach needs a break, I also need time to workout.

Keep in touch, I know how you feel.


Finding Peace In This Crazy World !
 
Beth
 
FIRST POSITIVE LYME TEST IN NOVEMBER OF 2004
DX- WITH MS  APRIL OF 2005
DX- WITH LYME JULY OF 2006
FINALLY TREATED FOR LYME JANUARY 2007


ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 10/29/2008 5:53 AM (GMT -6)   

Hi Beth.  I am so glad your daughter is healthy and happy and that she tested negative!

Many Lyme doctors use alternative protocols either with or without antibiotics.  You may want to research the Cowden Protocol.  Dr. Kenneth Singleton has a new book called "The Lyme Disease Solution."  I have not finished reading it yet, but it is very comprehensive.  You also may want to read "Healing Lyme: Natural Healing and Prevention of Lyme Borreliosis And Its Co-infections" by Stephen Harrod Buhner.

 

Really Lyme
Regular Member


Date Joined Jan 2007
Total Posts : 219
   Posted 10/29/2008 1:47 PM (GMT -6)   

Thank you Ticker and Deejavu for the advice. I took the plunge last night and bought the 2 products Deejavu recommended Borrelogen and CNS/PNS formula and dowloaded a bunch of info. I have been thinking about it for along time, and got nothing to loose, but more money. And just maybe if it will make me feel better.  

I will let you all know how I feel.

 

 
Finding Peace In This Crazy World !
 
Beth
 
FIRST POSITIVE LYME TEST IN NOVEMBER OF 2004
DX- WITH MS  APRIL OF 2005
DX- WITH LYME JULY OF 2006
FINALLY TREATED FOR LYME JANUARY 2007


ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 10/29/2008 3:46 PM (GMT -6)   
Beth, I hope it works for you.

 



Sulma
Regular Member


Date Joined Apr 2008
Total Posts : 366
   Posted 11/5/2008 3:16 PM (GMT -6)   

I'm giving the Borrelogen and the NeuroAntitox II a shot. Can anyone please tell me if there's any reason I cannot take these two in the same sitting? I started yesterday and am thus far spacing them apart just in case.  Some herbs do not work well together and tend to inhibit one another's absorption and I have no idea if this is the case with these.  The Jnutra site doesn't say one way or the other.

Any talk to Jernigan and know for sure?

 


Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4296
   Posted 11/5/2008 5:17 PM (GMT -6)   
Hi Sulma,
 
When I took Dr. J's Borrelogen and Neuro-Antitox Formula (I took the CNS/PNS formula), I took them both together at the same time.   I called it my "Jernigan Cocktail", LOL!
 
Do you have Dr. J's new book?  If not, I strongly suggest buying it:
 
 
It explains so much about chronic lyme disease as well as viruses and new research that Dr. Jernigan has done.   There is a chapter called "Healing at Home" in his book.  Dr. Jernigan had chronic lyme disease himself and he really suffered. 
 
Hope this helps,
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking...
 
This song is about my years with chronic lyme and being in remission for over 2 years:
 

wacko woman
Regular Member


Date Joined Mar 2008
Total Posts : 182
   Posted 11/9/2008 6:45 PM (GMT -6)   
Really Lyme,

I will be looking for your post on how you are feeling! Do give it some time. If you were starting abx you wouldn't expect to feel better in a couple of weeks - it is no different on Dr. J's products. I will be thinking of you.

Sulma,

It is absolutely ok to take the products together. I was a patient of his (for 7 weeks total) and this is standard protocol.


Be Well,
Wacko Woman
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