HELP!! What do you all use to get some SLEEP???

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KeepHope
Regular Member


Date Joined Oct 2008
Total Posts : 222
   Posted 10/30/2008 12:12 AM (GMT -6)   
Any ideas helpful.
x

Post Edited (KeepHope) : 3/8/2009 12:21:42 AM (GMT-7)


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 10/30/2008 12:32 AM (GMT -6)   
Some things to consider trying, if you haven't already:

Valarian Essential Oil (massage on feet and down your spine at bedtime)
Vetiver Essential Oil (massage on feet and down your spine at bedtime)
Calms Forte (made by Hyland's; most health food & some drug stores have this)
Rescue Remedy (Bach floral remedy)
GABA
Melatonin
Magnesium & Calcium supplements (taken in the evening)
Yoga/other exercise
Make sure your sleep clothes and bedding are hypoallergenic and free of allergens (use dust covers, etc.; wash all sheets, etc., in hot water; run pillows in dryer for 20 minutes every 2 weeks to kill dust mites)
White noise in bedroom (helps screen out other unwanted sounds)
Acupuncture - to rebalance sympathetic & parasympathetic nervous systems (an imbalance can lead to insomnia)
Soaking in a warm bath (with epsom salts or baking soda in it) before bed
Reading an economics (or other dry subject) textbook ~ sounds funny, but who knows - it might work

If I think of anything else, I'll post it here too. Good luck,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G-J Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).


saxmar
Veteran Member


Date Joined Feb 2007
Total Posts : 670
   Posted 10/30/2008 5:16 AM (GMT -6)   
I use Ambien and Tme Release Malatonin.
 
saxmar

ktp812
Veteran Member


Date Joined Jul 2007
Total Posts : 715
   Posted 10/30/2008 6:11 AM (GMT -6)   
I use Lunesta and 3mg melatonin and 1 benadryl

Sulma
Regular Member


Date Joined Apr 2008
Total Posts : 366
   Posted 10/30/2008 4:44 PM (GMT -6)   
KeepHope said...
Any ideas helpful.
I have tried so many prescriptions with all sorts of strange side affects and natural things do not help at all to get me or keep me sleeping.
THis sucks.
FRUSTRATED
smhair


KeepHope, I would urge you to seriously consider NOT using any drugs to sleep, either OTC or prescription. (I was addicted to doxylamine succinate for the first two years of my LD). Our poor brain chemistry is already experiencing such a dreadful imbalance from the various neurological infections that adding chemical dependence to the mix will make a bad situation much worse. Remember too that drug induced sleep does not really duplicate the truly restful sleep we can get naturally.

I've found two natural supps work indirectly to help me sleep better, but they have to be taken every day. I use 2-4 grams of chlorella on an empty stomach 3 times daily. Chlorella is known to be very good at binding ammonia, which we have way too much of due to our infections. Also, a good quality oral magnesium helps to restore the levels of mag in the brain that the Borrelia (Lyme) is consuming. Taking mag sulfate (Epson Salt) transdermally via a warm bath is a great way to get a lot of it into your brain quickly.

I notice that if I go even one day without the chlorella and/or mag I start waking up a lot during the night and even wake up too early and cant get back to sleep. I can only vouch for the Yamaeyama Chorella at Vitacost since that's the only brand I've ever used. Give it about 5-7 days to pull your levels down enough to show some benefit, then stay on it. Lastly, no caffeine at all honey. NONE. Borrelia excites the central, peripheral, and parasympathetic nervous symptoms, and the last thing you need is to add anything at all to jack it up more. :-)

Post Edited (Sulma) : 10/30/2008 4:47:38 PM (GMT-6)


peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 10/30/2008 5:03 PM (GMT -6)   
What Sulma said x 100

I also, and this does work for me, I suck on a Riccola and for some reason, it puts me right now. Placebo, maybe, but as long as it works, I'm all right with that ;-)
The world breaks every one and afterward many are strong in the broken places


lillimul
Regular Member


Date Joined Jul 2008
Total Posts : 104
   Posted 10/30/2008 5:56 PM (GMT -6)   
i use .5 to 1 mg clonopin and either lunesta or simply sleep

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 10/31/2008 1:24 AM (GMT -6)   
Taking B vitamins after 3pm can sometimes interfere with sleep.
Have you specifically tried valarian root caps or the essential oil of valarian?

Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G-J Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).


kitty9309
Regular Member


Date Joined Oct 2008
Total Posts : 163
   Posted 10/31/2008 3:15 PM (GMT -6)   
I hated it, but the only thing that hepled my severe insomnia last year was Trazadone and Ativan together. It took a visit to the ER to find this out. Before that I was on Trazadone only. I had only slept 2 hours a night for 3 weeks, so I was in a very bad place.
I was able to wean off after only a few months.

Purple Tulip
Veteran Member


Date Joined Aug 2006
Total Posts : 1295
   Posted 10/31/2008 5:29 PM (GMT -6)   
Dramamine worked for me when nothing else really helped. Some of these drugs are a drepressant and you will find yourself sad for no real reason. If you can sleep with something mild, do it. Last march I forgot to take it and I fell asleep. I have been sleeping fairly well ever since.

Scooterscooter
Regular Member


Date Joined Sep 2008
Total Posts : 66
   Posted 10/31/2008 8:44 PM (GMT -6)   
I started sleeping well when I cleaned up my diet when I thought I had M.S.

I eliminated milk products, caffeine, refined sugar, white flour, and table salt (I use a little sea salt now). Now I sleep like a log unless I have something I'm thinking/worrying about that I can't shake off easily or I have to wake up really early the next morning and I keep watching the clock.

ktp812
Veteran Member


Date Joined Jul 2007
Total Posts : 715
   Posted 11/2/2008 6:41 AM (GMT -6)   

I would suggest you get your cortisol levels tested through saliva. Mine were all messed up too from the Lyme. I would get into bed at night and my body would be so extremely tired it would actually feel wired. I am now on adrenal supplements along with sleeping meds. It is the only way I can sleep and my LLMD told me that sleep is critical and whatever it takes to sleep then that is what I need to do.

I too tried everything else and now I am sleeping really good. But seriously I would get your adrenals checked and see if you have too much cortisol at night. That can really play havoc with the sleep cycle.


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 11/2/2008 6:47 PM (GMT -6)   
I too have the same problem with adrenals too active at night/not active enough in the morning, but my blood test wasn't abnormal enough for the doctors to do anything about it. One thing I do notice, however, is that if I am on the computer in the evening, I have a more difficult time getting to sleep that night. Probably something to do with EMF sensitivity, or over-stimulation of my brain (because before I stopped working, my job was computer-related)...

I have had supplements prevent me from sleeping. Specifically, B Vitamins, Potassium, and Vitamin D.

Adrenal glands need Vitamin B5 (pantothenic acid) and Vitamin C. You might try taking this combination early in the day and see if it helps.

Also, Nutmeg essential oil is supposed to balance adrenal hormones, so that may help too. I'm sure there are other herbs/etc. that balance adrenal hormones too. The biggest thing to remember though is that none of these treatments will start working immediately - it takes time for the hormones to balance, and for the influence of that balance to affect other parts of the body (such as the sleep/wake cycle). Don't try something for one or two days and give up, persist with the trial for a few weeks before deciding something is or isn't working.

Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G-J Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).


bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 11/3/2008 4:18 AM (GMT -6)   
Hi KeepHope! Do you own a pet cat? The reason I ask (and this is the truth, not a joke) is that nothing has ever helped my daughter sleep Except her dear cat! He can come into her room, jump on the bed, give her love and purr up a storm, and it will put her to sleep every time!! It's true! He has a 100% success rate! We think it must have something to do with the literal frequency at which he purrs and his ability to relax my daughter. I know it sounds goofy, but it has helped her.
Best wishes, bablymers mom

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 11/9/2008 7:46 AM (GMT -6)   
Make sure the room you are sleeping is as uncluttered as possible.

This can at least make the sleeping quarters relaxing and inviting. ALSO: No television in the bedroom. I banished my dogs from my bedroom too. That helped me too. But that's just me. Fewer distractions and just sleep only is allowed in my bedroom. It helped me -- a lot.

Something to try along with the suggestions above.
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