Really Need Some Help (Opinions) about VEINS

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snake1979
Regular Member


Date Joined Apr 2008
Total Posts : 282
   Posted 10/30/2008 11:15 PM (GMT -6)   
My Vascular system is being destroyed by this BLO.  Really, it is.  I am going to post, soon, pictures of the veins in my feet.  They are black and the other veins are very dialated.  It is crazy.  Does anyone here think I need steriods?  I have to stop this.  My legs burn so bad.  Should I start trying to get IV Gentamycin with Heparin?  Any opinions will be appreciated.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4395
   Posted 10/31/2008 1:21 AM (GMT -6)   
Steroids may only make things worse. Have you seen a doctor about the black veins, or talked with an LLMD about it?
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G-J Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).


snake1979
Regular Member


Date Joined Apr 2008
Total Posts : 282
   Posted 10/31/2008 8:35 AM (GMT -6)   

I have, but with to no avail.  This next week I am going to ask my doctor to go on IV Gentamicin. Their are probably a few people out there that understand my vein problems.  It is the most humbling thing I have ever had occur to me.   As I write I "burn" in my left leg.  I burn all the time, unless I elevate my legs about my heart and that is hard to at work. 

I feel very selfish, sometimes, but I guess I am just getting desperate as I watch my legs deteriorate.  I am only 28 and I am getting impatient because I dont want to be in wheel chair.  Thanks again for the reply and I wish you the best of luck.


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4395
   Posted 10/31/2008 2:02 PM (GMT -6)   
I read in a blog about Dr. S.'s Bartonella book and the person who wrote the blog said nothing seems to actually be effective for Bart/BLO except Clove Oil. Perhaps getting some to put on your legs/feet would help? May need to take it internally, but make sure you find a high quality theraputic grade essential oil of clove (it is NOT 100% pure if alcohol or other ingredients are listed on the label).

Also, how much Vitamin C do you take?
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G-J Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).


Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 10/31/2008 5:05 PM (GMT -6)   
Sorry, I'm a newbie. What does BLO stand for? Every vein in my body is dilated and look very strange. Doc called it vascular dilation, your veins dilate because they are trying to get the toxins out. Besides Lyme, I am mold-injured. Again, what is BLO and does it cause the vascular dilation also? Thanks-

runningiri
Regular Member


Date Joined Jan 2008
Total Posts : 373
   Posted 10/31/2008 6:51 PM (GMT -6)   
Snake,

I am so sorry to hear about how bad your legs are. What a cross to bear. I know it is hard not to let your mind wonder, but try not to think/worry about ending up in a wheelchair. That will most likely just cause you more anguish and anxiety. I completely empathize with your situation as I first became ill when I was 25. One very positive thing is that you have youth on your side and you had said that you were strong and healthy before this illness.
Anyway, have you considered seeing a doctor that specializes in vascular disease? Isn't there a branch of the mayo clinic in Arizona somewhere. I thought there was one in Scottsdale or nearby. What does your lyme doc (Dr. F, right?) have to say about your situation? In light of the severity in which you describe, I am surprised that he has not referred you to some other expert or perhaps been more proactive with treatment. The constant burning does sound horrible and I hate that you are having to deal with that. Are you still doing the Zhang protocol? What about the juicing and systemic enzyme therapy that you had posted about in the past? I sure hope things start improving for you. I will pray that some helpful knowledge comes your way soon.
Hang in there and keep us all posted.

-Runningirl

GOLDPAN6
Regular Member


Date Joined Mar 2008
Total Posts : 41
   Posted 10/31/2008 8:52 PM (GMT -6)   
snake,
I have followed several of your post. You and I have the exact same thing. I have the same problems with my legs and feet along with everything else.
I started out with brown spots on the tops of my feet. Nobody can tell me why. Now other areas are turning dark. To me it feels like my vains are shrinking. My legs and abdomon burn and hurt all the time. They feel like sand bags with no energy. Did you get a clear lyme result? I only came up with 23 and one other number. Can't remember.....brain fog.

snake1979
Regular Member


Date Joined Apr 2008
Total Posts : 282
   Posted 11/1/2008 12:23 AM (GMT -6)   
Thanks for all the replies...gratefully appreciated.  I tested negative for Lyme, #41 only.  Bartonella seems to be the culprit.  I have an appointment on Monday and will let everyone know. Have a great weekend!
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