How many people had/did not have gallbladder problems with IV Rocephin??

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Chris L
Regular Member


Date Joined Aug 2008
Total Posts : 189
   Posted 10/31/2008 7:16 AM (GMT -6)   
I'm about to start this and I'm worried about the gallbladder issue.  I've never had issues with my gallbladder before, but after much online research it seems a fair number of people had gallbladder issues or even had to have their gallbladder out.   If anyone can share their IV Rocephin experience, I'd appreciate it. 
 
Thanks!

ktp812
Veteran Member


Date Joined Jul 2007
Total Posts : 715
   Posted 10/31/2008 8:25 AM (GMT -6)   

Hi Chris-I was on Rocephin for 6 months Oct 2007-April 2008. Before I had the line put in the doctor made me have an gallbladder ultrasound to make sure it was all clear. I was also put on Actigall along with the Rocephin. In April I had what I now know was a gallbladder attack and ended up in the ER. They did a ultrasound and sure enough I had stones.

My LLMD said to stay on the Actigall and it should take care of the stones. He also took me off Rocephin. Anyway, the surgeon felt I should still have it out so I had surgery in June and there were no stones in it. So I am assuming the Actigall dissolved the stones while I was off Rocephin and the surgery was probably unecessary.

I am hoping to have another round of Rocephin when I see my LLMD next month. I am not sure anything will prevent the stones if they are going to form.

Kim


Chris L
Regular Member


Date Joined Aug 2008
Total Posts : 189
   Posted 10/31/2008 11:04 AM (GMT -6)   

Thanks Kim!

Some of what I read was that if you stop the Rocephin there is a good chance the stones go away.   It would stink to have the Rocephin work well and then develop stones.

Ironically, I have read a handful of experiences of people getting there GBs removed only to find out there were no stones.  I'm starting to think GB surgery is another "bread and butter" surgery for some doctors. 

Were you pulsing the Rocephin?   Dr. Burrascano's guideliness recommend 4 days one 3 days off for treatment.  That seems like a smart approach on many accounts.  It would help with the potential bile sludging, potential yeast overgrowth, and it may stop some of the lyme from going into cyst form.   I'm going to ask my doctor about this method.   


ktp812
Veteran Member


Date Joined Jul 2007
Total Posts : 715
   Posted 10/31/2008 11:34 AM (GMT -6)   
Chris-I did the Rocephin 7 days a week. If I go back on next month I am not sure how Dr. H has it done. Yeah, I was pretty upset when I found out the stones had either passed or dissolved on their own. I should have had another ultrasound done before the surgery but I trusted the surgeon when he said it must be removed. And on top of it I had to stop the only abx that has worked for me.
I had a great PICC and had no problems at all with it and they took it out cause I couldn't continue on the Rocephin.
 
Hopefully Dr. H will okay me going on it again. It was my miracle drug and I felt so good the entire time I was on it well except for the first couple of weeks. I was so sad to have the line removed. Good luck..
 

Chris L
Regular Member


Date Joined Aug 2008
Total Posts : 189
   Posted 10/31/2008 5:28 PM (GMT -6)   
Thanks again Kim!  turn

kandinsky
Veteran Member


Date Joined Sep 2006
Total Posts : 2300
   Posted 10/31/2008 5:56 PM (GMT -6)   
I did 5 months of Rocephin without any gb problems. There is medication like actigall that can help with this. Also some olive oil and braggs apple cider vinegar taken orally daily.

trytocancel
Regular Member


Date Joined Aug 2007
Total Posts : 263
   Posted 11/1/2008 12:10 PM (GMT -6)   
I had 10 weeks no trouble. 7 days a week. I followed an ETREMELY low fat diet and my LLMD at that time said that was the most important factor is preventing the issue.

<FONT color=blue>*no dx until 6/2007- clinical dx at llmd with a mildly positive bart test

hypermobility syndrome</i> dx, finally one western blot that no one knew how to read, and a nice round of prednisone to finish me off
June-August...Ceftin
August - October ....Roecefin IV, 9.5 weeks
October - worse than ever, bedridden, new LLMD pulled IV
October - March 21...biaxin & plaquenil, (worked a miracle),climbed step first time in 14mos
Jan - March 21...tetracycline (on and off 4 times bc hard to tolerate)

March 21 - April 19....stopped all prescription drugs, best month yet

July & August: DIFLUCAN...more improvement

September: Zithro + Mepron FOR 5 Days! Wanted to die on it, so back to diflucan for now


Chris L
Regular Member


Date Joined Aug 2008
Total Posts : 189
   Posted 11/2/2008 7:02 AM (GMT -6)   
Great information....thanks everyone!

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 11/2/2008 7:48 AM (GMT -6)   

Hi Chris L.  I did not have any problems when I was on Rocephin.  I infused it five days a week to prevent any problems, and my gallbladder was not affected.  You may want to talk with your doctor about this. 

Are you on an oral antibiotic also?


Chris L
Regular Member


Date Joined Aug 2008
Total Posts : 189
   Posted 11/2/2008 2:39 PM (GMT -6)   
Hey Ticker!

That's more good news. I'm Ceftin right now and I barely tolerating that. For some reason, ABX are worsening my constipation. My Doc thinks that IV will help bypass my digestive system and give me a better shot of getting meds into my system.
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