What kind of cardiac problems with lyme??

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twingirl
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Date Joined Feb 2007
Total Posts : 323
   Posted 11/2/2008 3:23 PM (GMT -6)   
Right now I am wearing a heart monitor for a month due to heart palpations and high heart rate. I get most of my palpatations when I am sleeping. They wake me up. I do get some during the day, but not as often.

My heart rate is normally around 80. When I herx it is more like 100. Lately I've noticed that when I move around just a bit, like do some leg squats, my heart rate goes way up to 140 to 150 bpm!

Does anyone else have these issues or heart related issues, and if so which ones?? This is very scary and making me anxious. Is there anything that can be done about these cardiac issues? Should I get some additional tests and if so, which ones?

Thanks!!

Dar

Sulma
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Date Joined Apr 2008
Total Posts : 366
   Posted 11/2/2008 3:42 PM (GMT -6)   
Could be you have a lot of neurotoxins in your tissues that you need to chelate, and you could need some electrolyte supplementation as well. During the first 16 months I was sick and didn't know what I had I experienced identical cardiac symptoms to your's. My resting heartrate had jumped from 70 to 100 and when I exerted myself at all it would easily jump to 140-150. I used to squat ATF (ass to fl..r) up to about 280lbs for a set, and it ended up that I couldn't squat 150 because one set was like running a darn marathon.

One of the hallmarks of the body's attempt to rid itself of toxins is to raise the heartrate. (It even does this when you drink too much and have a hangover the next day). In a healthy person this would be temporary. Now that much is fact, and what I've speculated from this is that our heartrates will stay high because it can't fully rid itself of the toxin build-up without help.

I found the single best detoxifier for that symptom to be freeze-dried garlic. It's gotta be freeze-dried though, but there are unfortunately only a few brands that offer it that way. Pharmax is the brand I use. It has tremendously reduced my headaches as well. Take six caps a day in divided doses. I'm thinking just that could well resolve the tachycardia and palps. Electrolyte supplementation certainly couldn't hurt either. One of those powdered mixes is very cheap and easy to use.

Post Edited (Sulma) : 11/2/2008 2:46:58 PM (GMT-7)


Dowa
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Date Joined Sep 2008
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   Posted 11/2/2008 3:57 PM (GMT -6)   
I have the same symptoms as well. I have had a complete cardiac work-up with stress tests etc. more than once in the last few years. ALL tests are normal. I just recently had my electrolyte levels checked as well, ALL normal. My heart feels at times like its about to jump out of my chest when the palpitations come. NO one can tell me why. I can only thank the Lyme I guess...D

Sulma
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Date Joined Apr 2008
Total Posts : 366
   Posted 11/2/2008 4:01 PM (GMT -6)   
Dowa said...
I have the same symptoms as well. I have had a complete cardiac work-up with stress tests etc. more than once in the last few years. ALL tests are normal. I just recently had my electrolyte levels checked as well, ALL normal. My heart feels at times like its about to jump out of my chest when the palpitations come. NO one can tell me why. I can only thank the Lyme I guess...D


Yep same here. Went through all that same bologna during the first year I was sick. Turned out to be a total waste of my money.

kandinsky
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Date Joined Sep 2006
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   Posted 11/3/2008 8:26 AM (GMT -6)   
Hi Dar ~

Have you tried sleeping with more pillows (2-3) to see if it eases up the cardio issues at night. I had to do that and it helped a lot.

I had very severe cardiac problems. They got better with treatment.

maggiemoo
Regular Member


Date Joined Oct 2008
Total Posts : 56
   Posted 11/3/2008 11:02 AM (GMT -6)   

Wow, I'm excited to hear that I'm not the only one who had cardiac issues.  I also have had them during the night and tests after tests all proved "normal". 

I certainly see that when I'm going through a herxing cycle then I have more cardiac issue and that knowledge helps me to deal with it better.  I push the electrolytes and rest. 

When I herx really strong I have problems with oxygen saturation and have oxygen at home for night and as needed during the day.

maggie


*Bella*
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Date Joined Jan 2007
Total Posts : 1254
   Posted 11/3/2008 2:17 PM (GMT -6)   
I have had many cardiac symptoms with Lyme. PVC's, vibrating sensations in my chest, fast heart rate, irregular beats, heart pounding, shortness of breath.

All of my tests have come back normal except my most recent Echo, which suggests I may have Pulmonary Hypertension. I have to go for more testing to rule that out.

twingirl
Regular Member


Date Joined Feb 2007
Total Posts : 323
   Posted 11/3/2008 3:34 PM (GMT -6)   
Thanks to all for your great replies. I have ordered some freeze dried garlic like Sulma suggested. That should come within a few days. I also have been using some cholestrymine that I have to see if that will help with the detoxing.

Kandinsky, I am happy to hear that your cardio issues got better with treatment. Hopefully that will happen for the rest of us. I sleep with one pillow under my head, one for my legs. I have lots of extra pillows, so I will try elevating my head more to see if that helps.

Bella, I hope your tests come out OK. These symptoms can be so scary!!

Maggiemoo, my syptoms are also worse when herxing. I need to get some electrolyte powder too. I am completly out and forgot about drinking it.

I saw my LLMD today and told him my PCP had put me on the monitor. I told him about all these suggestions and thought they were good ones. He had some other ideas as well. He is checking my thyroid even though the last test was in the normal range. We may need to adjust my T 3 up or down or change brands. He also gave me a saliva test for hormones. He said hormonal issues can contribute to the cardiac issues. He also took me off diflucan and is checking my liver enzymes which he does every few months. He wants to see the results of the heart monitor when I get them.

Today just blow drying my hair sent my rate to 135 bpm.

kathy622
New Member


Date Joined Aug 2008
Total Posts : 12
   Posted 11/5/2008 11:48 PM (GMT -6)   
Hi Dar,

My friend who has LD (after 20+ years of CFS dx) often has a heartrate through the roof.

She saw a cardiologist and was dx'ed with "bundle branch blockage" whatever that is.

She has to take valium when her heart rate goes through the roof.

Sounds like you have a really good doc. Have you seen a cardiologist? I know...yet another doc.

judy3
Veteran Member


Date Joined Nov 2006
Total Posts : 667
   Posted 11/6/2008 7:49 AM (GMT -6)   

Hi Twingirl,

You have a great doctor, Tyroid issues can cause palpatations, did you check your blood pressure? especially during the palpataions, I get fluctuating blood pressure, I am currently on 2 blood pressure meds, it was very scary to me, the blood pressure meds made a big difference , when the shaking and palps get really bad and I can sleep I sleep on the couch, and I place my head on the arm rest so my back or chest dont touch any surface and I dont feel the palps, I also started taking 3 Advils every few hours and it also helps, I probably have Pericarditis and am trying to get to see my doctor.


twingirl
Regular Member


Date Joined Feb 2007
Total Posts : 323
   Posted 11/6/2008 8:42 AM (GMT -6)   
Hi Kathy,

A blockage is what I am afraid of!! Especially with the shortest of breath. I've read that women get blockages in our smaller veins or arteries and that it can be more difficult to detect. I haven't seen a cardiologist yet, but I think I will be doing that after I get the results back from this heart monitor.

Judy,
My blood pressure is always low, so at least I don't have that issue. I also hate hearing the palps. Mine are so much worse when I am laying down too. I wonder why that is??

Take care all,
Dar

Sulma
Regular Member


Date Joined Apr 2008
Total Posts : 366
   Posted 11/6/2008 12:43 PM (GMT -6)   
I find it both sad and annoying that physicians fail to see the cause of our ailments, and continue to just treat the symptoms.  If you never had cardiac issues before you got Lyme then the sound approach would be to first run a few panels, do an EKG and an Echo, then most likely exclude unrelated cardio ailments as the cause of the complaints. That could all be done in two visits. Conventional medicine treats symptoms, guys.  Even the periocardis someone mentioned is likely to be inflammation caused by the Borrelia, which is well known to infect the ticker.
 
The only time my heart ever does anything untoward these days is even I get lazy and fall down on my detoxing, then the heart rate, palps, and skips start reappearing.  18 months of beta blockers didn't fix that, just masked it.  Detoxing fixed it.

Sulma
Regular Member


Date Joined Apr 2008
Total Posts : 366
   Posted 11/6/2008 12:44 PM (GMT -6)   
twingirl said...
Hi Kathy,

 I also hate hearing the palps. Mine are so much worse when I am laying down too. I wonder why that is??

Take care all,
Dar
 
 
 
Docs have told me it's not actually, just seems that way because we notice it much more. I totally agree though.  Mine used to seem WAY worse lying down.

twingirl
Regular Member


Date Joined Feb 2007
Total Posts : 323
   Posted 11/6/2008 2:05 PM (GMT -6)   
I agree that the cardiac symptoms are most likely lyme related. And I am thinking they will go away once the infection has been properly treated. It's what may happen in the meantime that has me worried. If lyme can cause blockage from infection in the heart, then that could be dangerous and I sure would like to know about it to prevent a heart attack if that is even possible.

Unfortunately from what I've read and from my older sister's experience, EKG's and echo's do not always find heart disease in women as they do for men. My sister ended up with a heart attack because these standard tests didn't find her problems. (She didn't have lyme)

I'm not sure about this, so anyone correct me if I'm wrong, but it seems to me that when people die from lyme, it's usually due to an infected IV port or from a heart attack.

Hugs,
dar

vixmor
New Member


Date Joined Nov 2008
Total Posts : 1
   Posted 11/6/2008 3:45 PM (GMT -6)   
I have only just been diagnosed with Lyme (last week) and it was my cardiac symptoms which first highlighted there was something wrong. I experience an irregular heartbeat (ectopic) pretty much all day everday. I have actually passed out a couple of times when it has been very bad. Have had a tilt test this week, which was positive (in that they made me pass out - not fun) and have had heart scans (fine) and 24 hour monitors. I am advised that it is likely that the cardiologist will put me on beta-blockers to deal with this. Am on a two week course of anti-biotics to try and deal with the lyme as a whole but have been told that they probably wont work (think I was bitten in Spring time). Am hoping that my GP will move on to something else to help. The rest of my symptoms are becoming much worse, pains in my legs and neck, unbelievable tiredness all on top of my heart dancing to its own rythm!

beths
Veteran Member


Date Joined Aug 2006
Total Posts : 690
   Posted 11/6/2008 4:24 PM (GMT -6)   

Been there, done that-now thru it!When I first had lyme/bart/babs, my heart rate would race when I stood-I flunked the tilt table and was diagnosed with POTS_postural orthostatic tachycardia syndrome. Sometimes beta-blockers make it worse. I found a Dr who specialized in it-he recommended ...nothing. After 2 years of treatment (I was initially home bound due to cardiac issues and dizziness), I am off meds (1 month so far) I worked today, took a pilates class, getting ready to make dinner.  It gets better..I was one of the sickest my LLMD had seen.

A bundle block is common in women-nothing to be concerned about-I have a right bundle block..my primary MD said she did too, as do many of her patients.

Hang in there..he did say to try to exercise a little..just do what you can. It goes away in time. Meanwhile..keep well hydrated, use licorice root if you blood pressure is low, salty food and rest.


twingirl
Regular Member


Date Joined Feb 2007
Total Posts : 323
   Posted 11/6/2008 6:03 PM (GMT -6)   
Beths, Thank you for telling your story. I'm so happy you are well! I do exercise a little. I just break it up into 5 minute segments. I do mostly stretching and weight work. I'll leave the aerobics for later!

Vixmor- Welcome to the board. If you were bitten in the spring, your lyme most likely has hit the chronic stage and two weeks of antibiotics will not help you. Even right after being bit, 4 to 6 weeks of antibiotics are needed. Most GP's do not understand the chronic phase of lyme or even deny that it exists. It's much better to find what we call an LLMD for treatment. They understand the illness and know how to treat.

There are many of us who have taken antibiotics for years. I was on them for over a year and a half. I am now using a rife machine which is helping. There are also herbal protocols as well as Zhang's protocol which uses Chinese medicine. Good luck with your treatment! If you have questions, this board is a good place to be. There are many knowledgeable people here!!

Take care,
dar

*Bella*
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Date Joined Jan 2007
Total Posts : 1254
   Posted 11/6/2008 8:12 PM (GMT -6)   
Hi Twingirl,

I just wanted to tell you not to worry too much about a heart attack if your Echo is ok. My heart symptoms worry me the most, but so far all they can see for sure is lots of PVC's (also worse when I am laying down).

Today's Echo's pick up mostly everything. I am so freaked out about the Pulmonary Hypertension, but my Cardiologist said that the Echo's are so specific they sometimes get false reads.

I've had EKG's, Echo's, Holter Monitors, Gallium Scan, Chest X-Ray, etc. and I'm still always scared they are missing something, so I totally understand how you are feeling.

bablymers
Veteran Member


Date Joined Oct 2006
Total Posts : 1458
   Posted 11/7/2008 1:22 AM (GMT -6)   
Hi Dar! My heart issues were part of what drove me to doctors and tons of tests, long before I knew I had lyme. My blood pressure was high then, and the heart rate was rapid and irregular all the time. It was awful. Finally, I was put on Toprol for the rapid heartrate (beta blocker) and some other drugs for blood pressure and other symptoms, and I felt much better. I only get "flip-flops" once in awhile now. I was not diagnosed with lyme until 6 years later (even though I know now I had it for many years). The lyme docs did not take away my original meds----just added their own stuff to it. You said you have low blood pressure, so I don't know if you could use Toprol. Maybe another type of heart regulator would work. Ask your doc. I have heard naturopaths say certain forms of Magnesium can help, and I think detoxing does too. I hope they can help you soon. Best wishes. bablymers mom

twingirl
Regular Member


Date Joined Feb 2007
Total Posts : 323
   Posted 11/7/2008 7:53 AM (GMT -6)   
I haven't had an echo yet. I'll ask my doctor about getting one.

My LLMD did mention that magnesium and potassium deficiencies can cause these issues. I am already taking these though I did up my magnesium.

I just got the freeze dried garlic today and am starting that. And I've been detoxing more. I also found out that 10K on my rife machine works for heart palps and helps detox.

So I'm doing some things naturally right now. I hope they help.

Frango, I'm in my 40's too. My goal is to stay alive!! Leslie's death really alarmed me too. It doesn't happen often, but it does happen with lyme disease.

My mother and two of my older sisters had heart issues/heart attacks. None of them have lyme, so I just don't want to assume that this is lyme related, although it probably is. I have a much healthier life and diet than my sisters. They are both diabetic and overweight and have terrible diets!! So I hope these issues go away with the lyme treatment.
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