A couple of questions...

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hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 11/9/2008 7:05 PM (GMT -6)   
First, what does recovery feel like?

Is it a good day here and there, and then more good days, and still more, by mostly good days.


Second, what does total remission feel like?

Is it "I'm recovered and I hope to get on with my life"?

Is it "I'm 75% of my former self"?

Is it "I'm doing well, but my !@#$ still hurts like hell"?

How do we know I guess if this is as good as it gets?



we need a cure.

maggiemoo
Regular Member


Date Joined Oct 2008
Total Posts : 56
   Posted 11/9/2008 7:45 PM (GMT -6)   
 
I know there is a feeling of remission if not feeling "cured" because I was there for 1 year almost 2.  I had been in different stages of Lymes 15 years.  When I finally finished my meds it took a couple of years to built up my strength.  Then it seems like spring came and I felt better than I had in years and each day I felt better and better.
 
Unbeknownst to me I had the co-infection babesia.  When I started feeling bad again and was losing ground my daily question was:
Is it "I'm doing well, but my !@#$ still hurts like hell"?
 
As I was seen by various different doctors, their comment was usually "You've had Lymes what do you expect." 
So then my daily question was:
 
How do we know I guess if this is as good as it gets?
 
Now, I'm working through the Mepron/Zithro with the goal of getting back what I had just a couple of years ago. 
Together we can do this with support, sharing information and education.  
 
I didn't have the forums and blogs before when I went through treatment and I SOOO appreciate having them now.
Good luck to you and thanks for sharing your questions and thoughts.
maggiemoo 

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 11/9/2008 8:10 PM (GMT -6)   
Thanks MaggieMoo.

Don't give up until you're back where you were when that spring came and things were great.

I wonder why the co-infection took so long to surface.

The "well, you've had lyme what do you expect line" is a cop out.

Good luck and keep the faith.

Yeah, I was at the grocery store getting dinner when suddenly I noticed my @#$% hurt like hell.
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