I am happy the appt. went well for both of you. It is wonderful that you feel able to stop the abx and just go on the herbals for a while. I am hoping for that day..
I guess I am just not sure what they will decide to do. The last time I saw Dr. H he told me that many of his patients relapse after being on IV and he feels that Bicillin works better so that is why I tried the Bicillin and that did nothing for me. My doctor here did write them a letter suggesting that I do another course of IV and that the only reason it was stopped was because of the gallbladder problem.
I was on for 6 months but am sure it would have been much longer since I was having such great improvement. I think maybe if they give me some different orals along with the Rocephin maybe I won't relapse as quickly. I feel as though I am back at the beginning. It is very discouraging. My leg symptoms are now in my right calf as well and I hadn't had that in 3 years and when I am sitting or laying down I feel as though I am on a rocking boat. I have had that for a while but it has become more intense. So I feel like the whole last year's improvement is totally gone. The fatigue/exhaustion is well...there are no words to explain it. The summer was okay but now I have slide backwards even more.
I had a low positive for Babs but have been on Malarone for 10 months. My first Babs was negative so I don't know if it is because I am being treated. It will be interesting to find out what they will decide to do. I hope Dr. H is there that day because I don't think John will make the decision on his own.
I had terrible fatigue with the Rocephin too so I use to do it at night and then go to bed soon after. I also did the glutathione which didn't do much for me. But then there was great improvement on the Rocephin for me within 6 weeks so tell your husband he will get there even though it seems endless.
Thanks for the mention of the other patient on Rocephin. It is encouraging to hear that and gives me hope they will approve it again for me. I will let you know how the appt. goes on Friday. We are bringing our extra Bicillin and giving it to the office. I have about 20 unused injections. One other thing..what did John give you the Cymbalta for? He mentioned that to me last time but can't remember what it would have been used for. Thanks for writing back and I will keep in touch..Good luck with the herbals and take care