Anyone trying anything NEW for their Lyme and getting cured?

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hopingToFindCure
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Date Joined Nov 2008
Total Posts : 759
   Posted 11/10/2008 9:22 AM (GMT -6)   
We DO need a new antibiotic. But short of that any new news???

HELP.

sosickoflyme
Regular Member


Date Joined Aug 2008
Total Posts : 31
   Posted 11/10/2008 10:03 AM (GMT -6)   

I saw this over the weekend...might be old news though.

http://www.viralgenetics.com/pr_102108.html


Dx Lyme Oct 2007....sympomatic for at least 3 years.  Oct - Dec 2007 Doxy 200 mg/day, Jan 2008 Ceftin 1000mg/day, Jan 2008 - 10 weeks IV Rocephin, April 2008 - August 2008 Ceftin 1000mg/day with Zithro 250mg/day,  changed LLMD's Oct 2007...currently dx with Bart and Lyme maybe Babs too...on Omniceff 600mg/day and Levaquin 500mg/day.
 
"Gees, you don't look sick."


kitty9309
Regular Member


Date Joined Oct 2008
Total Posts : 163
   Posted 11/10/2008 11:41 AM (GMT -6)   
I know my doctor likes to use Benicar to reduce inflammation and open up the blood vessels so the abx can penetrate better.

He also uses a cyst buster, like Flagyl along side the Benicar and a conventional antibiotic. And that is just talking Lyme, not the co-infections!

hopingToFindCure
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Date Joined Nov 2008
Total Posts : 759
   Posted 11/10/2008 2:48 PM (GMT -6)   
Thanks everyone. Informative.

peacesoul
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Date Joined Jan 2007
Total Posts : 2446
   Posted 11/10/2008 3:19 PM (GMT -6)   
The old lyme treatments are the new lyme treatments.
People, including me, are getting well on natural antibiotics
The world breaks every one and afterward many are strong in the broken places


Chris L
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Date Joined Aug 2008
Total Posts : 189
   Posted 11/10/2008 5:10 PM (GMT -6)   
Peacesoul,

What natural antibiotics are you taking or have found success with? Thanks!

Dowa
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Date Joined Sep 2008
Total Posts : 1120
   Posted 11/10/2008 5:11 PM (GMT -6)   
Peacesoul: What do you mean by "natural" antibiotics? Thanks-

hopingToFindCure
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Date Joined Nov 2008
Total Posts : 759
   Posted 11/10/2008 5:54 PM (GMT -6)   
The old ones? Do you mean garlic and green tea.

If so, I'm on those in addition to the new ones. Not there yet.

Smiffy51
Regular Member


Date Joined Oct 2008
Total Posts : 35
   Posted 11/10/2008 7:57 PM (GMT -6)   
There's a natural antibiotic called Lauricidin, I wonder if anyone here's tried it please? I'd have to import it from the US so it would be expensive.

http://www.lauricidin.com/comparisons.asp


I'm trying my Lyme doctor's recommended herbal regime of Samento, Simba and Filisa at the moment.

Post Edited (Smiffy51) : 11/10/2008 7:02:29 PM (GMT-7)


hopingToFindCure
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Date Joined Nov 2008
Total Posts : 759
   Posted 11/11/2008 6:20 AM (GMT -6)   
djf2005 -

These are some serious antibiotics. I really wonder why we spend an inordinate amount of time on these antibiotics that don't necessarily work.

How long were you on these? Are you done? Are you cured?


Thanks!

bcaring
Regular Member


Date Joined Feb 2006
Total Posts : 346
   Posted 11/11/2008 8:21 AM (GMT -6)   
Hi djf2005,

I am very interested in hearing what you have to say about these other treatments. I found the information on low dose naltrexone in treatment for Parkinsons, Multiple Sclerosis, and Lyme interesting. Same with the other antibiotics.

As the original post stated we do need other antibiotics because of treatment failures that even the best LLMD's are unsure of how to treat. I would add that we also need definitive testing if possible for those who have had to rely on a clinical diagnosis - which leaves them vulnerable to resistance by the insurance community, and other people who question the diagnosis and then the treatment.

For those who prefer a natural approach I imagine they continue to look for further information and feedback on evolving treatments. Are there any studies with clinical data showing success of the natural approach? There seems to be no doubt that people have had success with this approach but I don't know how sick they were, were they clinically diagnosed or positive by testing? After treatment did they test negative?

I am and have been on IV antibiotics for late stage lyme and babesiosis for over a year and they saved my life and gave me some of it back. Would I have had the same results with a more natural approach? I don't have the answer to that. I had been on IV previously, but in retrospect it was too short of a time and not the right combination. In short, it was not aggressive enough. I went undiagnosed for a long long time.

I suspect that for me, using antibiotics along with supplements is the best approach at this time. Maybe the future will change my approach but this is where I am. I will continue treatment as long as I need to but I do worry about coming off them and finding that I slide backwards. I have a lot of very good days but when I have some bad ones I get scared. I am 57 so it is important to remember that not everything is Lyme, which adds another dimension in figuring out what is going on with our minds and bodies.

Any of your comments would be appreciated.
Beth

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 11/11/2008 7:34 PM (GMT -6)   
Hang in there Beth.

I believe there are stories out there of people sliding back when coming off, which is frightening.

I was off for flu and slid backwards after making great strides with a new regimen. Now I'm overcoming not only prior symptoms but symptoms that seem to be asserting themselves with renewed persistence.

Like you, the current class of antibiotics is my only hope. So I stick with it as best I can. Even if it makes me sick to my stomach on occassion.

Keep striving to get well and eventually you will.
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