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marylandgirl
Regular Member


Date Joined Oct 2008
Total Posts : 26
   Posted 11/10/2008 8:29 PM (GMT -6)   
Can anyone tell me if they have had any luck with United Health Care insurance covering costs for testing and treating lyme?  I am just starting this journey and am wondering what to expect financially.  Thank you for any information that may be helpful.

Chris L
Regular Member


Date Joined Aug 2008
Total Posts : 189
   Posted 11/11/2008 8:21 PM (GMT -6)   
Hi MDgirl,

Most of the time payment issues are with IV antibiotic treatment and not oral treatment. Nonpayment may also correlate with how well defined your lyme tests turn out.

I recently asked this question as open enrollment just passed and a member was kind enough to tell me they only paid for 1 or 2 months of IV treatment, but they did cover all the ancillary costs like the change of dressing and the PICC line maintenance. The best thing to do is call them and ask.

Hopefully others will chime in. Good luck!

marylandgirl
Regular Member


Date Joined Oct 2008
Total Posts : 26
   Posted 11/12/2008 8:37 AM (GMT -6)   
Thanks Chris. Do you have United Health Care? Do you pay out of pocket and then get reimbursed? I really appreciate your help. Thanks!

Chris L
Regular Member


Date Joined Aug 2008
Total Posts : 189
   Posted 11/12/2008 11:30 AM (GMT -6)   
I don't have UH.  I have Blue Cross Blue Shield.  I was deciding if I should switch to UH during open enrollment.  I decided to stick with BCBS.  I apologize I cannot be of more help. 

KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 11/12/2008 12:17 PM (GMT -6)   
I have UHC and they didn't have any problems covering any of the blood test ordered except the CD57 which they wouldn't cover calling it experimental.  I haven't done IV only oral meds, so I can't comment on that.  I have a $4000 deductible so it's all out of pocket anyway, but if it's experimental it doesn't go towards your deductible.  I did have a pos WB thru LabCorp, so I don't know if that would make a difference with what they would cover.
KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 


Sojourner2dd
Regular Member


Date Joined Sep 2008
Total Posts : 21
   Posted 11/24/2008 1:43 PM (GMT -6)   
bcbs-mi gave me no problems covering anything and everything after the deductible. I did IV Rocephin - worked wonders when combined with vitamines, herbs and a diet change deleting sugar, caffeine and alcohol. A reduction in starch helped too.

jginkc
Veteran Member


Date Joined Jan 2008
Total Posts : 692
   Posted 11/24/2008 1:56 PM (GMT -6)   
Sojourner2dd:
How long did you do rocephin?

I have bcbs KC, but it took getting into an ID MD here who actually believes in chronci lyme to get approved for iv rocephin - that and my spect scans
Month 18 of Lyme and Bartonella
On Zhang, doing much better, but not there yet!

90% functional, feel about 85% of my former self.

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