Lyme and joint cracking

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king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/12/2008 1:00 PM (GMT -6)   
Hi all, I go back to my LLMD next week and am HOPING for a dx...she wanted to run testing for co infections first as I only tested pos on band 34 and IND on 41 and 31 on the IGM.
 
I have been to so many drs and had SOOO many tests. Nobody can explain what is going on as my tests are all clear.
 
I am so sick of drs saying "joint cracking is normal" if I hear that again I am going to lose it. My joint cracking is not normal! I crack over 100 times a day, I am 33 yrs old and this cracking all started about 2 wks after my random pains. Now it is to the point where my knees and hips are popping out of the socket-two nueros could hear and feel it but had no explanation other than one saying "well you are thin so that could be why" the other had no clue. As for the general cracks everytime I move a body part they just say its normal. I know my body, and I know that this never happened before these pains and that this is NOT normal for my body. Even my fiance has commented.
 
I hope to God this ends up being lyme because I cant go on with this back and forth btw drs to have no answers. I have been leaving recent visits in tears because I dont have any answers and then I let my mind wander to think the worst
 
The all over twitching is making this situation worse....everday for three months.
 
With lyme, what causes the joint cracking? I do not have inflammation anywhere....and had a bone scan which did not show this.
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
 
New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


jennie48
Regular Member


Date Joined Sep 2008
Total Posts : 293
   Posted 11/12/2008 4:27 PM (GMT -6)   
hello king123...

I also have the joint cracking and its pretty bad..i am only 29 and the most joint craking i have ever had was in my wrist casue i had tendinitis. I am sorry that i dont know what causes this but i am curious myself of why lyme does this to our joints. I have kneck poping and cracking and a zap feeling in it when i move the wrong way...my wrist crack all day long and my elbows are slowly joining them ...my knee pops and my ancles crack :( i am also not inflamed and thats why meds dont help..


but look at my post for natural ways to cure joint pain....it may help you a few people posted back to me with remedies to try out...

sry i wasnt much help....

jennie
"I will not let Lyme controll my life i will controll my own life"
lyme since June 08
meds-zithromax 500mg one a day/ 1  month // Plaquenil 200mg twice a day/ 1 month
starting 10/3 doxy100mg // omnicef 300mg
 
ADHD/anxiety/depression// celexa 20mg


Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 11/12/2008 4:37 PM (GMT -6)   
King: I have replied to your posts before. It is TOXINS causing your cracking in my opinion. Have you recently been exposed to any new chemicals, mold or anything like that? Are you in a new place, have a different vehicle, ANYTHING? I am in a hotel in Dallas for medical treatment for mold poisoning, and if they spray pesticides or use a new cleaning product I have the cracking symptoms immediately. Think and try to remember where you were when the pain and cracking started. Yes, its a Lyme symptom also but sometimes other exposures will get it started ,in my case anyway....D

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/12/2008 4:56 PM (GMT -6)   
No nothing new since this started. In fact, it started when I lived somewhere else and I moved and it is continuing. I have been tested for mercury etc... :(
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
 
New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 11/12/2008 6:01 PM (GMT -6)   
Hi - I have it and it spreads. It started with my neck one day. A week or two later it spread to my throat. Next I was awakened by my jaw -- it popped open when I snored. I immediately saw a doctor. Guess what? Crepitis or whatever it's called (sounds gross) is NOT a symptom of anything.

Now it has spread to my shoulders, my knees, my ankles.

Lyme is a gift that keeps on giving/living/thriving.

You know what I'd do if you don't mind seeing yet ANOTHER doctor...Try and D.O. Some people with Lyme get there cure from them I've noticed.


http://en.wikipedia.org/wiki/Doctor_of_Osteopathic_Medicine

They may have more insights into these "normal" sounds.

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/12/2008 6:03 PM (GMT -6)   
Thanks for your feedback. I am clearly panicked over here...
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
 
New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 11/12/2008 6:51 PM (GMT -6)   
I have ALWAYS had this, even before Lyme Disease. One day (years ago when I had a real job and a life) I was walking around a corner at work and the secretary on the other side of the corner asked "What is that popping and cracking noise?"... and I replied "It's me, I've always popped and cracked."

Anway, my first Lyme symptom was a swollen left knee and then the pain set in (everywhere) and now my knees crackle and grind constantly.

It's Lyme disease and it sucks.
We'll get through today - Jennifer
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, 08/25/08-WE'LL SEE
Current Rx's 08/25/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Restoril 30mg, Prevacid, Darvocet, Acidophilus, Flagyl 1500mg, Urso 250mg, IV Rocephin 4 grams, Magnesium Chloride and/or Magnesium Oil - I need to order off the internet 
Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w 
I don't know how much more I can take song - heard this one coming home from my LLDr's office on Halloween 10/31/08 - "Ain't found a way to kill me yet" - http://www.youtube.com/watch?v=5gHiR1xeOSs
 


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/12/2008 9:55 PM (GMT -6)   

I never had it till I started to get pains. Its so bad. You mentioned grinding and I have to reply to that comment because now I am grinding. Tonight at the gym each time I lifted a weight with my right arm my shoulder started to grind and hurt, like its bone on bone. Wonder if I should get an MRI of ONE of the areas (hips, ankles, knees, shoulders) that are coming out of place. Its scary as before it was just cracking and now it is not only that but popping and grinding. I am scared I am going to discolate something

Has yours gotten this bad? Why would I not test a FULL positive on the Igenex IGM ( I only tested pos for 34 and IND on 31 adn 41) since my health is so poor? I really dont know what else it could be if I am basing it off all my clear test results...


----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
 
New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 11/13/2008 5:23 AM (GMT -6)   
king1234 said...

I never had it till I started to get pains. Its so bad. You mentioned grinding and I have to reply to that comment because now I am grinding. Tonight at the gym each time I lifted a weight with my right arm my shoulder started to grind and hurt, like its bone on bone. Wonder if I should get an MRI of ONE of the areas (hips, ankles, knees, shoulders) that are coming out of place. Its scary as before it was just cracking and now it is not only that but popping and grinding. I am scared I am going to discolate something

Has yours gotten this bad? Why would I not test a FULL positive on the Igenex IGM ( I only tested pos for 34 and IND on 31 adn 41) since my health is so poor? I really dont know what else it could be if I am basing it off all my clear test results...

I can't believe you have it in you to go to the gym!  I think that's great!  You might have to change some of your routine for a while since you may have LD.
Also, there is a condition out there that can cause joint dislocation - Ehlers Danlos.  I have the hypermobile type.... which is the least severe.  At times throughout my life I have dislocated and then relocated both shoulders.... and this ususallly happened in bed when I was rolling over or laying (lying??) on one arm.
The tests for Lme Disease are very poor.  Only about 50% of cases are caught with the current testing.  In my very humble, non-medical opinion, if your testing positive on any part of ant LD test, then you have to stay on top of it and treat it.
All the best.... rolleyes

We'll get through today - Jennifer
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, 08/25/08-WE'LL SEE - NEW!!! AND UPDATED!!! - turned out to be 10 weeks of IV Rocephin, my first visit to a Pain Management doctor - oops, but she was cool, non-judgemental and will not prescribe me any "opiates" which in the end, is probably a good thing.  And, my abx's have changed again, just see below. 
NEW!!! AND UPDATED!!! - Current Rx's 08/25/08  11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Restoril 30mg Rozerem 8mg, Prevacid, Darvocet, Acidophilus, Flagyl 1500mg Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg, Urso 250mg, IV Rocephin 4 grams, Magnesium Chloride and/or Magnesium Oil - I need to order off the internet  I never did order that off the internet,
Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w 
The "I don't know how much more I can take of this", song - heard this one coming home from my LLDr's office on Halloween 10/31/08 - "Ain't found a way to kill me yet" - http://www.youtube.com/watch?v=5gHiR1xeOSs
 


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/13/2008 11:29 AM (GMT -6)   
Well I dont feel super fatigued, that is the odd thing....just all the other symptoms noted below!
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
 
New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


stlrle
New Member


Date Joined Jan 2012
Total Posts : 2
   Posted 1/28/2012 8:49 PM (GMT -6)   
Hi king, was what you had confirmed as Lyme disease? If not, was there a diagnosis? I've got now what you had then 2008 (joints popping and muscle twitching among other things) and am so tired of seeing doctors who think this is minor if who say "Yeah you've got something wrong but I don't know what it is." I came across your post while trying to Google my symptoms. I know it's been 3 years since the last post in this thread but I thought it wouldn't hurt to try contacting you.

Alaskah
Regular Member


Date Joined Oct 2011
Total Posts : 285
   Posted 1/28/2012 9:49 PM (GMT -6)   
I can intentionally crack just about everything. Sometimes my knees will crack on their own, but usually my joints first get stiff, then I have some pain, then I crack it and the pain is usually released. I crack my knuckles, wrists, neck, back, knees, and toes. I'm only 24.

I've had a few doctors tell me that you can have internal inflammation/swelling that you don't see on the outside - things can flare up a bit around the joints without you really noticing any difference.

Believe it or not, exercise is critical for joint pain. You need to look at low-impact cardio, such as a stepper or elliptical machine rather than jogging, as well as muscle strengthening. Exercise will help to loosen you up and strengthen your muscles so that your body is supporting itself better and not placing as much stress on the bones.

I hope you find an answer to your problems - I've had joint pain since I was 12 years old and I just received a Lyme diagnosis a few months ago. It's somewhat of a relief to have a label on the problem, but it also raises more questions. But hopefully you will have a direction to go in soon.

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 1/29/2012 5:19 AM (GMT -6)   
for me there was a direct correlation between
my hormone levels and the cracking.

knees
wrists
ankles
knees
hip socket.

and the neck really kreeped me out.

When I go off estrogen progesterone tosterone it all comes back.

I think it is the estrogen.

And I had this in my ankle and knee since I was in my teens.
loud cracking. Everytime I straightened out my leg my knee would crack.

Toxins I think also have something to do with it.
I think mold. It sounds weard but I see that maybe the mold
sets off the hormones???

achievinggrace
Forum Moderator


Date Joined Nov 2009
Total Posts : 3266
   Posted 1/29/2012 7:32 AM (GMT -6)   
Hi strtle,

As you note this is a very old thread. We have not heard from king for some time.

The joint cracking, twitching and other symptoms you mention are all symptoms of Lyme. Do you have any other symptoms?

We have a very useful thread at the top of the forum "New to Lyme?" It has symptoms lists that you might look over -- the range of symptoms might surprise you. That thread also has a lot of other information and resources to get you familiar with the disease.

Please let us know if you have any other questions!
Co-Moderator Lyme Disease Forum

stlrle
New Member


Date Joined Jan 2012
Total Posts : 2
   Posted 1/29/2012 9:58 AM (GMT -6)   
I'll also add that I am in contact with livestock and have had a brucella test come back equivocal on IGM. My son (3 and a half) has also started to have joint popping. I've got insomnia, muscle twitches, resting tremor, headaches, joint pain, muscle atrophy, extreme weakness, menstrual changes. Progesterone helped with headaches and menstrual changes but I'm off of it now. How do they test for mold toxicity or other toxins?

L4uren
New Member


Date Joined Jun 2012
Total Posts : 5
   Posted 11/12/2012 3:29 AM (GMT -6)   
Old thread i know but if you see this King or stlrle then please come back and update us, i have developed the same as King :(

TICKLEDPINK
Veteran Member


Date Joined Jul 2012
Total Posts : 914
   Posted 11/12/2012 4:28 AM (GMT -6)   
Hi there,

Just a question,is the cracking linked to current inflammation in the affected limbs?

I, too have periods of loud cracking noises, mostly in my feet and knees and it is most definitely dependent on the levels of swelling.

Tickled

L4uren
New Member


Date Joined Jun 2012
Total Posts : 5
   Posted 11/12/2012 4:39 AM (GMT -6)   

That’s the thing, as I had indents on my nails I’m thinking psoriatic arthritis but I’ve been told by two rheumy’s that it’s not. Mine started as random pains all over the place then started with twanging in my shoulders then cracking in one joint at a time but now all joints with the exception of my fingers crack like hell 24/7 I have pain in both knees, hips, elbow and shoulders (but not constant) this all started for me in June this year but to this day I have had NO swelling at all or red / warm joints…


TICKLEDPINK
Veteran Member


Date Joined Jul 2012
Total Posts : 914
   Posted 11/12/2012 5:00 AM (GMT -6)   
That's how my symptoms started, one day knee pain, the next shoulder and so on.

Gradually my knees became chronic,as did my feet and hands.
Since being treated my inflammation has improved considerably,but strangely the more the inflammation decreases, the more my limbs start to snap ,crackle and pop!

Many of our current members suffer from similar symptoms and I'm sure that they will be along to give you more tips and tricks.

By the way what medications are you currently on? Do you take Magnesium?

L4uren
New Member


Date Joined Jun 2012
Total Posts : 5
   Posted 11/12/2012 5:19 AM (GMT -6)   
I’ve tried ibuprofen, naproxen, dicklofec all seem to have no effect. I also now take Vit D3 and glucosamide and cod liver oil, not tried magnesium yet. So TICKLEDPINK did you get a diagnosis? I live in the UK and have only travelled to America (Florida) about 4 times for holidays so I doubt it would be lyme

TICKLEDPINK
Veteran Member


Date Joined Jul 2012
Total Posts : 914
   Posted 11/12/2012 7:13 AM (GMT -6)   
Hi again.

I'm a Brit, living in Germany,I was bitten in July 2011 and started treatment in June of this year,after testing negative the first time.I have since tested positive for Lyme and Bartonella.

Why do you think that you can't have been infected inthe UK? We have Brits on the forum who contracted the disease in Britain,there is a Lyme Centre called Breakspear which you might like to contact,Morti81 is also from the UK and is being treated there.

I would try Magnesium,it really helps,also Tumeric and Boswellia are brilliant for pain.

Hope to have helped

Tickled

L4uren
New Member


Date Joined Jun 2012
Total Posts : 5
   Posted 11/12/2012 7:54 AM (GMT -6)   
But aren’t you suppose to get far more symptoms besides the joint pain / cracking with Lyme? And joint swelling, like I said to date I have not had any swollen or red looking joints, on top of that none of the anti-inflammatory drugs seem to do anything? I’ll get some magnesium tonight on the way home, how long would I need to take them to know if they are making a difference or not?

TICKLEDPINK
Veteran Member


Date Joined Jul 2012
Total Posts : 914
   Posted 11/12/2012 8:07 AM (GMT -6)   
Swollen joints aren't obligatory,we have all got our own set of symptoms here,nobody is alike.

Lyme can mimic nearly every autoimmune disease going,that's why it's so difficult to treat.

I noticed the effects of taking Magnesium at once,it's also great for helping people with sleeping issues.

Tickled

trishums
Regular Member


Date Joined Oct 2012
Total Posts : 97
   Posted 11/12/2012 9:02 AM (GMT -6)   
Hi, I too have joint "popping" -- and have lyme, bartonella, mycoplasma, etc!

And it all started in March, 2012, when I was bit by a tiny bug (don't even know if it was a tick!) in FORT LAUDERDALE. Just sitting outside, between the grass and pool at my friend's apartment.

The nasty bug left a red raised mark which got very itchy and would not go away. In hindsight, I wish I had dealt with it sooner!

So, L4uren, I don't want to be negative, but you can ABSOLUTELY GET LYME IN FLORIDA, not matter what the "experts" or CDC say. Still, I had to deal with many ignorant doctors (once I got back to NYC) who said it was impossible to be infected in FL. They are wrong and all the ILADS doctors agree. This horrible stuff is everywhere.

good luck with your healing!
trish

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35695
   Posted 11/12/2012 9:40 AM (GMT -6)   
Hi L4uren!
Welcome to our forum, I'm so glad that you found us! I'm so sorry for what you have already been through, we should be able to help you make a bit of sense of some of it at least. Have you had any tests done - blood tests or other types?

If you haven't yet, please do read through the "New to Lyme? Start here!" as it's packed full of important information, symptom lists (as Lyme rarely travels by itself), informative links, and more.

Tickled has already given you some really great information, and as she said, Lyme can be a very different for each person. Not only are the symptoms unique to each person, but so is the treatment that will work. That's a lot of the reason there is so much controversy and issues with finding a doctor that recognizes this for what it truly is.

Tickled was also very correct in saying that there is Lyme in the UK- you all even have some of your own strains of the bacteria that we over here in the US don't have!! There are over 100 strain of the bacteria here in the US, and over 300 world wide. As for the other tick-borne infections that are commonly seen with Lyme, there are many strains of those as well.

Lyme disease even has it's own form of arthritis, as well as just presenting with joint pains. The good news is that all of this is treatable, and depending on how much damage is done before effective treatment begins, it's possible to heal from at least most of it! That's the one good thing about having Lyme instead of any number of other things! LOL! smilewinkgrin

You will also need to start detoxing, as most of us have issues with detoxing effectively once we get these infections. We have a really great post in the "New to Lyme?" thread -bottom half of the 2nd one down - that covers detoxing when you have these infections.

As the bacteria die -from natural causes or from abx type treatments - they produce more toxins. These toxins are what drives our symptoms (www.encognitive.com/node/5768). You will want to be sure that you use all the detoxing suggestions for the best results, but I've noticed I get the most relief from joint pain/discomfort from the detox baths.

I've also taken several anti-inflammatories without any relief. Although turmeric & ginger caps (1500 mgs each, 3 times a day) has given me enough relief to keep it manageable with the use of over the counter pain meds.
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List" for Lyme disease.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Questions about what I've posted or just have questions? Please email me!!! Click on the blue envelope under my screen name
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