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king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/12/2008 3:32 PM (GMT -6)   
I called Igenex and they said they faxed my coinfection to my drs yesterday. I am scared they were negative. I know it sounds silly but I want a pos on something so I can get treatment or at least KNOW what the heck is wrong with me! I figured one of my drs would have called if it was positive.
 
I dont know what to do and am so down in the dumps.
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
 
New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 11/12/2008 6:57 PM (GMT -6)   
They may not have had a chance to look at the results, or maybe they were out of the office when the results came in. So no response from them does not mean the test was or wasn't positive. You might want to call your doctors tomorrow - it's your right as a patient to talk to them and get your test results.

Take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G-J Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 11/12/2008 7:28 PM (GMT -6)   
Give your doctor's office a call first thing tomorrow and ask them how you can get you hands on a copy of the results asap. They should be able to accomodate you and you have a right to see your results asap.
 
HERE'S MY EDIT:  The advice I have given is coming directly from me, a LD patient who has not once, but twice, stood in a doctor's office lobby and said at the top of my lungs "I WANT A COPY OF MY RECORDS AND I WANT THEM NOW.  THE FASTEST WAY TO GET ME OUT OF YOUR OFFICE IS TO GIVE ME A COPY NOW", ETC., ETC. - repeat as necessary.  I know it's "dramatic" but you would be amazed at just how well it works.  The shame of it all is that it has to come to this in the first place!

rolleyes   rolleyes rolleyes mad mad smilewinkgrin smilewinkgrin smhair smilewinkgrin   smilewinkgrin   mad   mad   rolleyes rolleyes   - man, I love emoticons.... we need one that "pukes" and gets "diarreah", just for the Lyme site - haha!


We'll get through today - Jennifer
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, 08/25/08-WE'LL SEE
Current Rx's 08/25/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Restoril 30mg, Prevacid, Darvocet, Acidophilus, Flagyl 1500mg, Urso 250mg, IV Rocephin 4 grams, Magnesium Chloride and/or Magnesium Oil - I need to order off the internet 
Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w 
I don't know how much more I can take song - heard this one coming home from my LLDr's office on Halloween 10/31/08 - "Ain't found a way to kill me yet" - http://www.youtube.com/watch?v=5gHiR1xeOSs
 

Post Edited (JELAINEP) : 11/12/2008 6:34:09 PM (GMT-7)


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/12/2008 9:52 PM (GMT -6)   
I see the LLMD on Monday but I am scared that they are negative or they would have called. I know its silly, to be scared they are neg. I just want a dx to whatever is happening to my body!
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
 
New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 11/13/2008 9:28 AM (GMT -6)   
Lyme is a clinical diagnosis, therefore negative test results do not rule out Lyme/coinfections. If your test results are negative, I'd ask if the doctor thinks you still may have Lyme, and/or I'd ask for the antibiotic challenge and urine test from IgeneX - click on "WHAT TEST(S) TO ORDER" on IgeneX.com for a better explanation.

Also, keep in mind that most LLMD's are really busy and so they may not have had a chance to call you. Don't fret - most of my doctors don't call me with test results either, no matter how abnormal they are.

Good luck,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G-J Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).


ktp812
Veteran Member


Date Joined Jul 2007
Total Posts : 715
   Posted 11/13/2008 12:40 PM (GMT -6)   

Do not be worried you might have a negative test..I had my co-infections done last June and was positive for Bart. I didn't find this out until my appt. in July so they never called me to let me know. If you are really concerned just give them a call and let them know you are anxious about the results.

I am always calling my doctor's office if I am anxious about any test results. I am lucky in we have a fax here at my home and I just have everything faxed to me. Please call them so you won't have to worry until you see the doctor.

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