Would you mind sharing with me what herbs etc you are using? I have got to try something, especially if I dont get dx Monday hence no meds.
My pains in terms of the ache is how you describe, its deep as though its my bone and it will slide down a finger and pulsate for a minute, leave come back hours later, or hit my toe, or my ankle. When this first happened if felt like my bones were being hit by a hammer or crushed. My most annoying and scary symptom now is the non stop twitching and joint cracking/popping/grinding that is getting worse
I have got to try something if I dont get meds on Monday. I will prob break down in tears if I dont get them.
My first symptom was a stutter in my speech. I ignored that for a few months, writing it off to stress, and then got suddently slammed with flu-like symptoms (nausea, weakness), tingling in extremeties, shooting pains all over, etc. It took one year to the day to get the Lyme diagnosis and that came only after my insistence for an Igenix test. Even at that, my primary md didn't acknowledge I actually had Lyme disease - only that, well, yes, I did have a positive Lyme titer. Then prescribed more anti-depressants. And when the nurse from the CDC called, she asked several questions, including whether I had gotten a rash and when I answered, no, she said I didn't fit the typical profile for Lyme and wouldn't be counted as an official Lyme case.
It's always interesting and insightful to read these stories. One thing I hadn't thought of was that I had also lost interest in reading - used to be an avid reader. In the last two months, I've been going through the books again... another sign I'm slooowly improving. I've been on abx, etc. since Feb 2008.