My coinfection results

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king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/14/2008 2:35 PM (GMT -6)   
My PC sent me an email to tell me my blood work was negative-just as I feared. So that means neg lyme (by cdc standards, I was pos 34 and ind on 31 41)
 
I see my LLMD on Monday

Now what? Is this normal? Maybe I dont have lyme and I do have some neuro disorder??
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
 
New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


hezzer926
Regular Member


Date Joined Sep 2008
Total Posts : 285
   Posted 11/14/2008 2:55 PM (GMT -6)   
not necesarily at all.. my first blood work only had one positive band and it was CDC negative.. then, i went to another doctor.. i was tested for the co infections.. also Negative... THEN, I went to an LLMD.. blood test thru Igenex= positive for lyme, bart, and babesia.. and the lyme was even CDC positive 

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/14/2008 3:00 PM (GMT -6)   
I was tested through Igenex :(

----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
 
New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 11/14/2008 6:22 PM (GMT -6)   
sorry to hear that herzer. that is a bad combo.
my whole family tested negative for years for lyme according to the unlawful quest blood test. wonder who they are answering too. the USDA perhaps, covering their asses that there is indeed a huge epidemic of lyme all over the country.
instead of trying to cover up this huge mess they made...
why don't they spend all of their time trying to come up with a " front line" for humans?????????
I got Lymes in 2004. So did my 11 mos old daughter and my favorite dog Toto.


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4395
   Posted 11/14/2008 7:01 PM (GMT -6)   
"There are nine known [Lyme] Borrelia burgdorferi species specific Western Blot antibodies (bands): 18, 23, 31, 34, 37, 39, 83 and 93.

Only one of these Borrelia burgdorferi genus specific bands is needed to confirm that there is lab evidence of exposure to the Borrelia burgdorferi spirochete and can confirm a clinical diagnosis of Lyme disease." -- From Charles Ray Jones' explanation of how to interpret a WesterBlot Lyme test.

You have one positive Lyme-specific band, and the IND bands may turn positive with treatment. In my opinion, this means that you likely have been exposed to Lyme, and given your symptoms, probably have an active Lyme infection.

I hope this helps...take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G-J Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/14/2008 8:32 PM (GMT -6)   
This does help. In fact, I am going to write that down and bring it to my appt.

Thanks SO much, you have made me feel btr with this.
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
 
New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 

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