Twitching? A herx reaction?

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hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 11/14/2008 7:15 PM (GMT -6)   
I have awakened to full body twitches for two days and counting. Just upped my doxy to 300 mgs almost a weak ago.

My head twitches and feels awful...

Is this a herx reaction?

hezzer926
Regular Member


Date Joined Sep 2008
Total Posts : 285
   Posted 11/14/2008 7:38 PM (GMT -6)   
im not sure if its a herx or not but ever since my dx, ive had the same thing.. it has definitely decreased w/treatment

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 11/14/2008 7:54 PM (GMT -6)   
My body twitches and I am not on any meds. So I would say, its not herxing or I would not have it as well..I believe it is a Lyme symptom. Very aggravating I know.. D

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/14/2008 9:06 PM (GMT -6)   

I have been twitching EVERYWHERE non stop for almost 4 months. I get hard twitches that I can see and little ones that are very deep. I have been SO scared I have ALS even though I have pains (which started all of this to begin with) which is not typically present with this diseaes and I had a good emg.

 

I hope hoping for a clinical dx this Monday. The twitching (SO FAR) is my worst symptom...and I do think it is due to lyme due to my other symptoms.


----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
 
New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 11/14/2008 9:17 PM (GMT -6)   
Was told that magnesium would be of benefit to twitching symptoms.

I may buy some.

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/14/2008 11:18 PM (GMT -6)   
I have been taking 500 a day, it has not helped at all.

How long have you been having twitching? Is it all over and daily?
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
 
New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 11/15/2008 6:37 AM (GMT -6)   
In the mornings...When I awaken too soon, at 3 or 4 and want to go back to sleep. Feels like a moderate convulsions?

Started this week. Although I've always had it off and on.

momcat1011
New Member


Date Joined Nov 2008
Total Posts : 8
   Posted 11/15/2008 11:46 AM (GMT -6)   
I started twitching 2 weeks after the tick bite (MAy1) It was nearly continuous then-- my Lyme titer is now .95 ( down form 1.30) and the twitching is almost gone. I have been on antibiotics for 1 month. I think the twitching related to your LYME infection-- my opinion-- and you need to track the change in your lyme titer as your treatment progresses. Again only my opinion based on my treatment so far.

Was tested for Bart yesterday ( IDS would not test for this initially as I do not own a cat). This may explain some of the remaining issues??? Also had an electrocardiogram for a newly developed heart murmur. Can't wear contact because of conjunctivitis. Are different antibiotics used for Bart infection?? I guess I hear back in a few weeks-- I have found the best way to deal with my IDS is periodically get my medical records. It is about the only way to follow up and things,.


Second questions -- does anyone know of a lab in the US that tests for the Lyme species in the UK. There are test kits sold by Trinity Labs ( however they sell to clinics in the 400 lot amount) ?? IGNEX does not test for this species.

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/15/2008 1:25 PM (GMT -6)   
Do you twitch all over non stop?
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body. 
 
New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .
 
TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR
 
Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
 
 
 
 
 
 

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