Herxing in Scottsdale...Is Envita working?

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Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 11/16/2008 12:26 PM (GMT -6)   
Oh man, last week was the pits. I thought that I was dying. Was not easy to get my butt to the clinic and was much, much harder to get myself back to the hotel after treatment each day. I was crying my eyes out, really not my style....and was heaving and trying so hard not to puke...not lady like...lol. But the nurse gave me a shot in the butt for my acute nausea and so that stopped that.
One week I got so dizzy from being dehydrated, I was bumping into walls. But honestly I have not been able to walk a straight like since I got lyme...so this was nothing new.
But they gave me iv fluids and got me better. It is wonderful to have nurses watching over me. It is honestly a luxury. When I went on the abx treatment from the Dr. in Germany I did it all on my own. And that was not safe. I got much worse. And could not even get my Dr. on the phone, plus German was his first language.
And when I went to the LLMD women Dr. in FLL she would put me on huge doses of anx, like 1,200 of doxy and I started bleeding through my rectum like a facet. When I called her in fear, she had no time to even see me or talk to me on the phone.
Her nurse blandly said..well if you have blood in your stool....call 911.
Uh I only had blood pouring out of me like every 30 minutes. My other Intern wanted to kill me for seeing her. She was trying to talk me into a iv treatment that would run me 3-5,000 a week for a year and a half. There is no way in the world that I am going to continue treatment with a Dr. who told me that it was a good thing that I was rich.
And for my whole family to get it would have been 15,000 a week. A big con if you ask me!
so here I am now...round 15, with yet a new therapy and a new Dr. and with envita I am getting watched and get to meet alot of other people with the same illness. Misery does love company.
I love it more that they "understand" what is wrong with me. And that I do not have to "prove" that I am sick. And I do not have to" educate "everyone. smilewinkgrin
My therapy is 8-10 weeks here through my port. yes I will here for Thanks giving and will take come time off for x-mas.
Looking into getting an apartment here now. Because with two sick kids and homeschooling...well...I have my hands full.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 11/16/2008 6:34 PM (GMT -6)   
What is a typical day like there?

Do you eat at the center?

Do they come to your hotel room when you're feeling ill?

Curious.

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/16/2008 10:03 PM (GMT -6)   
So do you feel as though it is working?

----------------------------------------------------------------------
33 yr old female
 GERD dx March 2007
Migraines with Aura
IBS
Currently no dx for:  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
LYME-TESTED POS BAND 31 AND IND ON 34 41 IGM THROUGH IG IN PALO ALTO, NO DX YET
 
 
 
 
 
 


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 11/22/2008 10:52 PM (GMT -6)   
I am not staying at the clinic I am staying in hotel for 2 mos. Phoenix is very close by like 15 minutes. I set my own time on friday of each week for the next week. So 9:30 is my new time for next week. I go in and they do my blood pressure and temp and oxygen. And then I go and sit down in a choice of 4 rooms. We sort of buddie up depending on who is going in for what and when we came in.
Cancer people sort of stick together...lol
And so do lymies...they tap into my port, flush it, and then take a bottle of blood, they iv and clean it and then bring it back all foamy. they put it back in, it goes fast. I use to get a head rush from it. then they do the periode then the msp and then of course flushs between all of this. it took about 2 hours total. they are about 5 nurses on hand who attend to me. they are nice but very professional. they keep a close eye on everyone. one day i wasted to puck and they gave me a shot to stop the heaving.
when I came in I could not hardly open my eyes...the lights were driving me crazy and I think i took a few peoples head off. I felt like crap. everything hurt and I was not amused. they put up with me. in 4 days I felt so much better. I had a fever for 3 mos when I came in, and could barely think. I wanted to puck, cry and not even get out of bed...
but they put up with me. after treatment I drive myself back to the treatment. most have family with them. I don't so....I deal with it. some days were hard. but getting here was the worst really. I can think now. so that helps a lot. I had been numb for so long that actually getting well was hard to deal with ...all of the emotions and thoughts. and feeling like I had been gone.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 11/22/2008 10:58 PM (GMT -6)   
no no house calls....lol..ha....they don't love me that much...hehehe
yes it is working. I am getting back to my old self....I want to get out and raise some hell...lol
I am a better mom....brought my 5 year old back out with me. and it is just the two of us. so.....I am able to handle her care and myself. and yes...she is well groomed...lol
I must admit...we are told not to have coffee...but honestly. I walked in with a huge cup. and they just look at me. they know my deal. I had a women once make a comment about it...a cancer women....I let it slide and said nothing.
I had just had a port put in the day before and I was in alot of pain...on pain killers....and they were sticking my big new swollen port. My whole right side was big and swolllen. and she is talking to me about coffee. But then as I was leaving someone else asked me how I was getting home....and I lifted my coffee to them....lol
I knew in 4 days that things were changing for me fast. that with a lot of praying...lol..
I had really no interest in trying anything else. and i only did this for my kids. for I did not care about me anymore.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 11/23/2008 7:11 AM (GMT -6)   
I understand not caring anymore! I'm so glad you have kids to keep you going...I find that the antibiotics make my mood pretty "flat". I cannot wait to get off them, but I don't know if I can. Everytime I do, I decline in short order. But my mood is better! I hate that.

I am glad you're on your road to recovery.

I saw you mentioned Germany in a prior post. Was that the photobionics route?

There are three bloggers who mentioned it and had some success...or seemed to anyways. The posts were a little old.

Sandy Travers
New Member


Date Joined Apr 2014
Total Posts : 1
   Posted 4/16/2014 11:07 AM (GMT -6)   
Hey everyone. I guess this blog is kind of out dated (like 6 years old) but I thought that I should share my story because I found that this talks about Envita, the group in Scottsdale that I used. I basically had lived with Lyme disease for several years before I found a doctor that could properly diagnose my symptoms. Envita is the only group that I came across that works with the autoimmune system and not just lyme disease. The thing everyone has to realize is that the immune system has to be helped in order to fight Lyme – and there are many other factors. After a long hard fight I am proud to say that I am symptom free and I’m back to my active self. God bless.

Garden Peace
Forum Moderator


Date Joined Sep 2012
Total Posts : 4191
   Posted 4/16/2014 11:20 AM (GMT -6)   
Welcome Sandy. I'm glad you're doing much better now.
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