Oh man, last week was the pits. I thought that I was dying. Was not easy to get my butt to the clinic and was much, much harder to get myself back to the hotel after treatment each day. I was crying my eyes out, really not my style....and was heaving and trying so hard not to puke...not lady like...lol. But the nurse gave me a shot in the butt for my acute nausea and so that stopped that.
One week I got so dizzy from being dehydrated, I was bumping into walls. But honestly I have not been able to walk a straight like since I got lyme...so this was nothing new.
But they gave me iv fluids and got me better. It is wonderful to have nurses watching over me. It is honestly a luxury. When I went on the abx treatment from the Dr. in Germany I did it all on my own. And that was not safe. I got much worse. And could not even get my Dr. on the phone, plus German was his first language.
And when I went to the LLMD women Dr. in FLL she would put me on huge doses of anx, like 1,200 of doxy and I started bleeding through my rectum like a facet. When I called her in fear, she had no time to even see me or talk to me on the phone.
Her nurse blandly said..well if you have blood in your stool....call 911.
Uh I only had blood pouring out of me like every 30 minutes. My other Intern wanted to kill me for seeing her. She was trying to talk me into a iv treatment that would run me 3-5,000 a week for a year and a half. There is no way in the world that I am going to continue treatment with a Dr. who told me that it was a good thing that I was rich.
And for my whole family to get it would have been 15,000 a week. A big con if you ask me!
so here I am now...round 15, with yet a new therapy and a new Dr. and with envita I am getting watched and get to meet alot of other people with the same illness. Misery does love company.
I love it more that they "understand" what is wrong with me. And that I do not have to "prove" that I am sick. And I do not have to" educate "everyone.
My therapy is 8-10 weeks here through my port. yes I will here for Thanks giving and will take come time off for x-mas.
Looking into getting an apartment here now. Because with two sick kids and homeschooling...well...I have my hands full.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.
"The eyes cannot see for for what the mind does not know."