Successful bartonella treatment

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ronaldj
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Date Joined Nov 2008
Total Posts : 9
   Posted 11/17/2008 8:22 AM (GMT -6)   
Has anyone had any success treating bart?? I have bart and I believe it is causing me some major problems. I bought Dr. Schallers bart book and figured out I have had several bart rashes over the years that come and go. I have been on zith for over 6 months and the bart symtpoms got better, but now I am rifing and the bart symptoms are back.

Schallers book says rifing doesn't work for bart, and I guess I believe it. His book doens't really offer any treatments that he considers successful which is really frustrating. The best treatment seems to be HH capsules, so I may try that.

phsinvent
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Date Joined Aug 2006
Total Posts : 1155
   Posted 11/17/2008 11:39 AM (GMT -6)   

I don't think zithromax will cut it when it comes to lyme and bartonella. I highly recommend Biaxin. IV zithromax is good but the oral zith will give you minimal results.

I recommend the following combo if you can tolerate it.

Biaxin, Bactrim, Doxycycline

or

Biaxin, Bactrim, Tetracycline

or

Roxithromycin, Bactrim, Tetracycline(my favorite)


ronaldj
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Date Joined Nov 2008
Total Posts : 9
   Posted 11/17/2008 12:28 PM (GMT -6)   
I had hoped not to ever be on antibiotics again!! But I guess if I have to, I will.

Thank you for your response on this.

Anyone know if HH capsules will get rid of bart and if so how long/how much???

ronaldj
New Member


Date Joined Nov 2008
Total Posts : 9
   Posted 11/17/2008 12:30 PM (GMT -6)   
psinvennt,

Do you take all three at one time?? I have never taken more than two at once. It would be a new experience for me!!!

phsinvent
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Date Joined Aug 2006
Total Posts : 1155
   Posted 11/17/2008 12:46 PM (GMT -6)   
I took them all at once. Roxithomycin and Tetracycline are rather easy on the liver. Biaxin and bactrim can cause some liver stress but only in rare cases. Just check your liver function while on treatment to know for sure.
 
HH capsules are rumored to work but i'm yet to hear great success stories. Some say they help but it may be too early to tell.

ronaldj
New Member


Date Joined Nov 2008
Total Posts : 9
   Posted 11/17/2008 1:04 PM (GMT -6)   
Thank you psinvent. My LLMD checks my liver enzymes regularly he is careful about this. I have a great doctor. He listens to me and is very open to new information/research that I bring to him. I looks like I will be back on antibiotics at least for a while to get rid of this nasty bart!!

Palmetto Lance
Regular Member


Date Joined Oct 2005
Total Posts : 466
   Posted 11/17/2008 1:56 PM (GMT -6)   
I have had success treating Bart using Levaquin and Zithromax. Some LLMD's don't like to combine these drugs, but my LLMD does. I haven't had a problem with this combo and have been taking it for 7 months now (pulsed schedule...I only take antibiotics 3 days a week for 2 weeks, then I take nothing for 3 weeks, then repeat).
 
-Lance
Dx History: Lyme, Bartonella, Babesiosis
Rx History: Doxycycline (3 months), Biaxin/Plaquenil (5 months), Levaquin (1 month), Mepron/Zithromax/Flagyl/Artemisinin (4 months), Doxycycline/Zithromax/Flagyl (2 months), Mepron/Zithromax/Artemisinin/Levaquin/Flagyl (4 months), Omnicef/Levaquin/Zithromax/Flagyl (current)


ronaldj
New Member


Date Joined Nov 2008
Total Posts : 9
   Posted 11/17/2008 2:00 PM (GMT -6)   
Lance,

Was your schedule always pulsed like this? Or did you start out using it everyday? I'm trying to learn as much as I can about this.

Palmetto Lance
Regular Member


Date Joined Oct 2005
Total Posts : 466
   Posted 11/17/2008 2:06 PM (GMT -6)   
I've been pulsing these two drugs the entire time I have taken them. My LLMD pulses all the drugs he prescribes. In addition, I take Omnicef and add Flagyl the last 2 days of my cycle. His theory is that the stopping and starting antibiotics will trigger the immune system enough times to create a permanent "surveillance" of the microbes.
Dx History: Lyme, Bartonella, Babesiosis
Rx History: Doxycycline (3 months), Biaxin/Plaquenil (5 months), Levaquin (1 month), Mepron/Zithromax/Flagyl/Artemisinin (4 months), Doxycycline/Zithromax/Flagyl (2 months), Mepron/Zithromax/Artemisinin/Levaquin/Flagyl (4 months), Omnicef/Levaquin/Zithromax/Flagyl (current)


Razzle
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Date Joined Aug 2007
Total Posts : 4396
   Posted 11/17/2008 3:44 PM (GMT -6)   
I've read that clove oil is supposed to kill Bart...
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G-J Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).


Konawind
Regular Member


Date Joined Jun 2008
Total Posts : 22
   Posted 11/17/2008 4:33 PM (GMT -6)   

Try Dr. Z's protocol...its a combo of things that includes the HH capsules---it worked wonders for my Bart....in fact I was off abx for almost 6 months and felt great while on Dr. Z's protocol...until I got a new tick bite a couple of weeks ago and had to go back on abx (deoxycycline)...bummer...but I am still taking Dr. Z's protocol along with the deoxy.

It truly works...at least it did for me.


1bitten2xshy
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Date Joined Jun 2007
Total Posts : 849
   Posted 11/17/2008 6:43 PM (GMT -6)   
My LLMD had me pulse Levaquin and Rifampin for 2 weeks on and 2 weeks off. Made a world of difference to me. Powerful combo and need to watch the liver closely!

twingirl
Regular Member


Date Joined Feb 2007
Total Posts : 323
   Posted 11/18/2008 8:37 AM (GMT -6)   
bitten

How exactly are these pulsed? Do you take them both for 2 weeks then nothing for 2 weeks???

Konawind

I have considered the HH and may try them, but others haven 't had much sucess with it.

LymeinMD
New Member


Date Joined Nov 2008
Total Posts : 19
   Posted 11/18/2008 11:39 AM (GMT -6)   
Am being treated for Bart right now--have been on Rifampin everday/Azythromicin every other day for 6 weeks and am improving--foot pain is resolving and new Bart rashes stopped spreading.

tickbattler
Regular Member


Date Joined Jul 2007
Total Posts : 327
   Posted 11/18/2008 8:05 PM (GMT -6)   
Dr. Burrescano recommends Levaquin for bart treatment. In a lecture I attended in Sept, he mentioned adding another drug with it, but I can't recall which class of drugs he said worked best with it. You can find his slides on lymepa.org. He mentions the bart treatment there.

tickbattler

vickilynn
New Member


Date Joined May 2013
Total Posts : 1
   Posted 5/1/2013 6:38 AM (GMT -6)   
Does anyone know why Burrascano says not to take Azithromycin with Levaquin?

Georgia Hunter
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Date Joined May 2012
Total Posts : 1854
   Posted 5/6/2013 5:13 AM (GMT -6)   
Azithromycin and Levaquin is a very slippery slope. Both have potential cardio toxic side effects and if you experience these effects, the results are not good. A small percentage of Caucasians have a high risk for these effects.

TheAnswersYouSeek
Veteran Member


Date Joined Jan 2013
Total Posts : 2543
   Posted 5/6/2013 8:23 AM (GMT -6)   
clove oil, an efflux pump inhibitor like berberine, sida acuta and cryptolepsis.

Bartonella is gram negative
www.medicalnewstoday.com/releases/259614.php
jac.oxfordjournals.org/content/59/6/1247.long
Current: No Dairy, Sugar, Wheat.. Olive leaf (20% Oleuoropein), NA-Cysteine, Triphalia, methylation pathway support, sodium butyrate, anantamul, Blis K12, VSL#3, PB8, Proteolytic enzymes, herbal antiviral/microbal protocol
My story www.healingwell.com/community/default.aspx?f=38&m=2644147

AnneRoto
Regular Member


Date Joined Jul 2007
Total Posts : 267
   Posted 5/14/2013 6:50 PM (GMT -6)   
ronaldj, what type of rashes did you have? I do not have the rash that looks like scratches. Mine looks more like poison ivy and is extemely itchy. My doc said it was Bart.

peggster
Regular Member


Date Joined Aug 2011
Total Posts : 73
   Posted 5/18/2013 8:14 AM (GMT -6)   
I haven't been tested for co's but suspect I have Bartonella.....burning feet, strange head feelings (besides my normal sinus, etc), inner tremors/twitches. I have no rash that I am aware of. Does bart always include a rash or is it like lyme where less than 50% have rash? I've seen the "stretch mark rashes", having 4 kids have stretchmarks but nothing different that I know....also spider veins, etc (I'm 54). Thanks for the topic!

AnneRoto
Regular Member


Date Joined Jul 2007
Total Posts : 267
   Posted 5/18/2013 8:19 AM (GMT -6)   
What do your rashes look like? Mine do not look like the cat scratches. They look more like tiny, raised, red bumps that are itchy.

toridemi
Regular Member


Date Joined Nov 2012
Total Posts : 107
   Posted 1/14/2014 5:36 PM (GMT -6)   
Does anybody know if Bartonella can cause little white bumps that you can feel more than see that are not itchy??
Thx !

vcast
Regular Member


Date Joined Apr 2013
Total Posts : 416
   Posted 1/14/2014 6:06 PM (GMT -6)   
Rifampin is great stuff for suppressing the Bart. I know its working because without it, I have severe mood/anger issues and I feel like a grumpy werewolf! hahaha

toridemi - I use to also get weird skin issues.... subsurface pimples that werent really pimples, but you could feel them, etc

toridemi
Regular Member


Date Joined Nov 2012
Total Posts : 107
   Posted 1/15/2014 7:50 AM (GMT -6)   
Llmd says not Bart but I will insist on trying treatment. Was geting better and then all of a sudden my legs again....Stinging, burning in knees and lower legs plus a tight sensation, odd little bruising and sometimes blotchy redness inside thigh to the knees. Any if this sound like Bart? How long have you been on rifampin and do you ever come off of it? Thx for quik reply!

toridemi
Regular Member


Date Joined Nov 2012
Total Posts : 107
   Posted 1/15/2014 7:53 AM (GMT -6)   
Oh and also was getting a pop sensation like a short circuit in my lower legs like shin areas and usually tender near the ankle bone on right leg which used to have a large bump in underneath.
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