New PCR tests available. 15 babesia species and 20 bartonella species.

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phsinvent
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Date Joined Aug 2006
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   Posted 11/18/2008 5:26 PM (GMT -6)   
Not sure if anyone has posted this before but this lab known as clongen has PCR genetic tests for 15 species of babesia and 20 species of bartonella that have been released recently. I know that many of you have become aggravated to say the least, with igenex and the 2-3 species specific tests. You might have to call them for more info. They also have a multitude of other tests available. This lab is probably one of the only in the U.S. dedicating their own resources to figure out the genetic make-up of the morgellons infection.
 

sosickoflyme
Regular Member


Date Joined Aug 2008
Total Posts : 31
   Posted 11/18/2008 5:31 PM (GMT -6)   
wow, great news!  Tres expensive though. sad
Dx Lyme Oct 2007....symptomatic for at least 3 years.  Oct - Dec 2007 Doxy 200 mg/day, Jan 2008 Ceftin 1000mg/day, Jan 2008 - 10 weeks IV Rocephin, April 2008 - August 2008 Ceftin 1000mg/day with Zithro 250mg/day,  changed LLMD's Oct 2007...currently dx with Bart and Lyme maybe Babs too...on Omniceff 600mg, Levaquin 500mg, Malrone - all every other day.
 
"Gees, you don't look sick."


phsinvent
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Date Joined Aug 2006
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   Posted 11/18/2008 5:57 PM (GMT -6)   
Many of you may just want to sit tight for the time being. I'm not exactly sure if the 15 species babesia pcr test is out right now, if not, should be anyday now. I also heard they are working on identifying the ever popular BLO, whatever it may end up being called. It might be best to keep an eye on their website for the next 4 weeks or give them a call.

tickbattler
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Date Joined Jul 2007
Total Posts : 327
   Posted 11/18/2008 7:55 PM (GMT -6)   
Dr. J in CT uses Clongen now for lyme western blots and mycoplasma tests (and possibly more that I'm not aware of). He mentioned that more bands often show up on Clongen tests than Igenex. That was true for us, as my 4 year old son had a negative Igenex and a positive Clognen western blot for lyme (the tests were done within a month of each other).

tickbattler

bcaring
Regular Member


Date Joined Feb 2006
Total Posts : 346
   Posted 11/18/2008 9:42 PM (GMT -6)   
phisinvent,

Do they take insurance or do you pay upfront and then submit to insurance. It would be great if they do take insurance. If you don't know, I could call them and then post what they have to say.

bcaring

phsinvent
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Date Joined Aug 2006
Total Posts : 1155
   Posted 11/19/2008 10:58 AM (GMT -6)   
You have to pay upfront and then submit the info to your insurance provider for reimbursement.

kendal122
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Date Joined May 2007
Total Posts : 1088
   Posted 11/19/2008 11:44 AM (GMT -6)   
Where are they located?

phsinvent
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Date Joined Aug 2006
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   Posted 11/19/2008 12:44 PM (GMT -6)   
Germantown, MD

astroman
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Date Joined Mar 2014
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   Posted 2/19/2015 12:30 PM (GMT -6)   
OLD POST FROM 2006

BUT - Does anyone have any updated info on this teat lab for their 20 Bart Species test?

http://www.clongen.com/molecular_diagnostics.php
Lyme symptoms late 1980's, Dx'ed 2013 by LLMD. Doxy, Flagil ABX. Felt better for a while.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 3356
   Posted 2/20/2015 11:19 AM (GMT -6)   
Anyone hear about this lab?
Lyme symptoms late 1980's, Dx'ed 2013 by LLMD. Doxy, Flagil ABX. Felt better for a while.

astroman
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Date Joined Mar 2014
Total Posts : 3356
   Posted 2/20/2015 11:24 AM (GMT -6)   
Sorry for the repeated question, But I figure someone out there has experience with this lab.

I understand that Bart lab tests are unreliable, but at least this one covers many strains, way more than igenics does. Thats why I'm wondering about it.

At the same time I get frustrated wasting money on these tests.
Lyme symptoms late 1980's, Dx'ed 2013 by LLMD. Doxy, Flagil ABX. Felt better for a while.

Fronton
Regular Member


Date Joined Sep 2014
Total Posts : 378
   Posted 2/20/2015 12:53 PM (GMT -6)   
I don't have experience with this lab, but thanks for bumping this thread. They appear to offer a ton of tests. I am inclined to do the 20 different bart strain test as they are only an hour drive from me.

SpeyFisher
Regular Member


Date Joined Oct 2014
Total Posts : 167
   Posted 2/20/2015 1:07 PM (GMT -6)   
outrageously overpriced!

astroman
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Date Joined Mar 2014
Total Posts : 3356
   Posted 2/20/2015 2:35 PM (GMT -6)   
Well the igenics co-infection is also over priced IMO at aprox $800, and only covers a few Bart species. Clongen's 20 species Bart test is priced similar.

All these tests are overpriced IMO!

astroman
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Date Joined Mar 2014
Total Posts : 3356
   Posted 2/20/2015 2:39 PM (GMT -6)   
Well, back in 2008 the 20 species bart test was $200. I e-mailed Cllongen to get an accurate price.

http://www.lymeneteurope.org/forum/viewtopic.php?f=6&t=2032
Lyme symptoms late 1980's, Dx'ed 2013 by LLMD. Doxy, Flagil ABX. Felt better for a while.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 3356
   Posted 2/20/2015 4:36 PM (GMT -6)   
As of 2015 their PCR 20 species Bartonella (dna) test is $210 bucks.

Simela1
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Date Joined Dec 2014
Total Posts : 1224
   Posted 2/20/2015 5:45 PM (GMT -6)   
Thanks, that's not bad for the 20 species. Can a dr send your blood to them or how does it work for those of us who far away from the lab?
Healed 95% after 1 yr of 3 abx cocktails for Lyme and Bartonella.
No treatment for the past 5 years
Sympoms returned. 1 mo of Propolis is bringing me up to 98% symptom free
I was sure I was going to die and I made my funeral arrangements.
Love God, trust Him, and He will heal you.
I felt I was slipping down fast, and He caught me by my hand.
"I can't do it... I must do it... I will do it

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 3356
   Posted 2/20/2015 11:29 PM (GMT -6)   
Most all these private labs operate the same way. They are kits, with specific directions for a blood draw technician to follow.

You need a Dr's order , then they send a kit to you or your Dr.

Your Dr or other blood draw place follows the kit instructions and YOU send back in provided packging/bag/box with payment info.
Lyme symptoms late 1980's, Dx'ed 2013 by LLMD. Doxy, Flagil ABX. Felt better for a while.
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