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georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 11/18/2008 5:36 PM (GMT -6)   
I've been really busy lately so I haven't been posting much. 
I've  been on IV rocephin and rifampin for 3 months now. I am feeling much better lately but I still have a long way to go. I will be on IV's for about 9 mos. as long as my insurance co. will continue to pay for it. 
How is everyone? 
 
HEY DIANE (ONMYWAY)!!!!!!!!!!! smilewinkgrin turn cool smhair

jginkc
Veteran Member


Date Joined Jan 2008
Total Posts : 692
   Posted 11/19/2008 7:58 AM (GMT -6)   
Hey - I am just finishing up 6 weeks of IV rocephin. It has been interesting.

First the bad, the fatigue has been incredible. I h.ad to take two weeks off from work I was so exhausted. Still only at about 30% of energy level. my LLMD says that is a big herx.

The good news? MY BRAIN IS BACK! I feel like me again - I know that sounds stupid, but its true. No more "two drink" brain fog. I feel like my old self mentally, which is a wonderful feeling. I've been reading like a fiend again.

Back to working 30 hours a week -sometimes it gets hard, but enjoying being out and about.

My LLMD says he wants me on IV until I have two months of no symptoms, then we will transition to orals. A lady who sees my doctor just got her PICC line pulled last week - she was sick for 5 years (misdiagnosed like most of us) and is now symptom free and feeling great. There is hope.
Month 18 of Lyme and Bartonella
On Zhang, doing much better, but not there yet!

90% functional, feel about 85% of my former self.


Onmyway
Regular Member


Date Joined Jan 2008
Total Posts : 316
   Posted 11/19/2008 8:54 AM (GMT -6)   

HEY GIRL!!!!

It was nice to see you yesterday!!!

I hope you have a good week!

Hugs,

Diane


Onmyway
 
Diagnosed with Lyme 11/06
Treated until 10/07. Saw another wonderful LLMD in NY and was diagnosed with Bartonella and Babesia as well as Lyme!!!!!!!
Went entire year not knowing I had two coinfections!!!!!! Always test for coninfections!!!!!!!
Onmyway to recovery!!!!! :)
5-29 Blood sugar drop to 33 for 3 days?????? Very Bizarre
Currently waiting for Tonsillectomy! LLMD and ENT believe they are clogged and backed up with Bacteria and fighting against immune system! Oh Boy!
6-25 had Tonsillectomy- Worse pain ever!!!!!


ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 11/19/2008 8:58 AM (GMT -6)   

jginkc, I am so glad to hear you are improving!  I am also glad your doctor will continue treatment until you have been symptom free for a couple of months.

Yes, there is hope!

 

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 11/19/2008 8:59 AM (GMT -6)   

georgiagirl, I am glad you are improving.

Keep on keeping on!

 

ktp812
Veteran Member


Date Joined Jul 2007
Total Posts : 715
   Posted 11/19/2008 9:25 AM (GMT -6)   

Hey georgiagirl- So glad to hear the Rocephin is making a difference. I am now waiting for my appt. to have another line put in. I saw the doctor last Friday and he said I am looking at a year on IV so they are going to do the chest port. I was on for 6 months and have totally relapsed. I have been on orals but they are doing nothing at all.

My question is if you are on anything else besides the Rocephin. My doctor is talking about pulsing Rocephin and Zithro since I did relapse. When I was on Rocephin before I was also taking Malarone, Rifampin and Plaquenil. The doctor told me at the appt. that once the Rocephin starts hitting the bugs they turn into cyst form so I need to have Zithro to break that up. Maybe when I was on it before they were all hiding out and that is why I felt so good. It is all so confusing. I just want to make sure I do it correctly this time.

I hope you keep feeling better and better!!

Kim


georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 11/19/2008 12:26 PM (GMT -6)   
jginkc, it's good to hear from you. I was wondering how you were doing. I know what you mean about the fatigue, it can be rough sometimes.
I'm so glad you got your brain back! The IV's are really helping me as well with the brain fog.
How long did the lady have her picc line in before she became symptom free?


Diane, I hope you have a good week to.

ticker, Thanks alot, you've always been there to encourage me. How are you doing?

Kim, I am also taking rifampin. I wish I could try zith. but i'm allergic to it. Good luck with your port. Hang in there, you've been through alot. I know your anxious to get started with your new plan. Take care.

jginkc
Veteran Member


Date Joined Jan 2008
Total Posts : 692
   Posted 11/19/2008 1:05 PM (GMT -6)   
She had to do a year of IV's - she was in really bad shape when she started, and like almost everyone, reported the terrible fatigue when she started rocephin.

I'm really tired today, but most of that is due that my 4 year old woke up at 3 a.m. with a nightmare and then I couldn't fall back asleep.

My mood is so much better lately - it is nice to feel like yourself.
Month 18 of Lyme and Bartonella
On Zhang, doing much better, but not there yet!

90% functional, feel about 85% of my former self.


georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 11/20/2008 5:45 PM (GMT -6)   
jginkc, my 3 year old son wakes me up sometimes also. It's really hard to get back to sleep sometimes. My husband snores like crazy to! I never feel well rested. I know you can totally relate. I haven't ever tried sleeping pills but i'm thinking about trying Lunesta.
I'm so glad your feeling better. Keep in touch ok?
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