Bart and bone pain

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seeingstars
Regular Member


Date Joined Apr 2008
Total Posts : 266
   Posted 11/20/2008 11:31 AM (GMT -6)   
Anyone with bart or other co-inf. that gives you horrible bone pain?

My spine in between my shoulders hurts often. I can even feel when the bugs rev up and

spread. Often just after this I get a taste of sweet alcohol or poison and a gross feeling in my back.

Anyone know a good bart drug that gets into bones? I am currently taking biaxin (just started a

week ago) and on doxy (8months so far) and rocephin (3 months). I have taken cipro to no avail and

same with zithromax. I can tell the biaxin is working at the base of my head but I'm not thinking so about

the bones. However, maybe it would take time to sink into them since I have only been taking biaxin

for 9 days.

I would have to say this co- inf. is so much worse than my lyme. My heart has been hurting burning non stop

since about 11 days ago. My family doc did that quick 15 sec test and it came back pretty normal. So I

see a cardio. in a month. This crap just doesn't want to give in. I thought for sure 3 month of cipro would

have hit it hard. NO, I think it barely touched it. This biaxin is the best drug i've been on yet for my head

pain.

bcaring
Regular Member


Date Joined Feb 2006
Total Posts : 346
   Posted 11/20/2008 3:18 PM (GMT -6)   
I had terrible bone pain in my lower legs and it felt like it was in my back but I believe it was more ligaments, muscles, and nerves. I feel sure that my bones in my lower leg were infected. I have been in very aggressive treatment for over a year for nuero lyme and babesia (I also tested high positive for bartonella in 2003 and had the classic bartonella rashes, burning feet, etc. I now test negative for bart but I wonder about this discussion about bartonella like organisma or BLOs.

Three months ago my LLMD added IV Clindimycin to the mix and my bone pain is gone. We decided to do this because the babesia seemed to be resistant to the IV Zithro and Mepron and Clindimycin is used as an alternatiave treatment. (Coincidentally it is also used to treat bone and tissue infections.)

The addition of this drug has resulted in the disappearance of the bone pain which is such a huge relief. I feel for you - I used to lay there and moan, especially at night when all things seem worse. Even the tissue around my ankles was swollen and hurt and it was not edema.

It is possible that you literally have an infection of the bone and tissue, either with the lyme or some other opportunistic organism.

I am sure you brought this up to your LLMD? Have other possible causes been ruled out? It is hard because it takes a while for these things to resolve during treatment.

I did a stress echo and they found nothing wrong with my heart. The taste in your mouth - my first thought would be post nasal drip, a sinus infection, or one of the drugs you are on may be causing a odd taste.

Ask someone on the site about amonia build up in the system due to die off of toxins. I don't know much about it but I think it can happen.

I hope you get some relief soon. Neurontin 600mg at night helped me a lot with the pain and getting off my feet for the night helped because it was always a little better in the morning. However, the first 4-5 months of treatment, not much of anything helped. Now it is gone.

Take care.
bcaring

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/20/2008 3:48 PM (GMT -6)   

My pains presented as what feels like deep bone or toothache like pains that jump all over the place in my bones and joints. My pains last a second to hours then moves on and hits random parts of my body. At first I thought for sure it was bone cancer and had a full body bone scan even.

 

The two coi I tested for were neg. I am getting tested for another.


----------------------------------------------------------------------
33 yr old female
 GERD dx March 2007
Migraines with Aura
IBS
SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
LYME-TESTED POS BAND 31 AND IND ON 34 41 IGM THROUGH IG IN PALO ALTO, GIVEN CLINCAL DX ON 11/17-ON DOXY, ZITHRO, FLAGYL
 
 
 
 
 
 


AnneRoto
Regular Member


Date Joined Jul 2007
Total Posts : 267
   Posted 11/20/2008 5:50 PM (GMT -6)   

I have pain in my knees that comes and goes.  (mostly comes).  It is worse when I go up and down stairs or have to stoop down to get something, or try to get out of the car.  I have exercised all my life so this is not due to being out of shape.  If I don't move,and just sit still then there isn't any pain.  I get a rash on my neck that resembles poison ivy.  This rash seems to appear on a cyclical basis about every 3-4 weeks, then that goes away.  The doc thinks this a a bart rash ( an unusual one, but he thinks it is still bart).  Also some  pretty heavy night sweats (not every night, a few times a week). 

My doc thinks I have Lyme and Bart.  I have not tested positive for either but was bitten 2 years ago in a highly endemic area of RI.  I am on Azith (500mg 1x day) and Omnicef 250 mg (2x day). 

My stomach pains have been resolved ( awful bloating, gas, gurgling, etc)

I have been treated since Sept. 08

Anyone else having these symptoms.  Sometimes I think that I really don't have either bart or lyme and am on heavy duty abx for nothing. 

 


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 11/22/2008 10:04 PM (GMT -6)   
Anne I think that if you had lyme you would feel a lot worse. But who knows. You can find out fast if your Dr. sends your blood to the right lab for starters..try IGENEX
You will get your answers. Only 50% of the ticks are infected. And I wouldn't wish this disease on my worst enemy.
I too have bad knees but that is because I use to run 7 miles a day...lol...old age now. Your rash...don't know....
I have lyme and bart and never got a rash of any sort.
The two disease's sort of hit you like a train. You lose your life as you know it. You are not able to function. And even going to the grocery store or out to lunch just becomes something that you do not wish to subject yourself to.
IGENEX and see.
Good luck!
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."

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