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seeingstars
Regular Member


Date Joined Apr 2008
Total Posts : 266
   Posted 11/20/2008 1:12 PM (GMT -6)   
My lyme test came back 41+ and 39ind about 1 1/2 years ago. my doc has been treating as if i have lyme but I would still get sicker in some respects but better in others. Now I'm pretty sure what's kicking my but is bart. but don't have a + test. my doc sent me to Dr. B in kansas city and he tested me for the top two bart strands and both came back neg for antibodies.

I'm not sold on this. He also checked my cd57 using Quest (if this makes a difference) and it came back a whopping 13.

I DON'T think i have every failed a test so bad in my life.

Anyway, with this extremely low cd57 and no +bart test I worry that the doctors will blame all on lyme. This bart (I believe) is in my spine bone and messing with my white blood cells among other things. I am under the understanding your bone marrow makes white blood cells. Doesn't cd57 measure something with your white blood cells. Couldn't my number be so low because of the bart messing with me not just the lyme?

oh yeah, I just wanted to add that Dr. B. sent me a letter stating that because the bart tests and bab test came back normal and I had a low cd57 My illness all came down to an active lyme infection. I thought this man was supposed to be pretty smart but this just made me think otherwise. He knew my background of treatment. 1 1/2 years and not better. worse for some symptoms. I think this was very irresponsible of him to state it all came down to lyme. My other doc that sent me to him did say he did not agree that that is my only problem but he's not into testing for things. He just treats by trial and error.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 11/20/2008 6:03 PM (GMT -6)   
There are a lot of different strains of Bart, so to only test for 2 and then rule out Bart based on negative results seems irresponsible. That said, most of the experts seem to think the CD57 only is suppressed in lyme, not the coinfections (anybody know of any research supporting this assertion?).

VEGF is a test that is often elevated in those with Bart., so that may be another test to try to get done.
(see http://lymepa.org/html/dr__j__burrascano_september_20_7.html ~ click through the slides to the one titled "Coinfections - sorting it all out")

I hope this helps...take care,
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G-J Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 11/20/2008 6:20 PM (GMT -6)   
My cd57 was "3"... can't remember which lab... but, a 3?????? a lousy 3??????
We'll get through today - Jennifer
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, 08/25/08 - 10 weeks of IV Rocephin, my first visit to a Pain Mgmt. dr. - she was non-judgemental and will not prescribe me any "opiates" which in the end, is probably a good thing.  Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Rozerem 8mg, Darvocet, Acidophilus, Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg,
Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w 
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs
 

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