Does a bullseye rash always mean lyme disease?

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2 tired for 30
Regular Member


Date Joined Nov 2008
Total Posts : 34
   Posted 11/20/2008 8:58 PM (GMT -6)   
I'm sure this is a very common question. I've been feeling awful for quite some time. A co-worker said it sounds like lyme disease and asked me if I've ever had a bullseye rash. I had one over 2 years ago and didn't really think anything of it, but I took a picture. It's definitely a bullseye. I've been to the dr.'s several times for various issues, now all symptoms do seem to point to lyme disease. My lymphnodes have been swollen for more than 2 months. Is this common with later stages of lyme disease? I have an appointment on Tuesday and will be bringing my picture. Could the rash be anything other than Lyme disease? This would somewhat be a relief, 'cause I had been thinking Lymphoma.
Thanks

kitty9309
Regular Member


Date Joined Oct 2008
Total Posts : 163
   Posted 11/22/2008 5:38 PM (GMT -6)   
Yes, it is diagnostic. I had one 14 years ago and tested negative a few years later, so they said I didn't have Lyme.
I do.
Great that you have a picture.
Who is your appointment with? What type of doctor?

Orzelro
New Member


Date Joined Nov 2008
Total Posts : 3
   Posted 11/22/2008 7:41 PM (GMT -6)   
Yes, it is diagnostic. You are blessed to have it . I never did but I do have Lyme. After 4 years of antibiotics and getting worse with each dose I finally realized what was happening (as well as my doctor) and stopped taking them. At that point I was in a wheelchair , 50% loss of vision, weighed 83lbs., memory problems, depressed and anxious, totally bedridden for 2 years and most of the time for another 2 years, neuropathies ALL over my body( teeth, face chest abdomen, vagina, arms, legs, feet hands ). Sooooo, thank God someone told me about www.royalrife.com and Istarted using that with Mepron a antiprotazoan drug . The Lord delivered me from the wheelchair Dec. 24, 2007 neropathies are gone I weigh 117lbs no more symptoms except during stress I get mild symptoms. Thank God I am free. I have been doing this treatment for 2 years now as well as bioidentical hormones, growth hormone, detoxing always, healthy eating(that is something I have done most of my life. So when you have chronic Lyme and you start taking antibiotics many people get worse. Not everyone does but I want you to be aware of that
Please look up that webb site and buy and READ the book by Bryan Rosner , When Antibiotics Fail .... Lyme Disease and Rife Machines . www. lymebook/resources.com
I hope I have helped someone .

2 tired for 30
Regular Member


Date Joined Nov 2008
Total Posts : 34
   Posted 11/23/2008 8:02 AM (GMT -6)   
Thank you kitty 9309 and Orzelro for your posts. I have an appointment with my family Dr on Tuesday I will try to get an appointment with the infectious disease specialist in my area. I don't know if that wil help. After reading everything I've read over the last few days I know that I am fortunate to have had the bulls eye rash, otherwise I would still be thinking Lymphoma or? My health has deteriorated quickly and I honestly was beginning to think I would die trying to figure out what's going on with me. I am scared that I won't recieve the treatment I need because Dr's in Canada don't seem to be familiar with Lyme. This message board is a blessing to people who have Lyme disease. Thanks for your help!

Gretchen P
Veteran Member


Date Joined Sep 2005
Total Posts : 1784
   Posted 11/23/2008 9:34 PM (GMT -6)   
Yes, yes and yes

I'm gonna get that Lyme!!!!!!!!!!!
~~~~~~~~~~~~~~~~~~~~
 
I have lyme and I've got the papers to prove it!! Take that Wormser!
 
Wormser, who is that????? OHHHHHHH that's right he USED to be on the IDSA panel!!!


nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 11/23/2008 10:01 PM (GMT -6)   
Remembering my bull's eye rash is what saved my life.

kitty9309
Regular Member


Date Joined Oct 2008
Total Posts : 163
   Posted 11/23/2008 10:03 PM (GMT -6)   
Make sure no one prescribes you steroids for any reason.
Steroids can make Lyme much more difficult to treat.
I was given steroids for a mis-diagnosis before we knew it was Lyme and I have become sicker.

JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 11/24/2008 5:54 AM (GMT -6)   
I flushed in rashes and a small circular rash one... and had a backwards "J" rash that ran through a lypoma scar on my back. I got pics. of the circle and the "J". I had flushed in rashes usually from the abdomen up to my face for about 1-2 years before I got sick. I'd go to work and then the rash would appear, I'd go to the CIGNA clinic and get a steroid shot and then leave. It was kind of humorous, because it kept happening. I have copies of my CIGNA records indicating a circular rash that they called "ringworm" and all over rashes that they called "contact dermatitis".

I think I have carried Lyme around for a long time and it finally started causing symptoms, slowly (so I never recognized what was happening) until that day I woke up and was almost immobile from depression and had a right swollen knee.... and then the LD journey through he11 began. I'll let you all know when it ends!!!!!!!!!!!!!!!!!!
We'll get through today - Jennifer
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, 08/25/08 - 10 weeks of IV Rocephin, my first visit to a Pain Mgmt. dr. - she was non-judgemental and will not prescribe me any "opiates" which in the end, is probably a good thing.  Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Rozerem 8mg, Darvocet, Acidophilus, Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg,
Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w 
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs
 


KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 11/29/2008 6:13 AM (GMT -6)   
2 tired, Don't be surprised if the doctor blows off LD even with your picture of your bull's eye rash.  Most docs won't even consider LD even with a positive blood test.  They'll tell you that it is a false positive and that your bull's eye rash is a spider bite or something else rediculious!  If you don't have a LLMD already find one ASAP!  Best of Luck, KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 


2 tired for 30
Regular Member


Date Joined Nov 2008
Total Posts : 34
   Posted 11/29/2008 9:15 AM (GMT -6)   
KO-LD, that is exactly what happend! But, I haven't gotten the test back yet. I contacted Canlyme and the've given me the name and # of a LLMD in Canada. I will probably have to bypass my GP to get a referral 'cause he said that Lyme disease is a US disease and it's definitly not found in this part of the country. I explained that I got the rash when I lived in BC. He kinda laughed and continued to check his e-mail while I'm in the office.I told him I've lost 11lbs in 2 months and tried to show him my list of symptoms that I got from canlyme's web site. He said the weight loss is not signifacant (I'm 4ft 10in tall, of course it is!) He wouldn't even look at my list of symptoms. He then told me to leave 'cause he had other patients. He gave me the same set of blood work that he did 2 months ago. I left sobbing. I couldn't believe that he totally dismissed me considering I've been having cognitive symptoms, shouldn't that be taken seriously? I've made several phone calls. Everyone is telling me that the rash is dignostic.
I was so excited when I finally figured out what's been going on with me. I was beginning to think I would die waiting for a diagnosis. I was really naive to beleive this was going to be simple. I thought with my picture and symptoms I would get help and eventually get better. Not so simple. I can't believe how difficult it is to get treatment for Lyme! I've done allot of research in the last few weeks and this seems to be the way it is for everyone. I'm so gald there are message boards like this one. You guys are very supportive. Thank you.

KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 11/29/2008 2:00 PM (GMT -6)   
Hi 2 Tired,
I've heard that Canada is even worse than the US (hard to believe)!  It seems alot of Canadians have to come to the US to be treated, and even then it's hard to find a LLMD!  Do whatever you have to do.  If you haven't read Cure Unknown, by Pam Weintraub I suggest you do.  It reads like science fiction, but it's not.  Take Care, KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 


Hope119
New Member


Date Joined Jun 2010
Total Posts : 2
   Posted 6/8/2010 11:42 PM (GMT -6)   
I have the same question as stated in the title of this discussion.
Here is our story:
We live in the border of NY and CT - the two states where lyme ticks are most common, afaik.
The first time my son (10 months at that time) got a bulls-eye rash was in August last year. First 4 photos in this album. It was Sunday and on Monday the next day we took him to pediatrician. While the rash itself did not look like lyme symptom to her, the photos of it from the day before (link above) did. That day we started him on Amoxicillin (we decided to do it for 3.5 weeks). No tests were done before or after.

This past Sunday he got similar rash again. Unfortunately, I only took a couple of pictures with my cell and there is no way to get them copied right now, so there are only two random cuts from 1)a video made more than a day before the spot turned into the target-looking and 2) a picture from couple hours after it was looking as target.

Both times, now and in August, the spot was as bull's-eye only for about an hour or two. Both times it then turned into just pink spot and gradually decreased in size (this time, only about 2.5 days later the spot is still there; the first time at 4 weeks checkup there was hardly anything to detect). Both times I did not see a tick (I know, it does not mean that it was not there before, although the places are pretty visible both times). Both times no other "bright" symptoms. Well, I don't remember about back in August, but right now he has runny/stuffed nose and maybe on average is a bit more cranky than usual, although not very noticeable. No fever both times. But he definitely was more cranky while on antibiotics and it did upset his stomach to some extent (yes, we did give him the probiotic).

This time we did not take him to any doctors (yet?). The pediatrician will have to be a different one due to change in insurance. I would be glad to hear any advice on what we should do. Is there chance that it is not lyme? I read on different websites that the bulls-eye is increasing in size (and stays there longer, as I understand), plus there are often other symptoms like fever, chills, headache, fatigue - all of that I have not seen in my son.

Thanks for any advice!

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4117
   Posted 6/9/2010 10:33 AM (GMT -6)   
Hope119,

I would encourage you to find an LLMD to take your son to for proper diagnosis. Be sure to bring those pictures with you.

Not everyone gets the other symptoms...I never got the bull's eye rash or any of the other symptoms except wandering joint pain and fatigue at the onset of my Lyme.

Take care,
-Razzle
Chronic Lyme Disease, Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; TPN via PICC (plan to start weaning off again soon).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver (topically & nasally), probiotics, digestive enzymes, Milk Thistle, Magnesium, homeopathy.


allieann
Regular Member


Date Joined May 2010
Total Posts : 115
   Posted 6/9/2010 11:58 AM (GMT -6)   
Wow, sure looks like lyme disease rash to me. I have had 2 sons with the disease and if I had it to do all over again and could afford one I would go right to a coil/rife machine to treat them. Its not something to fool around with. One son did very well with a good brand of colloidal silver but even that does not totally get rid of lyme.

Best of luck to your little one!

daisyrlb
Regular Member


Date Joined Jan 2010
Total Posts : 277
   Posted 6/9/2010 8:01 PM (GMT -6)   
2 tired for 30, Short answer–Yes. So sorry for your suffering.

As prevalent as Lyme disease is, still most doctors are just not familiar with it. They do not have the knowledge or experience to treat a disease that has the potential for such serious health issues.

I found the tick on me, had text-book-perfect symptoms. It wasn't until the bulls-eye-rash developed (which freaked my husband and me out) that I went to the doctor and that was after my husband went online to check out the strange rash. He found it, "Lyme Disease". I brought that up to the doctor and he said our state doesn't have Lyme Disease, but he did give me ten days of doxy "in case".

about the fifth day I felt deathly ill and went to the ER. The ER doctor told me to be checked for MS and Lupus (I did not follow through). Hindsight is 20/20 and obviously I was having a herx.

The rash went away but a few months later it came back. This time I went to a different doctor and he sent me to the Infectious Disease Specialist who was quite rude, said that he'd prove to me I didn't have Lyme Disease, had another Elisa test. Results--negative.

Needless to say, I wasn't treated until almost 1 1/2 years after the tick bite (beginning of 2005). Since then I've been treated twice with abx by two LLMDs and I was very sick herxing most of the time. Recently I relapsed, and this time decided not to go the abx route. I chose Dr. J's (KS) protocol and am having good results...7 years after that tick bite.

I encourage you to see a Lyme Literate Doctor as soon as possible.

You are in my prayers for direction and ultimately total healing.

Hope119
New Member


Date Joined Jun 2010
Total Posts : 2
   Posted 6/9/2010 9:04 PM (GMT -6)   
Razzle, allieann, thanks for your answers! I am searching for LLMD. The insurance certainly did not have one on their list.

daisyrlb, the initial post by 2 tired for 30 was posted on 11/20/2008. Their situation might have changed since then.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4117
   Posted 6/10/2010 3:02 AM (GMT -6)   
Hope119,

Yes, that is quite common for LLMD's to either not be on your insurance or to not take any insurance at all. This is because of a difference of opinion between the Infectious Diseases Society (IDSA)/ Centers for Disease Control (CDC) and those who really research and understand the nature of Lyme/coinfections (LLMD's, such as International Lyme & Associated Diseases Society (ILADS) member physicians).

If you make a new post requesting LLMD's near where you live, someone will likely reply to help you find what you need.

I hope this helps - take care,
-Razzle
Chronic Lyme Disease, Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; TPN via PICC (plan to start weaning off again soon).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver (topically & nasally), probiotics, digestive enzymes, Milk Thistle, Magnesium, homeopathy.


daisyrlb
Regular Member


Date Joined Jan 2010
Total Posts : 277
   Posted 6/10/2010 5:38 AM (GMT -6)   
Thanks Hope, I'll pay more attention to dates from here on out. I learn something knew everyday. tongue

stanthony
New Member


Date Joined Oct 2012
Total Posts : 3
   Posted 10/6/2012 2:49 PM (GMT -6)   
Hope119, was your baby ever diagnosed with lyme the second time? How was he treated? How is he doing now? I have a 16 month old who was just diagnosed with lyme and just finished a 3 week dose of amoxicillin. I am wondering if that is enough and wondering about co-infections and what to do at this point? Thank you.

stanthony
New Member


Date Joined Oct 2012
Total Posts : 3
   Posted 10/7/2012 6:59 AM (GMT -6)   
Hope119 said...
I have the same question as stated in the title of this discussion.
Here is our story:
We live in the border of NY and CT - the two states where lyme ticks are most common, afaik.
The first time my son (10 months at that time) got a bulls-eye rash was in August last year. First 4 photos in this album. It was Sunday and on Monday the next day we took him to pediatrician. While the rash itself did not look like lyme symptom to her, the photos of it from the day before (link above) did. That day we started him on Amoxicillin (we decided to do it for 3.5 weeks). No tests were done before or after.

This past Sunday he got similar rash again. Unfortunately, I only took a couple of pictures with my cell and there is no way to get them copied right now, so there are only two random cuts from 1)a video made more than a day before the spot turned into the target-looking and 2) a picture from couple hours after it was looking as target.

Both times, now and in August, the spot was as bull's-eye only for about an hour or two. Both times it then turned into just pink spot and gradually decreased in size (this time, only about 2.5 days later the spot is still there; the first time at 4 weeks checkup there was hardly anything to detect). Both times I did not see a tick (I know, it does not mean that it was not there before, although the places are pretty visible both times). Both times no other "bright" symptoms. Well, I don't remember about back in August, but right now he has runny/stuffed nose and maybe on average is a bit more cranky than usual, although not very noticeable. No fever both times. But he definitely was more cranky while on antibiotics and it did upset his stomach to some extent (yes, we did give him the probiotic).

This time we did not take him to any doctors (yet?). The pediatrician will have to be a different one due to change in insurance. I would be glad to hear any advice on what we should do. Is there chance that it is not lyme? I read on different websites that the bulls-eye is increasing in size (and stays there longer, as I understand), plus there are often other symptoms like fever, chills, headache, fatigue - all of that I have not seen in my son.

Thanks for any advice!

Maine76
Veteran Member


Date Joined Jan 2014
Total Posts : 931
   Posted 3/14/2014 10:55 PM (GMT -6)   
Yes!
Excuse typos and or spelling and grammatical errors. I try to proofread, it's hard right now. Believed to be infected at least 28 yrs, dx 2012. Kiddos with congenital lyme. I am a nurse but a sick stay at home mom currently.
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