6th week of treatment in Scottsdale Az. ......not so bad really

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Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 11/20/2008 8:13 PM (GMT -6)   
This week is not so bad. I am just taking it easy now, yet I am productive and do not have any of my lyme symptoms. And considering that it is during my period this is wonderful. Women with lyme understand this. This is usually the worst time for us.
I have been getting these additional treatments now 2-3 times a week on all of my lymp nods. They rub freezing jelly on me and use an electrical current machine on my upper chest, then upper ribs, and the back of the knees. I call it the human drano. My only complaint is that the jelly is freezing along with the room. I have to find something to complain about...lol
I got to meet with the Dr. Korn yesterday. He was very nice and like most Dr.s he spoke over my head most of the time. I mean before lyme my ability to talk and listen were much better. Now I try not to yawn when listening to a Dr....lol But with him I wished I had taken notes. It was nice to have a Dr. who has also battled lyme and who was so very aware of all of the dirty tricks that lyme plays.
He is now changing my IV treatment. This week and all the weeks before it had only taken about 2 hours to do my whole IV treatment. Next week it is going to take 5-6 hours. So next week I will be doing the blood treatment, then the MSP, called silver, oh wait, perixode before that, and then abx. And there is something else I am leaving out.....well I will have plenty of time to remember next week. While I sit there for 6 hours...lol But the addition of actual antibiotics is the new thing for next week.
Me sitting still for 5 hours...this will be amazing in of itself...I am going to buy some books. Since it takes such a long time to read a page...lol....I will take up Italian...:>)
I have been warned that I am not going to feel so hot. And that I will herx again. Yippie. Whatever, just kill the bacteria all ready.
I screwed up, I took one week off to go home and show people that I was normal...and so technically this is my 5th week of IV treatment. But whatever. The lyme mind. Or lack of.
The new drug that they are all talking about here attacks the spirochetts outerwall and then kills it.
I am on so many vitamins and supplements now and it is a drag. Powders and so many pills twice a day. I think that I wrote all of them out before when a women asked me. But I did not post it...sorry. I will re-do it all if someone reminds me.
The diet is so strict. And I must be honest, I am not going to give up my coffee. When I leave the clinic I smell and taste, like picked corn. sexy I know. And on my drive home I get so excited to think about being bad and getting my coffee. Whatever....I am only going to get three days of treatment because of thanksgiving. But I am not going home and just staying here of course. I hate turkey anyways...:>)

nono nono
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 11/20/2008 9:14 PM (GMT -6)   
hey keephope, they work with you at the clinic. there are a lot of people there that have gone broke being sick. they also work with your insurance comp. a lot of stuff is covered. call and ask vanessa at the clinic. some people come and go.
I have never met a group of nicer people. And it is all very clean and professional.
They have a women in the office that only works on claims. So....Some people go week to week. There is not one treatment that is for everyone. So call and talk to them and tell them your special needs and concerns. Everyone is different. And they can be much more helpful to you than I can. I find them to be very helpful. it is not at all like dealing with a hospital and getting tossed out on your butt for not being insured or rich.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 11/20/2008 9:34 PM (GMT -6)   
everything is catered to each person. your blood work and symptoms are not the same as mine..so your treatment would be specific for your needs.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


snake1979
Regular Member


Date Joined Apr 2008
Total Posts : 282
   Posted 11/20/2008 11:04 PM (GMT -6)   
How are they treating the Bartonella?  With IV's or with just pills?  Cause I know that Dr F has a protocol over there and just wondering if you are using it.  Thanks and glad you are feeling better.

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 11/20/2008 11:13 PM (GMT -6)   
I don't know how they are treating Bartonella. I don't have anything but Lyme. And everyone here as a port. The IV's hurt too much. And the poor arms suffer. I only did IV in my arms for one week. And that was too painful. So they port makes it so much easier for us.
I don't know a Dr. F.
I see Dr. Korn for Lyme. We got lyme again this summer in Texas. I don't know a lot about the co -infections for I have not read about them all. I did have a lot more blood work done again yet with another lab and I get those results tomorrow morning...so.yikes....
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 11/21/2008 8:39 PM (GMT -6)   
Hi Martha,

So glad to hear you are beating this.

I think Scottsdale is a great place to heal. My husband I never felt better than when were there one February, breathing the dry arid air!

I just read something interesting concerning Alzheimer's -- you had mentioned a connection between Lyme and folks with it.

They now have found mercury in the brains of folks with Alzheimers. . . Just another piece of the puzzle.

We need a cure not only for Lyme but for Alzhieimer's because it's also getting more and more prevalent.

Take care! Your five year old is also in my thoughts!

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 11/21/2008 8:48 PM (GMT -6)   
Snake,
Darn it I spoke to soon, I found out today that I have a co-infection as well. Bartonella. I don't know anything about that one. It did not show up in my blood test. But there is a lab here in Scottsdale and they took Microscophic photos of my blood and there is was. Sitting next to my red blood cells.
I wondered why the Dr. wanted to see me again today. I found it odd that everyone else up in the NE had co-infections and I had only lyme. Well actually I felt really lucky.
Oh well.....
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 11/21/2008 8:51 PM (GMT -6)   
snake now that I finally found out about this other infection I will have to find out what is being done for that one. I must admit, I am feeling a bit overwelmed with all of this info. And having to get the MRI's for my 5 year old and now trying to get her well. But remind me....god never gives us more than we can handle....right??????
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 11/21/2008 9:11 PM (GMT -6)   
Hey Hoping,
In the' Cure Unknown' there is a study that Pamela mentions, that was hugely contested by the new england journal of medicine, that involved biopsies of brains of people who had died of alzheimiers. And from their frozen brain tissue they were able to grow the lyme sprirochettes from all of them. That test would be easy to re do since they seemed to object to that study. And they say that they have no idea of where alzheimers comes from...how about bacteria that invades the brian, just a wild guess.
I am most interested in prevention at this point. How to keep us from getting re infected over and over. I get bugs on me all the time. I can't keep my kids out of yards for the rest of their life's. Or freak out when they pet a dog. Or better yet. What am supposed to do with my other 4 dogs if in fact they all got lyme from Toto. My dog who just passed having gone lame with this disease. I am going to find out next week. If in fact Toto gave it to my other dogs. Then what do I do? I have two new make puppies that did not go to the vineyard. Must think positive, but darn. Really, where does all of this end?
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 11/21/2008 9:34 PM (GMT -6)   
oops...abby can you take out the dr.s name for me???
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."

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