Chronic lyme and pregnancy

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lynniecat
Regular Member


Date Joined Nov 2008
Total Posts : 51
   Posted 11/20/2008 8:37 PM (GMT -6)   
Anyone been pregnant with chronic lyme? If so, how did it affect the pregnancy and how did the pregnancy affect your symptoms???

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 11/20/2008 8:52 PM (GMT -6)   
lynniecat, are you pregnant? if so...did you plan this? How far along and are you getting treated for your lyme now?
I got lyme at the beginning of one summer. I then got pregnant. I at one point had a normal baby and a heart beat. Then I lost the baby. I had no idea why and had no idea that I had lyme. I then got pregant again right afterwards and I have lilly now. We all then got lyme again when she was 11 mos. then I started to figure all of it out.
It can be passed through the placenta. And also through breast feeding. I had a Dr. tell me yesterday some very long explaination of what happens to the blood that makes a women miss carry.
There are other women on this site that have had babies while dealing with their cronic lyme. I wish I could think of her name now. She felt better during her pregnancy only to have all of her symptoms return after the baby was born. So she is having a really hard time now with her health.
Being pregnant is hard for women and having a sick child is even harder. If you are pregnant you really need to get with a LLMD who knows what he is doing. I am sure that the forum leader knows of someone. Gosh, you could not have brought up a more serious subject. I wish you the best. This is really a serious issue that you inquired about.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Jeminij
Veteran Member


Date Joined Dec 2005
Total Posts : 1335
   Posted 11/21/2008 8:37 AM (GMT -6)   
Yes. I have chronic lyme and had a baby 8 months ago. I had just stopped treatment after a year from a relapse of lyme (diagnosed in 1998 with late stage CNS lyme) when 3 weeks later I found out I was 6 weeks pregnant. I did have a horrible sick pregnancy. Hyperemisis (morning sickness noon and night). In and out of the hospital for dehydration. I am not sure how much my lyme played in my pregnancy as I was too sick with the pregnancy to know lyme still existed, but I am sure it didn't help.

I was on amoxicillin throughout and during breastfeeding. I saw a high risk doctor as well as my ob and my lyme specialist and all 3 assured me that I would not pass lyme onto the baby during pregnancy or while breastfeeding (I only did 3 months). I know it is possible, but they told me it was almost next to impossible. Well, I had a very healthy baby girl and she is amazing. I did have her tested at birth and again 3 months later and she is perfectly fine and probably the best baby on the planet. Thankfully, she sleeps through the night and always has so I was never really sleep deprived too much.

Now, 8 months later my lyme symptoms are coming back. I have to say that while breastfeeding and after the birth, I felt amazing. I expected to relapse afterwards, but just the opposite. I credit to the lack of hormones you have after birth and while breastfeeding. I wish I had known this then and I would have continued for much longer. But, once my hormone levels returned to normal, my symptoms started to return and now I am having some not so good days. Overall, I am not too bad, some days I am and need help with the baby, but other days, like today, I am ok. I try to pace myself (which isn't easy) and get my sleep, but I have also heard it takes up to a year to recover from giving birth. My doctor told me it would take at least 2 years as I was so sick and my body went through a lot.

So I don't know what your plans are for having a baby. I wouldn't let lyme keep you from starting a family as it was the best thing I ever did, but I do wish that I was 100% all the time as it isn't easy some days to raise a baby let alone do it while not feeling up to par. But I also know with chronic lyme, it may just be something I have to deal with off and on throughout my life so I can't let it keep me from having children or having a life.

Sulma
Regular Member


Date Joined Apr 2008
Total Posts : 366
   Posted 11/21/2008 9:50 AM (GMT -6)   
Jeminij said...
Yes. I have chronic lyme and had a baby 8 months ago. I had just stopped treatment after a year from a relapse of lyme (diagnosed in 1998 with late stage CNS lyme) when 3 weeks later I found out I was 6 weeks pregnant. I did have a horrible sick pregnancy. Hyperemisis (morning sickness noon and night). In and out of the hospital for dehydration. I am not sure how much my lyme played in my pregnancy as I was too sick with the pregnancy to know lyme still existed, but I am sure it didn't help.

I was on amoxicillin throughout and during breastfeeding. I saw a high risk doctor as well as my ob and my lyme specialist and all 3 assured me that I would not pass lyme onto the baby during pregnancy or while breastfeeding (I only did 3 months). I know it is possible, but they told me it was almost next to impossible. Well, I had a very healthy baby girl and she is amazing. I did have her tested at birth and again 3 months later and she is perfectly fine and probably the best baby on the planet. Thankfully, she sleeps through the night and always has so I was never really sleep deprived too much.

Now, 8 months later my lyme symptoms are coming back. I have to say that while breastfeeding and after the birth, I felt amazing. I expected to relapse afterwards, but just the opposite. I credit to the lack of hormones you have after birth and while breastfeeding. I wish I had known this then and I would have continued for much longer. But, once my hormone levels returned to normal, my symptoms started to return and now I am having some not so good days. Overall, I am not too bad, some days I am and need help with the baby, but other days, like today, I am ok. I try to pace myself (which isn't easy) and get my sleep, but I have also heard it takes up to a year to recover from giving birth. My doctor told me it would take at least 2 years as I was so sick and my body went through a lot.

So I don't know what your plans are for having a baby. I wouldn't let lyme keep you from starting a family as it was the best thing I ever did, but I do wish that I was 100% all the time as it isn't easy some days to raise a baby let alone do it while not feeling up to par. But I also know with chronic lyme, it may just be something I have to deal with off and on throughout my life so I can't let it keep me from having children or having a life.
 
The symptoms that Borrelia causes in people born with the infection may not be apparent at 8 months.  It's spectulated that autism may in fact be caused by congentially transmitted Borrelia. I think your baby is too young to be reliably assessed for autism though, but you may want to look into that in a few years.  Hopefully your bacterial load was low enough to have avoided passing it to the fetus and your little lady will be super healthy.

Jeminij
Veteran Member


Date Joined Dec 2005
Total Posts : 1335
   Posted 11/21/2008 3:33 PM (GMT -6)   
I will keep getting her tested as she gets older, but def. doesn't have autism or any other issues and I don't think she will. I was under great care from my doctor's throughout my pregnancy, thank God.

GreenT603a7
Regular Member


Date Joined Mar 2007
Total Posts : 136
   Posted 11/21/2008 4:34 PM (GMT -6)   
I just asked my LLMD this same question and she said that if the Lyme is dormant in your body you will not pass it on to your baby. If it is active in your blood stream, then there is a risk of passing it.

If it is dormant , meaning that NO BANDS WHATSOEVER show up on a blood test, then your own immune system will keep it in check while you are pregnant... much like an auto immune disease. She says that you need to have a completely negative blood test, then wait 3 months and have another negative blood test and you should be clear to get pregnant.

The doc said she has never had a single patient who has passed Lyme along to the baby during pregnancy if the chronic is dormant in your body.
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