How is Lyme CNS diagnosed?

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hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 11/20/2008 9:33 PM (GMT -6)   
I believe I have this as I have memory issues, neck pain, and spinal pain.

I've seen two lyme specialists and neither ever mentioned CNS Lyme.

Why aren't they better at communicating?

mari33
New Member


Date Joined Nov 2008
Total Posts : 2
   Posted 11/22/2008 1:19 AM (GMT -6)   
what exactly is cns?

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 11/22/2008 8:34 AM (GMT -6)   
Central Nervous System...YOu know where your neck hurts like it's menengitis and your face is numb and you have photosensitivity....

peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 11/22/2008 11:38 AM (GMT -6)   
There are not conclusive tests for lyme
The world breaks every one and afterward many are strong in the broken places


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 11/22/2008 12:47 PM (GMT -6)   
yeah I know, but some claim their lyme is neurological. how is that dianosis made?

kitty9309
Regular Member


Date Joined Oct 2008
Total Posts : 163
   Posted 11/22/2008 4:35 PM (GMT -6)   
It is mainly based on symptoms. Some docs think a spinal tap is the way, but it isn't often positive in the spinal fluid.

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/22/2008 9:52 PM (GMT -6)   

How do you know what meningitis feels like? about a month after all of my pains (5 months back) I have had a bruised like feeling on my spine that is right above my bra strap-constant, feel it more when I wake up or lean over. I had an MRI of my spine and was fine. I wonder if I should be screened for meningitis?

 

My LLMD believes I have lyme in my CNS even though I did not test pos on 2 IGM (see my signature)--due to my symptoms.


----------------------------------------------------------------------
33 yr old female/GERD dx 3/07/Migraines with Aura/IBS
SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
LYME-TESTED POS BAND 31 AND IND ON 34 41 IGM THROUGH IG IN PALO ALTO, GIVEN CLINCAL DX ON 11/17-ON DOXY, ZITHRO, FLAGYL
 
 
 
 
 
 


kitty9309
Regular Member


Date Joined Oct 2008
Total Posts : 163
   Posted 11/22/2008 10:49 PM (GMT -6)   
The positive sign for meningitis is if you have severe pain when trying to put your chin to your chest.

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 11/23/2008 12:02 AM (GMT -6)   
Oh in your neck? Okay whew I am clear. I get so paranoid about everything with so much funky stuff going on in my body. This odd bruise pain on my spine puzzles me, I have slight DDD near that area per my MRI of my spine--wonder if lyme can inflame that more?

----------------------------------------------------------------------
33 yr old female/GERD dx 3/07/Migraines with Aura/IBS
SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
LYME-TESTED POS BAND 31 AND IND ON 34 41 IGM THROUGH IG IN PALO ALTO, GIVEN CLINCAL DX ON 11/17-ON DOXY, ZITHRO, FLAGYL
 
 
 
 
 
 


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 11/23/2008 7:03 AM (GMT -6)   
I also feel bruised. This morning in my achilles tendon. OUCH
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