I'm sure I have Lyme, but I'm not sure Dr's believe me

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2 tired for 30
Regular Member


Date Joined Nov 2008
Total Posts : 34
   Posted 11/22/2008 8:42 AM (GMT -6)   
I went to the clinic yesterday armed with the picture of my bullseye rash, 'cause I just can't take the pain and confusion anymore. The Dr. had no idea what l was talking about but found a blood test to give me. She wouln't give me anything to treat me. I came home and talked to  someone from the Canadian Lyme Disease Foundation. He was very helpful, he confirmed that the bullseye rash means Lyme. I printed the symptoms from the website, highlighted 60 symptoms and went to the hospital. I guess Lyme is not very common in this part of the country 'cause nobody seems to understand. The dr. gave me a bottle if Biaxin and sent me home. I feel like my head is litteraly going to explode! I know I contracted this in BC and I now live in central Ontario.It happened three weeks before I moved. I wish I knew then what the rash meant. I'm worried that nobody is taking me seriously. Does anyone know of Lyme litterate dr.'s in Ontario. I am getting so sick of being dismissed! I need help. This has been going on for 2 years and I'm getting worse by the day!
Thanks

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 11/22/2008 9:46 AM (GMT -6)   
maybe contact one of these guys

http://www.canlyme.com/

as usual, the only lyme doctors in this universe we inhabit either have it themselves, have a brother who had it, a mother who had it, a spouse who had it, a daughter who had it, a son who had it, a father who had it, a sister who had it.

otherwise, it doesn't exist. RIGHT? My husband still doesn't think I have it. I'm ready to leave.

lol

2 tired for 30
Regular Member


Date Joined Nov 2008
Total Posts : 34
   Posted 11/22/2008 9:57 AM (GMT -6)   
I spoke to Jim Wilson at canlyme yesterday. He was extremely helpful. That's where I got the list of symptoms from. The Dr at the hospital glanced at them and said my symptoms could be from a number of things. What about the rash! That could only be one thing. If I don't get anywhere with my GP on Tuesday, I will call Jim and maybe he could point me in the right direction as far as Dr's are concerned. I'm becoming extremely frustrated. This has been going on too long. The neurological symptoms are frightening. I am fortunate that my husband has been very supportive in helping me find the source of my illness. He has watched me waste away. I've lost over 10lbs in 2 months and I'm under 5 ft tall. I'm skin and bones. I don't know how I would cope if he didn't believe me. I'm sorry you're going through that.

peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 11/22/2008 11:33 AM (GMT -6)   
I'm from Montreal and understand your frustration with Canadian dr's not be aware
 
Jim Wilson can give you the name and contact info of DR B in Toronto. He's the only LLMD in all of Canada. How sad is that?
My LLMD was down in NY STATE. Many people from ontario go to see her.
 
Keep researching and reading and figure out a good plan. ABX are not aways the answer but in you case, if you saw the rash, you need to get this solved right away.
 
 
The world breaks every one and afterward many are strong in the broken places

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