LYME, LUPUS OR FIBRO????

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KE08
Regular Member


Date Joined Nov 2008
Total Posts : 92
   Posted 11/22/2008 9:49 AM (GMT -6)   
Hello:
 
I have suffered from fibro (I think) for over 10 years.  Well, recently I was hospitalized for 3 days because of dizziness, balance/walking problems and general pain in joints and muscles ( a lot of pain).  I saw several docs, ENT, NEURO AND RHEUMY while I was there.  I had CT and MRI of the brain/spine/back (all neg).  I also have a blood work up.  Released with Cymbalta and Motrin rx. 
 
My Rheumy told me that my ANA was borderline positve - but she doesn't think I have lupus or RA--??? She think it is more fibro.  BUT I DON'T KNOW WHAT TO THINK :+(
 
My major FLARE symptoms are:
 
Muscle pain-all over- sharp, throbbing or burning feelings or soreness
Fatigue
Leg weakness/numbness (had emg-negative)
Balance coordination (holding on to walls to walk)
Muscle twitches/jerking (for years)
Trouble swallowing- soreness/weak feeling in throat - no choking (barium swallow and scope perfomed) negative
Freguent urination
Mild headaches
Ear pain and sometimes eye pain (light blurriness)
Tongue pain (sometime)
Memory fog- forget what I'm about to say for a couple mins
Sleep disturbances: not enough rest : sleep apnea (maybe)
 
**Usually flare up when it rains/snows**  about 8 months out the year I feel okay- until a flare hits.  Summertime I feel like superwoman-LOL
 
SOOO my question is do people with Lyme or Fibro have borderline positive ANA results?

peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 11/22/2008 11:36 AM (GMT -6)   
Good question. I've been diagnosed with Lupus and Lyme and my Rheum believes it's lupus alone and my lyme dr feels it's lyme alone

I've been treated for both and have been in limbo for over two years wondering what I have.  

No one here can or should diagnose your condition. It could be lyme, lupus, fibro or nothing. It's a long hard road, but you need to keep pushing to find out.
Get tested for lyme, even though testing is not conclusive. Many lyme dr will dx you with lyme w/out even knowing if you have it or not. I think Lyme dr's are just quick to think everything is lyme.

Read, research and keep working at finding answers


The world breaks every one and afterward many are strong in the broken places


Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 11/22/2008 12:44 PM (GMT -6)   
KE08: Have you  ever been tested for mold allergy or sensitivity?? As an extremely mold-allergic person a few things you said rang a bell for me. You mentioned feeling poorly in rain and snow conditions (as I do) and also that in the summertime you were "superwoman. " That description fit me to T. I would almost feel like two different people. I would be sick all Fall/Winter and come to life in the Spring/Summer. Might want to look into some mold allergy testing. Again, I am NOT saying it is not any of those other conditions, as my mold allergy I have in additon to Lyme and Fibro. D
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