Co-infection Babesia Duncani and Babesia Microti

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Keeping the Faith
Regular Member


Date Joined Nov 2008
Total Posts : 77
   Posted 11/24/2008 3:46 AM (GMT -6)   
I have been up the last several hours reading through your entries and have learned quite a bit!  My 16 year old daughter was diagnosed with Lyme Disease in 9/08.  She started in 7/08 with severe headaches, fever, neck stiffness, light sensitivity, back pain, overall fatigue, joint pain, especially in the knees, and stopped walking at the end of 7/08.  There was no sign of a tick bite, so you won't be alarmed to find out that we went through several months of hospital admissions, testing, and a final diagnosis that she was imagining her symptoms and should see a psychiatrist! 
 
After getting rid of all of those doctors and finding Dr. "J" in CT, he confirmed that she did have Lyme and thought she had Bartonella as a co-infection.  We just got our labs back from IGeneX, Clongen, and Specialty Labs, and she actually has Babesia Duncani and Babesia Microti.  Prior to this he had her on Zithromax, Plaquenil, and Rifampin.  He took her off the Rifampin and kept the other two, and has added Mepron 750 mg. 2 tsp BID.  He also had us get Artemisinin 200 mg. and she is taking that twice a day. 
 
We are also see a naturopath who has her on a high dose of probiotics, Vitamin C for minor bruising, a homeopathic remedy for her legs as she is not able to walk any more, and minerals as she is low on magnesium, manganese, and zinc.
 
My question is:  Does anyone know how long it will be before she experiences some sort of relief?  I almost want her to go on IV antibiotics but after reading some of the entries this a.m., I am afraid.  She doesn't want to go through that procedure prior to the holidays anyway, and inasmuch as she is 16, I have to respect her wishes.  I need a little encouragement as I would like to see her walk again very soon and get back to school to be with her friends, even if she has to manage her pain while doing so.

ktbk1
New Member


Date Joined Oct 2007
Total Posts : 10
   Posted 11/24/2008 5:05 AM (GMT -6)   
Hi Keeping the Faith,

I'm also being treated for Babesiosis right now and am on Zithro, Rifampin, and Mepron. I have Lyme and all the coinfections and have been getting treatment for 11 months now. I'm seeing Dr. R in NYC, and I asked him about the IV... he said it primarily treats Lyme and not coinfections as much. If you can make good progress on orals, he tries not to do the IV. I know it must be scary and painful to see your daughter go through this. But now that she's getting treatment, she's already taking the first step to recovery. I would talk to your doctor and get an idea as to how long he thinks she'll have to be in treatment before she's better. Sometimes it can seem like things take longer than we like, but these are tricky little buggers and they're not always easy to get rid of.

Did Dr. J explain the Jarisch-Herxheimer reaction to you? With this, there is a temporary worsening of symptoms before they get better... it's a sign things are working and that you're killing off some of the bacteria. In my case, I get a little bit better after every Herx. Hopefully your daughter will do the same. Sounds like she's on a great combo of meds to start kicking the Babs butt.

Keeping the Faith
Regular Member


Date Joined Nov 2008
Total Posts : 77
   Posted 11/24/2008 7:13 AM (GMT -6)   
Hi ktbk1,

Thank you so much for your response. Yes, I did know about the Herxheimer reaction. After reading some of the information on this site about Mepro, it looks like around the fourth day she will get some sort of reaction. She has already had a VERY bad mood swing that lasted all day -- different from those she has had before, so I thought this could be a Herx reaction, too.

Are you taking the natural herb "Artemisinin", too?

I heard from a "Lyme" friend that you need to be on the Plaquenil for about 12 - 16 weeks before you feel better from it. I didn't know that.

SpiroketeBeGone
New Member


Date Joined Oct 2012
Total Posts : 1
   Posted 10/3/2012 1:38 PM (GMT -6)   
I was also diagnosed with Babesia Duncani back in June. This comes after having a positive lyme dx back in 2008 and treating on and off since then.

Finally got a positive b.duncani test inhings i June and have been treating with a combination of azith, Mepron, and Arteminisin not to mention the IV Rocephin for lyme. Havent had much luck. Some docs will use Malarone in place of the Mepron.

I am actually switching to Coartem and Arteminisin (today) and hoping that this is able to finally move things along. On the Mepron and Arteminisin I notice a definate and almost immediate herx. However, was not seeing any overall improvement.
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