Please someone tell me if this sounds like Lymes, I have been misdiagnosed with anxiety disorder

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NURSE GARY
Regular Member


Date Joined Jul 2007
Total Posts : 29
   Posted 11/27/2008 5:43 PM (GMT -6)   
Hey everyone, my name is Gary. I'm an RN and just turned 40 today. This all started about 20 months ago. I have tried about 26 Prescription meds for Anxiety disorder and I have been deteriorating lately. Here is whats going on symptom wise:

Shaky, Inner tension, Nervous, Tachycardia, S.O.B., Chronic Fatigue, Stiff Neck, Migraines galore, Joint Pain Starting in my ankles and all the way up, Chronic Fatigue, Irritability at times, Jaw stiffness, Muscle weakness, Right eye pupil is not round and is oval almost like a cataract, Cold Flahes at times, Night sweats at times, my mood is not great and I feel depressed, but not suicidal or anything even remotely close. I think thats about it.

I still have anxiety, but it's not that bad . I have no sense of doom or fear consistant with Generalized Anxiety Disorder. I've been in therapy weekly for the last year or so and have switched therapists a few times. My current therapist just ended relations with me as he said that it appears I have an undiagnosed medical condition rather than a Psychological problem and therfore feels he is wasting my time and money. I honestly agree.

I'm on a Beta Blocker, which doesn't control my heart rate. I'm on Klonopin 1mg twice/day, and Xanax 0.5mg as needed. I hardly take it.

I've been an RN x 16 years and have had lots of testing done since this began, but never had Lymes ruled out. I am going for the bloodwork hopefully tomorrow. Somehow, through all of my research, I didn't pick up on the Lymes as a possible cause of all of this, nor did any of the MD's I've seen. It seems that many of the symptoms have worsened dramatically over the past few months. I'm at the point where I feel like I need to go inpatient somewhere. I'm 5'10 200lbs. I was very active before all of this started. I never had the butterfly rash as far as I know unless it was on my back and went unnoticed. I did have an MRI recently and I was told by the ER MD that is was clean. I'm reading that white lesions don't have to be present for one to have the CNS disorders associated with Lymes.

I won't hold anyone to anything. I'm just looking for opinions as to whether anyone who reads this thinks that this could very well be Lymes.

Thank you all so much in advance,

Regards,

Gary ......... BSN, RN

NURSE GARY
Regular Member


Date Joined Jul 2007
Total Posts : 29
   Posted 11/27/2008 5:54 PM (GMT -6)   
somehow this tripple posted.. My appologies... Gary

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 11/27/2008 6:24 PM (GMT -6)   
hi nurse gary;
yes, the sympoms could be lyme; you said, you will get tested tomorrow?! sounds good, it gives you some more information; may be you can get the elisa and westernblot done; its sometimes a fight here where I live to get it done together; think you know all about these testings, being an nurse; if I get the RN right, you stay in uk?

I hope very much that you will get better soon!!!!! dorit

J. Clark Nicholson
New Member


Date Joined Nov 2008
Total Posts : 18
   Posted 11/27/2008 7:10 PM (GMT -6)   
It sounds a lot like Lyme. I mean, it sounds like a lot of things, but Lyme sounds like a lot of things.
What test are you getting? The ELISA test is a standard, but very unreliable. I had two negative ELISA's, but it turned out that I've got Lyme anyway. If I hadn't trusted that test I would have started treatment earlier and would have a better shot at shutting this crud down. In a nutshell, If you get an ELISA and it's negative: It doesn't mean anything. In my experience it's a very bad test.
 
You should try to get a Western Blot done by Igenex labs. They report all bands and don't throw out bands that were used in the 90's to develope the failed vaccine these bands ( I think it's 31 & 34
but don't quote me) are the most indicative for Borrelia infection, I've been told.

JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 11/27/2008 9:47 PM (GMT -6)   
NURSE GARY said...
S.O.B
It's good that you are being tested.  If ANY part of the LD test comes back positive, please see a Lyme literate doctor asap.  The LLDr. will probably test you using the lab Igenex (unless that's where your getting your first test already).... anyway, sounds a lot like LD to me.  I was mis-diagnosed as having severe "break-through" depression which meant I was soooo depressed that my anti-depressant was no longer working.... yeah right.  I WAS depressed... my entire life had been ripped out from underneath me for 13 mos. straight before I stumbled across a list of LD symptoms and realized I had almost all of them... plus a few more (not on the list - haha), and asked to be tested... it came back "positive".  I remember about a week before I got my test results that I actually yelled at my psychiatrist "I want an entire MRI of my body and brain because there is something PHYSICALLY wrong with me!"  Her response?... "Well. I did have a patient once that had a brain tumor."
Then, after testing positive, it took me another 4 mos. to find a dr. who believed the test results and would treat me.  Man was I pizsed off when I was givin a prescription for Doxycicline..... I remember saying, "17 mos. pf pure he11 for a bottle of antibiotics?????"  I had no idea that I had just begun the LD journey even though I had already been sick for a year and a half. 
I really had no clue what I was in for.... and I was too sick to do any research and I couldn't look at a computer without getting nauseous (I couldn't take the light emitting from the screen).... and now it's 8 years later and I'm still doing this merry-go-round.  I have been able to tolerate the computer again just in the past year or so.
But, enough about me.  Please get tested.  Even if you test negative the first time you still may want to see a LLDr.
Hope this helps. rolleyes

We'll get through today - Jennifer
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, 08/25/08 - 10 weeks of IV Rocephin, my first visit to a Pain Mgmt. dr. - she was non-judgemental and will not prescribe me any "opiates" which in the end, is probably a good thing.  Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Rozerem 8mg, Darvocet, Acidophilus, Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg,
Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w 
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs
 


Cheezhead
Veteran Member


Date Joined May 2007
Total Posts : 517
   Posted 11/27/2008 11:22 PM (GMT -6)   
Hi NURSE GARY,

Welcome to the forum, sorry you have not been feeling well. All of your symptoms could be associated with Lyme disease. Please go to the top of the forum and read the newbees tread, there is a lot of usefull information you will need to know. Here is also a good place to find information

http://www.ilads.org/

http://www.ilads.org/files/ILADS_Guidelines.pdf

Lyme disease is a clinical diagnosis. The Lyme titer test are not always reliable, A Lyme knowledgable doctor should take your symptoms, medical history, and possible exposure into account and make a proper diagnosis.

Good luck, I hope you find the help you need!!
Here is my story:

hope_29
Regular Member


Date Joined Nov 2008
Total Posts : 90
   Posted 11/28/2008 4:41 AM (GMT -6)   
Hi Gary,
I think your symtoms can be from LD, but you wrote you take a lot of Klonopin.
Your symptoms also can be from Klonopin too.
Please look at this:
http://www.benzo.org.uk/
http://benzoisland.org/index.html

killbabesia1st
New Member


Date Joined Oct 2008
Total Posts : 6
   Posted 11/28/2008 8:15 PM (GMT -6)   
Sounds like lyme to me. Please get checked for co-infections by Igenex labs along with the western blot since tests are inacurate and give false negatives all the time expecially after it is chronic. I had all of your symptoms plus many more that have not resolved yet with treatment. I too was diagnosed as having an anxiety disorder by many doctors and no one thought to test me in the critical period of several weeks. It took a year for a doctor to think of it and diagnose me properly. My insurance paid $100k in hospital and specialist bills for mri's, cardiology scans, endocrine etc. before I was diagnosed. I was treated for 6 months with Iv antibiotics but still had symptoms because a babesia infection was missed. People that don't get better from lyme treatment usually have a coinfection that has to be addressed first. Also if you have bad lyme or mold detox genes you will not get better until you detoxify properly. (check out dr. Richie Shoemaker's work- chronicneurotoxins.com) I am currently taking Dr. Zhangs artemesia (hepapro.com) for babesia and will continue the lyme treatment with his herbs and possibly flagyl for breaking up cyst form. Some books to read: Top 10 lyme disease treatments by Brian Rossner, Cure Unknown by Pamela Wintraub, and watch Under our Skin a Lyme disease documentary on the politics of lyme and why many people are misdiagnosed-underourskin.com Please don't waste time the longer you wait for proper treatment by an LLMD-lyme literate medical doctor the more chances of it becoming chronic and uncurable.

Hope you feel better,

Al
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