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pooellaa
New Member


Date Joined Dec 2008
Total Posts : 10
   Posted 12/1/2008 2:36 PM (GMT -6)   
Hi everyone, I'm new here and not yet been tested for Lyme. I have been having some problems for awhile and the Doctors don't seem to know what's going on and they are not really trying hard to figure it out. I did request and MRI to check for MS since I have a lot of those symptoms and it came back clear. So, as I  been searching the Internet which I have been for months I came across Lyme disease and I went, Hmm!. Last year about 4 day's after going fishing I found I tick in my head and never thought anything about it until now. There is one main symptom I'm wondering if any of you have had. My arm for about 4 months now is really sore and it will hurt like heck if I lift with it or turn it the wrong way. Has any of you experienced this? I will list my other symptoms, I'm sure I will forget a few. Thank you so much in advance.
Symptoms:
headaches
jaw, teeth pain
right eye pain
arm pain
leg pain
hand pain
feet and ankle pain
knee pain
numbness and tingling in hands and feet
right big toe numb(for a year now)
twitching
balance problems
fatigue
extreme thirst in the evening (checked for diabetes so it's not that)
right eye is blurry at times
lower back stiffness and aches
hip pain
abdominal pain
swallowing problems
pain that feels like it's in the kidneys(both sides)
Memory problems..I forget the what the heck I was going to do next or forget what I was going to say.
I think that's it, LOL!

ashleyf3
Regular Member


Date Joined Sep 2006
Total Posts : 364
   Posted 12/1/2008 4:40 PM (GMT -6)   
Alot of your symptoms sound familiar to me, but I wanted to comment on your arm pain. I was treated for two years for my Lyme and have recently began to relapse. This is a symptom I have been having in my left upper arm - it is sore when I am typing (which is my job), when I reach for things, if I move wrong and I don't sleep on that side so I know it's not because I slept on it funny or anything. It's like in my tricep muscle or upper arm area and spreads. Is this what yours is like?

I will be anxious to hear others comments on this also. Sounds like you need a Lyme test though. I am sure others will come along and give you all the info. Also there are links at the tops for the newbies (basics) that has some great info. I hope you start feeling better soon.

Blessings,
Leah

seeingstars
Regular Member


Date Joined Apr 2008
Total Posts : 266
   Posted 12/1/2008 4:51 PM (GMT -6)   
I agree. Get a lyme test. I also think you may have bart. I have both and I think

I can tell my symptoms apart most of the time. The numb toe makes me think it's

bart too. But, I am not a doctor just a patient trying to survive this 24/7 madness.

seeingstars
Regular Member


Date Joined Apr 2008
Total Posts : 266
   Posted 12/1/2008 4:57 PM (GMT -6)   
Oh, yeah. The kidney pain too. I assoc. mine with bart not the lyme.

pooellaa
New Member


Date Joined Dec 2008
Total Posts : 10
   Posted 12/1/2008 4:59 PM (GMT -6)   
Leah this sounds a lot like what I'm eperiencing! Only thing is it really don't bother me when I type, just when I move it to the side or lift something..I don't sleep on my left side either and I have woken up a couple of times and it's completly numb. My left arm is really getting weak.

I see my doctor again on Wednesday and I will ask to get tested.

Thank you so much for repling!

pooellaa
New Member


Date Joined Dec 2008
Total Posts : 10
   Posted 12/1/2008 5:04 PM (GMT -6)   
I'm sorry but what is bart?.

pooellaa
New Member


Date Joined Dec 2008
Total Posts : 10
   Posted 12/1/2008 5:19 PM (GMT -6)   

I should have looked at the newbie board like Leah suggested before asking what bart was, sorry..:o)

Thank you seeingstars.

I have a lot to learn about this diease. I had no idea really what lyme diease was until recently. I mean I knew about it but not how bad it really is.


Lala6
New Member


Date Joined Jul 2014
Total Posts : 9
   Posted 7/7/2014 8:50 PM (GMT -6)   
ashleyf3 said...
Alot of your symptoms sound familiar to me, but I wanted to comment on your arm pain. I was treated for two years for my Lyme and have recently began to relapse. This is a symptom I have been having in my left upper arm - it is sore when I am typing (which is my job), when I reach for things, if I move wrong and I don't sleep on that side so I know it's not because I slept on it funny or anything. It's like in my tricep muscle or upper arm area and spreads. Is this what yours is like?

I will be anxious to hear others comments on this also. Sounds like you need a Lyme test though. I am sure others will come along and give you all the info. Also there are links at the tops for the newbies (basics) that has some great info. I hope you start feeling better soon.

Blessings,
Leah



Hi Leah,
Such a delay in your response so sorry, but I am a new member that gets terrible arm pain in the left side. The pain specifically starts in the middle finger and shoots up around the forearm and through the shoulder. I type all day too and it strong effects my typical work duties. I also get these "flare-ups" even during idles states of my day and during the night. My fingers/hand can be so numb or weak I can barely twist off the caps of my antibiotics or water bottles (test came back negative for arthritis).

Does anyone this resemble your experience as well?

Girlie
Veteran Member


Date Joined May 2014
Total Posts : 1566
   Posted 7/7/2014 9:17 PM (GMT -6)   
Hi all,

Last April, after a very busy weak at work (clerical - at a computer all day) - I suffered tingling/pain in my left shoulder blade, that progressed during the weak until it travelled down my arm into my hand and index finger.
The pain was excruciating - ended up in ER. I was diagnosed with a pinched nerve by my Dr., but my chiro said I had thoracic outlet syndrome.
Over the summer months it got somewhat better - painwise, but my arm was very weak and finger was numb.
Then in September it all went downhill. My pain started to get worse and I got vibrations through out my body. As time went on, I developed more and more symptoms. Had lots of blood tests, scans, mris, with nothing showing up.

So, here we are July, and I'm finally diagnosed with lyme disease. My left arm is still very painful if I try to move it - can't lift my hand above my head. I was diagnosed with frozen shoulder a couple months ago.

Just got my positive lyme diagnosis...and I truly believe it a) was lyme initially or b) I did have a pinched nerve, but the Lyme disease has not allowed it to heal properly - has attacked that area, as it still hasn't healed.

so - yes I have arm pain - sorry to be so long-winded.
Symptoms started Sept, 2013 (maybe sooner?) Started Buhner's protocol May 15, 2014
Igenex positive July 3, 2014
Doxycyline started July 4, 2014

Determined to beat this!!!

Lala6
New Member


Date Joined Jul 2014
Total Posts : 9
   Posted 7/7/2014 9:26 PM (GMT -6)   
Hi Girlie,

This is exactly how I feel in the left arm infact I have a cyst like thing in middle finger that I feel is where most of my pain stems from. I am off to see an ortho in 2 weeks but am glad to see others have seem sensation which could be related to the Lyme. I go through spurts when I am pain free and then essentially crying in bed I am in so much pain. I get the pins and needles, numbness or throbbing pain. Any of this sound familiar to you? So did you doctor say this is a symptom of Lyme? I am newly diagnosed and have 10 more days on the dioxy. So much to learn and process!

Girlie
Veteran Member


Date Joined May 2014
Total Posts : 1566
   Posted 7/7/2014 10:55 PM (GMT -6)   
lala6 - I am "winging it" so far with Lyme disease. Have gotten the Igenex test done, but not being treated by a LL doc. My regular Dr. gave me the doxy prescription for 28 days. I will have to see a ND as I live in BC, Canada, and MD's aren't permitted to treat lyme disease for more than 8 weeks - or are threatened to lose their license. ND's here in BC can write prescriptions...and they treat Lyme patients.
I didn't bother to ask her about my arm...as I don't think she'd know. I just have always had a gut feeling that there was something else wrong with me...when my so-called pinched nerve didn't heal properly...in fact started to get worse again. I have been healthy, strong and active all my life. So now, I'm chalking all my symptoms to Lyme disease...we'll see what's left over once some of the symptoms subside.

I even tried physio three times with three different therapists...and nothing helped...in fact it got worse. Went to a Dr. of chinese medicine, too and he manipulated my arm...and that hurt.
Symptoms started Sept, 2013 (maybe sooner?) Started Buhner's protocol May 15, 2014
Igenex positive July 3, 2014
Doxycyline started July 4, 2014

Determined to beat this!!!

Girlie
Veteran Member


Date Joined May 2014
Total Posts : 1566
   Posted 7/7/2014 10:57 PM (GMT -6)   
Pooella - you have a lot of symptoms that are consistent with lyme disease.
You mentioned getting tested... the Igenex lab is the best place to test for Lyme disease.
Symptoms started Sept, 2013 (maybe sooner?) Started Buhner's protocol May 15, 2014
Igenex positive July 3, 2014
Doxycyline started July 4, 2014

Determined to beat this!!!

camogirl
Regular Member


Date Joined Feb 2014
Total Posts : 63
   Posted 7/8/2014 6:44 PM (GMT -6)   
Pooella, I too have the upper left arm pain along with most all of the other symptoms you mentioned and more. My arm pain comes and goes now that I'm in treatment (since April 2014). Some days are really bad and I can't move in any way to get any relief. My toes haven't bothered me yet but my feet at times feel like they are on fire and have thousands of needles being poked in the bottoms of them. The left side of my neck also has very similar pain as my upper arm. My LLMD says these symptoms are from Bartonella. My actual diagnoses is having Lyme, Bartonella, & Rocky Mountain Spotted Fever. Because of these infections it has wiped out my "entire" immune system and I'm on a ton of meds do to all of this. There are a lot of folks on this site with tons of knowledge all you need to do is ask. Wishing you well in the days ahead.
Diagnosed April 2014 with Chronic Lyme, Bartonella, & Rocky Mt Spotted Fever.

Girlie
Veteran Member


Date Joined May 2014
Total Posts : 1566
   Posted 7/8/2014 7:23 PM (GMT -6)   
Camogirl - I'm thinking I have bartonella, too..so good to know that you LLMD thinks the neck, arm pain are from bart.
Symptoms started Sept, 2013 (maybe sooner?) Started Buhner's protocol May 15, 2014
Igenex positive July 3, 2014
Doxycyline started July 4, 2014

Determined to beat this!!!

camogirl
Regular Member


Date Joined Feb 2014
Total Posts : 63
   Posted 7/8/2014 9:25 PM (GMT -6)   
Girlie - My LLMD says it will just jump around until we get it under control. My feet are much better but not the arm, neck and back. It just keeps jumping around and sometimes it's in all three locations.
Diagnosed April 2014 with Chronic Lyme, Bartonella, & Rocky Mt Spotted Fever.

Girlie
Veteran Member


Date Joined May 2014
Total Posts : 1566
   Posted 7/8/2014 9:39 PM (GMT -6)   
This is an excerpt from a LLND clinic's website on bartonella symptoms:

• Pronounced neurological pain, shooting sensations, sensations of being plugged into an electrical current, vibratory sensations



pronounced neurological pain (shoulder blade/arm/hand/finger) and vibratory sensations - my main symptoms...I think it's bart.
Symptoms started Sept, 2013 (maybe sooner?) Started Buhner's protocol May 15, 2014
Igenex positive July 3, 2014
Doxycyline started July 4, 2014

Determined to beat this!!!
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