Neurologist recommendation?

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LymeinMD
New Member


Date Joined Nov 2008
Total Posts : 19
   Posted 12/1/2008 5:20 PM (GMT -6)   
Hey Lymies,

Can anyone recommend a neurologist? I've been having wicked dizzy/vertigo spells--they last a few seconds and everything spins--pretty scary. I really think this is a Herx, but b/c they are so severe my LLMD doesn't want to take any chances and is referring me to a neurologist. Am bummed b/c they've decided to back off the Rifampin since if this is a Herx I guess it's too strong. I live in MD near DC--would appreciate any recommendations.

JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 12/1/2008 6:39 PM (GMT -6)   
Don't go to Dr. B in Tampa FL.... I don't know any nueros in MD.
We'll get through today - Jennifer
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, 08/25/08 - 10 weeks of IV Rocephin, my first visit to a Pain Mgmt. dr. - she was non-judgemental and will not prescribe me any "opiates" which in the end, is probably a good thing.  Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Rozerem 8mg, Darvocet, Acidophilus, Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg,
Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w 
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs
 


kitty9309
Regular Member


Date Joined Oct 2008
Total Posts : 163
   Posted 12/1/2008 9:15 PM (GMT -6)   
I am nearby you.

I saw a Neuro-Otologist for my vertigo. This guy is really good and kind. He is at Wash. Hosp. Center.
Dr. Dennis Fitzgerald.

dizzydoc.com

Also in Bethesda- a regular neuro recommended by my ENT is Dr. Glenn Harper.

http://www.painpoints.com/about/biographies/harper.html

My LLMD is in Rockville.

Good luck. I have the dizziness as well. Starting treatment on Wed after going over my test results.

need some zs
Regular Member


Date Joined Nov 2006
Total Posts : 143
   Posted 12/2/2008 10:57 AM (GMT -6)   
Hi LymeinMD,

I live in MD near DC, too. Who is your Lyme doc? I see Dr. M in Rockville. You can e-mail me through my profile if you want.

kitty9309
Regular Member


Date Joined Oct 2008
Total Posts : 163
   Posted 12/2/2008 11:36 AM (GMT -6)   
need some z's

My doc is also Dr. M. How long have you been seeing him?

Staris
Regular Member


Date Joined Dec 2008
Total Posts : 20
   Posted 12/2/2008 4:02 PM (GMT -6)   

I would be interested in a neurologist recommendation in the DC area as well.  I currently see Dr. J in Germantown as my LLMD.  But looking for a understanding neurologist that is not dismissive and arrogant for neuro symtpoms and testing.  I am fairly young (30s) and haven't gotten the time of day from current neurology practice.  Not looking for a LL Neuro (although would LOVE to hear of one) - just one that listens and tests and looks into things beyond "not sure why you have that but we are not concernd".  I have learned that even mentioning Lyme creates a stigma and thus I don't discuss with specialits anymore.

Thanks in advance!



kitty9309
Regular Member


Date Joined Oct 2008
Total Posts : 163
   Posted 12/2/2008 4:50 PM (GMT -6)   
See my post above for a regular neuro.
My ENT said he was the doctor he sens people to who have hard to diagnose illnesses.
My friend really liked him when I recommended him to her. He spent a lot of time and listened. She was stung by a jellyfiah and suffered terribly with neuro symptoms.

need some zs
Regular Member


Date Joined Nov 2006
Total Posts : 143
   Posted 12/2/2008 5:23 PM (GMT -6)   
kitty,

I've been seeing Dr. M for 2 years. I'm currently stopped all treatments, vitamins, etc. to see where my body ends up (LOL).

How about you? Are you happy with him?

kitty9309
Regular Member


Date Joined Oct 2008
Total Posts : 163
   Posted 12/2/2008 6:27 PM (GMT -6)   
Yes. I do like him so far. I have only seen him once and go back tomorrow for my results and discuss treatment.

He has some really good theories about the underlying infections and how they cause symptoms. I have been doing a lot of research on this. I am a microbiologist and we really got into the science of it all on my first visit.

I have met a few others who have seen him and are happy. My endo really thinks highly of him and I love my endo!

How long have you had Lyme? For me it has been 14 years undiagnosed, even after a bulls eye rash in 1994 following a camping trip!

Staris
Regular Member


Date Joined Dec 2008
Total Posts : 20
   Posted 12/2/2008 9:07 PM (GMT -6)   
Thanks Kitty.  Have you seen the blog from LymeMd on blogspot?  He and a veterinary (microbiologist - I think - definitely in the lab a lot) have some thoughts that are probably of interest to you.

kitty9309
Regular Member


Date Joined Oct 2008
Total Posts : 163
   Posted 12/2/2008 9:10 PM (GMT -6)   
Staris-

Yes, I do follow that blog. Is that your doc?

It is very interesting to read.

You are welcome!

Staris
Regular Member


Date Joined Dec 2008
Total Posts : 20
   Posted 12/3/2008 11:26 AM (GMT -6)   
Yes - he is one of my two LLMDs.  Very thoughtful and caring doctor.  LLMDs come in a "variety of flavors" and I align myself with his thoughts on the disease and treatment.  In fact, I went to him b/c of the blog and wasn't disappointed.  Just getting started with im too.  Great thing is he takes some insurance.
 
Also visited Clongen which seems to be a great lab.
 
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