Doctors ignorance

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Dowa
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Date Joined Sep 2008
Total Posts : 1120
   Posted 12/2/2008 5:17 PM (GMT -6)   
I had an appt yesterday with an immunologist that was "supposed" to be helping me with my immune system. I mentioned Lyme and it went downhill from there. Her comments:
 
1. You have to live in New England to get Lyme disease
2. If you have Lyme Disease you would have a rash ALL OVER your body
3. It only lasts a few weeks and then it goes away on its own
 
Thought you would all enjoy a good laugh.... really its very sad. Needless to say, I left the office and will not be going back anytime soon.   (:  D

studeski
Regular Member


Date Joined Dec 2007
Total Posts : 62
   Posted 12/2/2008 7:14 PM (GMT -6)   
Nothing new there. My wife was rejected by a doctor today because I disagreed with her colleague. She was also rejected by Marshfield Clinic when I mentioned Lyme's disease.

Claude

peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 12/2/2008 8:22 PM (GMT -6)   
Dowa, do you have this dr's email address or fax?

Send them as much research info as you can and say "Thought this info would help understand lyme disease"
The world breaks every one and afterward many are strong in the broken places


dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 12/2/2008 8:54 PM (GMT -6)   
Dowa, I am so sad to hear you had such an unpleasant appt with this immunologist!
what a waste of time! it leaves one speechless - so much nonsense form doctors; I am sure you will find a doc who takes lyme serious and is really willing to help you!
Dorit

*Bella*
Veteran Member


Date Joined Jan 2007
Total Posts : 1254
   Posted 12/2/2008 10:37 PM (GMT -6)   
Hi Dowa,

I've had bad experiences with doctors lately, too. It's so pathetic that these doctors are supposed to help us, when they are so ignorant to the main problem. I always say this "If you think chronic Lyme doesn't exist, then tell me why there was a definitive date when I developed symptoms, tested positive for Lyme, and still have those symptoms after the "standard" treatment? Where are the symptoms coming from?" I have yet to get a decent answer.

I'm sorry you had to deal with such a jerk.

JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 12/3/2008 2:57 AM (GMT -6)   
peacesoul said...
Dowa, do you have this dr's email address or fax?

Send them as much research info as you can and say "Thought this info would help understand lyme disease"

I would put this information in a bag with poo inside (preferably Rifampin orange poo), leave it at the door of the dr's. office, ring the doorbell or knock, and then light it on fire and run!!!!!!!!!!!  rolleyes shocked smhair shocked rolleyes smilewinkgrin


We'll get through today - Jennifer
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, 08/25/08 - 10 weeks of IV Rocephin, my first visit to a Pain Mgmt. dr. - she was non-judgemental and will not prescribe me any "opiates" which in the end, is probably a good thing.  Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Rozerem 8mg, Darvocet, Acidophilus, Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg,
Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w 
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs
 

Post Edited (JELAINEP) : 12/3/2008 7:34:05 AM (GMT-7)


studeski
Regular Member


Date Joined Dec 2007
Total Posts : 62
   Posted 12/3/2008 6:09 AM (GMT -6)   
Frango said...
Hi Claude-

Marshfield, Mayo etc.,... all bad places to go for Lyme. Great for other things, but not for Lyme. I think I saw a post that your wife was seeing Dr. M? He is good. I would stick with him if you don't want to have to travel far. There is also a Dr. in Winona, MN.

I hope she is feeling better soon.


Frango,
Thanks for your reply. My wife is not doing well. I will add to my post what's going on. I don't want to stray from the subject here.

Claude

Smiffy51
Regular Member


Date Joined Oct 2008
Total Posts : 35
   Posted 12/3/2008 6:16 AM (GMT -6)   
Oh dear! I do hope you can find a doctor to help you. The flaming bag of poo sounds a good idea!


I live in Old England (would like to ask your immunologist how that naughty tick got here from New England), have never had a rash & have been ill 21 years with it. The doctors here are dinosaurs too, but I finally found one who does thumb prick blood tests by post and telephone appointments. My family doctor thinks I'm just nuts.
housebound in the UK with 'severe M.E./CFs & fibromyalgia' for 21 years - have just found out I actually have had Lyme, micro-cocci & crytostrongylus pulmoni all these years


nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 12/3/2008 11:00 AM (GMT -6)   
This is all very sad. . .and the very reason that I have been so depressed feeling so alone in my quest to get better but knowing there is no medical doctor in my area that gives a hoot.

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 12/3/2008 12:27 PM (GMT -6)   

Thanks everyone, I guess we have to keep a sense of humor in all of this. It certainly helps anyway! I think bringing back the posts of the funniest doctor comments would be a good idea-we could all have a good laugh to start the day!

Frango: I am not in MN, (but thank you) I am in Texas but a NH native, here for medical treatment for mold poisoning, NO Lyme docs here anywhere from what I am told!  ):  D

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