does everyone with lyme have joint pain?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

gracietiger
Regular Member


Date Joined Dec 2008
Total Posts : 129
   Posted 12/3/2008 12:47 PM (GMT -6)   
the only joint issues i experienced were in my fingers. for about four months, the joints were swollen, red and my fingers were curled inward. it started on my right hand, then went to my left. also, at the same time, i developed three nodules on my fingers - they were like little bumps, very red, and extremely extremely painful. the swelling and pain went down dramatically, and now, every now and then i get some stiffness and a little bit of swelling in the fingers, but not much.
do most people have systemic joint pain? that doesn't go away? can people have lyme and not have joint issues?

Crystalmarie77
Regular Member


Date Joined Apr 2008
Total Posts : 50
   Posted 12/3/2008 1:15 PM (GMT -6)   
Hi- My symptoms began in January of last year and were at first just numbness in my foot that eventually spread to my arm and then my face when i went to the emergency room in Feb. they of course did a CT and many other tests then referred me to a Neurologist suspecting MS. While waiting or my appointment which was a month away i started having tremors and chills and sweats and anxiety and couldnt sleep. While searching online i came across lyme disease and it matched alot of my symptoms only i didnt really have any pain. I called the neurologist and asked for a lyme test. He didnt want to since i didnt have a rash ( i knew i was bit as a child behind my ear i have a scar where it was "burned" out by mother..stupid) Anyways, he did the tests and both my ELisa and Western were positive. He still said it was unlikely it was lyme because Joint Pain is one of the main symptoms..We did an MRI and spinal tap and still nothing to suggest MS. I then began seeing a LLMD in Oregon..the only one..and have been doing treatment since...My point is the pain has come now in different parts of my body and comes and goes but my main symptoms have been neurological. I asked my doctor and she said lyme doesnt fit a pattern for everyone..I feel like have gotten things in a backwards order from others...since the pain just recently started and today is my first day of having the often described "brain fog" symptom...I dont think there is a pattern and it can be scary when there are so many symptoms and you dont quite seem to fit all of them or they seem to change everyday. I still question my diagnosis but with a positive test not from a very symptom lab i just have to trust that this is just the way my body is dealing with it ..

Crystalmarie77
Regular Member


Date Joined Apr 2008
Total Posts : 50
   Posted 12/3/2008 1:16 PM (GMT -6)   
Also of my few joint issues mine are in my hands as well

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 12/3/2008 2:17 PM (GMT -6)   
I have a friend who has Lyme and has NO joint pain at all, just the fatigue. So, it seems "normal" to have it, but not everyone does.

nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 12/3/2008 3:29 PM (GMT -6)   
There is an arthritic form and a neurological form of lyme depending on what is being attacked in your body. Those bitten near the head often develop the neurological symptoms but you can have both.
The symptoms can come and go and vary so much it is often not connected. I had horrible back pain for over a month, then a few months later I could not use my right arm. I have had pain in my hip, behind my knee and now in my wrists. It comes and goes. Most of my problems are neurological.

Jeminij
Veteran Member


Date Joined Dec 2005
Total Posts : 1336
   Posted 12/8/2008 10:48 AM (GMT -6)   
I never had any joint pain with my lyme. Mostly CNS lyme and the fatigue, headaches, anxiety, but never had any joint pain so it is very possible. Everyone is different.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 12/8/2008 1:09 PM (GMT -6)   
I didn't have joint pain until more recently, and even then it is not clear to me it is the joints - it may be nerve pain that is centered around joints.
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G-J Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).


JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 12/8/2008 3:28 PM (GMT -6)   
I have never-ending and always moving joint pain. I once had a doctor say to me, "Well, I know you're not faking... no one fakes hip pain."

Man what I have been through... and with snotty doctors.... no one would believe it unless they lived it.
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3 Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Rozerem 8mg, Darvocet, Acidophilus, Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg, Skelexa, Restoril
Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w 
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs
 


gracietiger
Regular Member


Date Joined Dec 2008
Total Posts : 129
   Posted 12/8/2008 4:01 PM (GMT -6)   
jelainep- are you getting better? the joint pain?

JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 12/8/2008 5:05 PM (GMT -6)   
gracietiger - I've had shoulder, neck and head pain (only on the left side) since October of 2007. My knees and hips continue as usual... and my hands and wrists come and go.... but thanks for askin'! I finally went to a pain management doctor (after 8 years) and the Lyrica and Skelexan seem to work on the fibromyalgia pain (what a relief). She is 'titering' me up to handle the joint pain. I'm having a hard time taking more and more pain meds (I crash in the afternoons) but once my system adjusts I should be alright. I think there's been a slight reduction in pain, at least for the past few days.

How are you doing?
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3 Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Rozerem 8mg, Darvocet, Acidophilus, Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg, Skelexa, Restoril
Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w 
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs
 


needshelp
Regular Member


Date Joined Aug 2008
Total Posts : 227
   Posted 12/10/2008 2:02 AM (GMT -6)   
I went to a seminar on Lyme disease a couple months ago (at the medical school where I work) and one of the brilliant Infectious disease doctors in the audience claimed that only a small percentage of Lyme patients developed athritis. I found this amusing but kept my mouth shut. As some others have mentioned, not everyone has joint pain but I would suspect that a vast majority of Lyme patients experience athritis issues at some point (due to LD infection).

gracietiger
Regular Member


Date Joined Dec 2008
Total Posts : 129
   Posted 12/10/2008 8:34 PM (GMT -6)   
needshelp, thanks for your reply. i couldn't really tell if your comment about the infectious disease doctor was sarcastic or not:) are you saying you believe that most people with lyme's disease will have joint pain, and it's probably very rare that people don't? i'm inclined to think most people probably agree with this sentiment.
how extensive do you think the joint pain is for lyme disease patients?
i had very swollen and painful finger joints for about three months. then a few months later, some hip pain that lasted for about three months. that's all the joint pain i have experienced.
i have not been diagnosed with lyme, but have had pretty much everything else under the sun ruled out. it is the only thing that makes sense. but, of course i have doubt because i have no proof. it does seem like the joint pain i experienced is less extensive than the stories i hear about ld.
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, September 25, 2017 8:15 PM (GMT -6)
There are a total of 2,873,282 posts in 315,320 threads.
View Active Threads


Who's Online
This forum has 156808 registered members. Please welcome our newest member, sammyp.
466 Guest(s), 10 Registered Member(s) are currently online.  Details
19tarpon47, glutensugarfree, BabsBunny, SlappyHappy, Purrrsiankitty, sebreg, cspivak, Redwing57, owleyes, scar1919


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer