Just to throw my two cents in here....there are two television shows current on that are nothing BUT cases where doctors show clean tests and can find nothing wrong, yet eventually the person finds the right doctor who saw their condition before and diagnoses them correctly...sometimes after years of pain and misdiagnosis. Check them out: Medical Mysteries and Mystery ER. I think they are both on the the Discovery or the Learning channel.
Also, there is no other part of medicine that has more drugs then psychiatry and this branch of medicine is known more then any other as the "easy money" medicine. If all these people truly had mental conditions and not something physically wrong with them...WHERE are all the studies showing how psychological drugs are making them better? You can best believe if it were possible, in this branch of medicine, even remotely, they would be forcing those studies down our throats.
For me, it put to rest in my mind that Chronic Lyme is real and that doctors just are not familiar with it enough. As far as the IDSA being "evil," I'm sorry, but I have to agree. Given today's economic climate, the proof is in our faces that companies are out for the highest profit possible, and this includes the insurance companies. There are people like my wife who generally believe 99% of people are good hearted and wouldn't do things like we see in the news just for money. My answer to her is if she truly believes that, go down town at night with a twenty dollar bill in her hand for a week and see if someone will do her bodily harm for just that twenty dollar bill. Of course I don't want her to do that and I use the example to make a point, but it usually brings the debate to a close.
Ultimately the point here is if people kill everyday over $20-$100 as we see in the news in a face to face murder style, what makes any person believe that companies wouldn't do some of these heinous things to save millions, perhaps billions of dollars to a "faceless" group of people they will never had to answer to or look in the face?
Post Edited (Chris L) : 12/8/2008 1:45:54 PM (GMT-7)
from what i recall igg is usually lyme infection after a long period anything over 90 days I believe 41 band is very common in this but you need 3 or 5 bands to be cdc positive ther is info online to interpret these results
also look for ticker she is very knowlegable in this field of interpertation Most dr's are not familiar with reading the results but at least yours will consider the possibilties with a clinical diagnosis alot of the very ill lyme patients do not have several bands showing and testing is at most 60% reliable
I would definately have your husband look into the co-infections like babesia which can mimic copd and also bartonella along with another I will try to spell it enchrolosis something like I have had all but the last one
\Some of the most ill people do not have bands that show so it has to be approached both with clinical findings and testing from reputable labs igenex quest path and so on . also have his immune system checked . from the plasmid gene factor you can develope bleebs which I have from my mutated genes in my lungs which were never there before all of this I use and inhaler and also advair for the shortness of breathe from the babesia What a battle it has been but I am a fighter with a strong constitution which has been really tested. It does not sound like an adaquate dose of doxy at 200 mg daily I think 300 is the adaquate treatment from what I have experienced from some of the top llmd's in this country
If you research protocals for treatment of late stage lyme you will find a vast amount of info to guide you or feel free to address all of us veterans of this disease that effects families friends as well as the patients themselves
after about anywhere from 7 days to 3 weeks of treatment he can experience a herx heimer reaction which feels like every symptom is magnified so let your doc know and try to chart them so he will be prepared to ride it out they do lessen in severity after a period of time but can be expected
Mine were very severe since my lyme had gone into the neurological degree along with having 2 other co-infections
I wish you all the luck and blessings to come your way
take care and stay informed and we will always be here to support your husband and family with any answers we can