Help to decide which IGNENEX panel for bart and babesia

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nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 12/7/2008 8:42 AM (GMT -6)   
I called my MD and asked him to order the IGENEX tests for bart and babesia.  His nurse said they are sending it but there are several panels to chose from.  He has no idea which one to chose and neither do I.  Any recommendations or explanations to help me?
Thanks,
Bev

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 12/7/2008 3:02 PM (GMT -6)   

Ignenx has a web site and it should help you decide. www.igenex.com

 


nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 12/8/2008 7:46 AM (GMT -6)   
I went to the web site before and it just listed the panels.  It does not tell you the difference between them.

JELAINEP
Veteran Member


Date Joined Sep 2007
Total Posts : 2017
   Posted 12/8/2008 8:19 AM (GMT -6)   
I would call Igenex directly and/or contact your LLDr's office and have then do it.... it's kind of "their" job to do this, isn't it????

I just don't understand why "we" are always left holding the bag with this disease. We have to find the doctors, keep the records, figure out which tests are needed, figure out how to interpet the test results, figure out which medication protocol would work best... all the while getting sicker and sicker and sicker..... and God forbid we get "angry" - then it's "all in our head".... or we get "dropped" as a patient... you just "disappear" as far as they're concerned.

I guess the fibromyalgia, chronic fatigue syndrome, Epstein Barr, AIDS/HIV patients all went through this before us.... horrible - man's inhumanity towards man".
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has.  - Margaret Meade
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3 Current Rx's 11/12/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Rozerem 8mg, Darvocet, Acidophilus, Rifampin 600mg, Levaquin 500mg, Lyrica 150 to 300mg, Skelexa, Restoril
Medicare/SSDI theme song - http://www.youtube.com/watch?v=bd2B6SjMh_w 
"How much more can I take?", songhttp://www.youtube.com/watch?v=5gHiR1xeOSs
 


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 12/8/2008 1:14 PM (GMT -6)   
JELAINEP said...

I just don't understand why "we" are always left holding the bag with this disease. We have to find the doctors, keep the records, figure out which tests are needed, figure out how to interpet the test results, figure out which medication protocol would work best... all the while getting sicker and sicker and sicker..... and God forbid we get "angry" - then it's "all in our head".... or we get "dropped" as a patient... you just "disappear" as far as they're concerned.
I agree with you - kind of makes me think we all should get honorary MD degrees for all the work we have to do with this disease...LOL!
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G-J Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).


phsinvent
Veteran Member


Date Joined Aug 2006
Total Posts : 1155
   Posted 12/8/2008 3:04 PM (GMT -6)   
I've posted this in the past but I highly reccommend Clongen labs maryland versus igenex. Reason being is that igenex is still only testing roughly 2-3 strains of babesia and bartonella. Clongen on the other hand is testing 15 strains of babesia and 20 stains of bartonella. This would give you a much better answer versus igenex. There are so many on here that get negatives through igenex because they have one of the many other strains.

nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 12/9/2008 9:31 AM (GMT -6)   
Thanks phsinvent, I can check into that.
The reason that I am asking the forum about which panels to do is because my doctor does not know anything about the disease other than what I have told him. The nearest LLMD is 900 miles away in Seattle. I talked with someone over the week end whose husband tested positive for lyme but the local doctors refuse to treat him because 1. There is no lyme in Montana and 2. there is no such thing as chronic lyme so a couple weeks of abx would have cured him. He currently is on steriods for RA, which I told his wife would destroy his immune systems ability to fight the lyme. That is how stupid it is around here and why I need help and cannot rely on the medical community for anything! By the way, it was published in the Missoula MT newspaper that Rocky Mt Lab which is run by the federal government to research the most deadly pathogens know on the planet, is working on the strain of lyme disease carreid by the Wood Tick in Montana. Try telling that to the doctors!!
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