Plaquinel or not?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 12/17/2008 7:29 AM (GMT -6)   
Is anyone on this?

I may need to be as my joints sort of pop out of socket.

Am debating as I read some weird stuff.

I'm doing SO very much better -- second month into antibiotic treatment!

And, no, doctor W, it's not placebo. I know when I'm not dizzy.

Keeping the Faith
Regular Member


Date Joined Nov 2008
Total Posts : 77
   Posted 12/17/2008 1:11 PM (GMT -6)   

Hi HopingtoFindaCure,

My daughter is taking Plaquenil and has been on it for six weeks.  I was told by another lyme sufferer that it takes about 12 to 16 weeks to actually start seeing the signs of improvement from it.  The bad thing is that my daughter cannot stand the taste of it because we have to cut the pill in half.  Well, yesterday I had an idea to use the capsule that her probiotic comes in (we have to empty the probiotic capsule anyway) and put the pill inside it.  Now it is not a problem at all taking the medicine.  The capsule just dissolves anyway, so I don't see any harm done, and she is taking it without a problem.  What have you heard about the time before it starts taking effect?  I'm so happy to hear that you are feeling better.  We're still waiting to see improvement -- six weeks may be too soon (Plaquenil and Zithromax) and four weeks (Mepron and Artemisinin for Babesia).

Lisa


hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 12/17/2008 5:36 PM (GMT -6)   
Hi Lisa -

I have good days and bad ones. And today was a bad one I'm SO sorry to report. For some reason had back and neck pain and shoulders and arms feel very weak.

I hope your daughter gets well soon.


Hope for cure

Keeping the Faith
Regular Member


Date Joined Nov 2008
Total Posts : 77
   Posted 12/17/2008 5:59 PM (GMT -6)   
I'm sorry you are having such a bad day today.  I thought my daughter was doing better today, and then this afternoon she had a panic attack that lasted 15 minutes.  That could be due to the fact she has been on the babesia meds for a month  now, and the fact that she has resumed physical therapy (she hasn't walked since end of July).  It seems after therapy the bacteria decide to be agitated and cause her more problems!  I tell her "hurry up and take your antibiotics while they are moving around in you!"  I'll try anything to get them under control!  Also, bad weather sets her back.  I don't know where you live, but we are in CT and the snow storms are starting to come frequently this week.  Not good news for lyme arthritis.  Hang in there because for every bad day there is a great day right around the corner.  I wish you well and hope you have a wonderful holiday season!  Lisa

hopingToFindCure
Veteran Member


Date Joined Nov 2008
Total Posts : 759
   Posted 12/17/2008 6:27 PM (GMT -6)   
I'm very sorry to hear of your daughter's bad day. It has been cold and rainy in the mid-Atlantic...that probably aggravated my back, shoulders, neck and spine as it didn't start until I walked outside...
Hope your daughter is on the mend soon.

Thanks and happy holidays!

hezzer926
Regular Member


Date Joined Sep 2008
Total Posts : 285
   Posted 12/17/2008 10:53 PM (GMT -6)   
personally, plaquenil didn't help me at all.. my llmd said it would help the lyme and hit the babesia somewhat as well... i was on it for about 6 weeks along w/doxy and arteminisin and rifampin..... literally the day i started my new protocol of rifampin, omnicef, mepron, zithromax, and arteminisin i had more energy than i had in weeks of the other protocol..this was given to me by a new llmd

Keeping the Faith
Regular Member


Date Joined Nov 2008
Total Posts : 77
   Posted 12/18/2008 6:14 AM (GMT -6)   
We haven't seen any results from it either.  We were told 12-16 weeks from a friend who saw a rheumatoid doctor.  I'm glad to hear that another round of meds are working better for you.  We will keep this in mind for our follow up appointment.  At least there is an alternative.

bcaring
Regular Member


Date Joined Feb 2006
Total Posts : 346
   Posted 12/19/2008 11:59 AM (GMT -6)   
Most LLMDs prescribe a low dose of Plaquinil to help the antibioitc more efficiently penetrate the cell wall. The low doses that are prescribed are for most people not going to have much affect on pain levels, etc. Maybe a little but again not much.

You should have your eyes examined once every six months but at the low doses prescribed my doctor has never seen a problem. My eye doctor agreed with her.

Keeping the Faith
Regular Member


Date Joined Nov 2008
Total Posts : 77
   Posted 12/19/2008 12:29 PM (GMT -6)   
Thank you very much! I did know about having the eye exam every six months, but I was waiting to see some positive results from being on these meds. Hopefully in the immediate New Year. Thanks again.
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, August 19, 2017 12:47 PM (GMT -6)
There are a total of 2,857,532 posts in 313,521 threads.
View Active Threads


Who's Online
This forum has 155127 registered members. Please welcome our newest member, Tarun.
375 Guest(s), 11 Registered Member(s) are currently online.  Details
johncc, George65, readingmom, Bohemond, JoJoLA, cakegirl, getting by, Connor77, k07, Labradorite, hopelessinmo


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer