LYME DR NEEDED UK SCOTLAND

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

cha cha
New Member


Date Joined Dec 2008
Total Posts : 6
   Posted 12/29/2008 6:38 PM (GMT -6)   
 First i would like to say thanks to Judy3 for her help. and hello to all .My mum has had two positive blood tests done and three weeks of antibiotics, the Doctors are not convinsed its lyme they say my mum is a mystery. one DR out of four said she should have the antibiotics i dont think she has to get any more. Her next hospital appointment is the 12th of Jan. WE NEED TO FIND A LYME DR
IF ANYONE CAN HELP WE LIVE IN GLASGOW SCOTLAND UK. sad  
                                                                                     CHA CHA

Smiffy51
Regular Member


Date Joined Oct 2008
Total Posts : 35
   Posted 12/30/2008 10:32 AM (GMT -6)   
As far as I am aware there are only three Lyme literate doctors in the whole of the UK, all private - one in Cardiff, one in Hemel Hempstead and one in Manchester - the latter I use because he will test by post and offers telephone appointments.

Please join the EuroLyme board so that someone can email you privately - we do not use LLDs' full names on message boards as they are harassed by the medical authorities.

http://health.groups.yahoo.com/group/EuroLyme/?yguid=55954537
housebound in the UK with 'severe M.E./CFs & fibromyalgia' for 21 years - have just found out I actually have had Lyme, micro-cocci & crytostrongylus pulmoni all these years


cha cha
New Member


Date Joined Dec 2008
Total Posts : 6
   Posted 12/30/2008 5:23 PM (GMT -6)   
I am so sorry you have been ill for all that time, and only just found out you have lyme.
How did they find out you had lyme ? and what are they doing about it.
does this diagnoses of Lyme mean you dont have M.E. CFS & FIBROMYALGIA ALL THOSE YEARS
THANKS FOR THE INFO WE ARE GOING TO THE HOSPITAL ON THE 12TH OF JAN I WILL ASK THEM TO PUT ME ONTO AN LLD
IF THEY DONT I WILL GET IN CONTACT WITH THE EUROLYME BOARD, I WILL JOIN TONIGHT PLEASE LET ME KNOW HOW THINGS GO FOR YOU. TAKE CARE     
                               
                                 CHA CHA

Smiffy51
Regular Member


Date Joined Oct 2008
Total Posts : 35
   Posted 12/31/2008 8:17 AM (GMT -6)   
You will be very lucky to receive any treatment at all on the NHS. If your test by any miracle comes back positive (my NHS test didn't) you will receive 3 or 4 weeks antibiotics & then be told you are cured - you won't be. If you think you have Lyme you will have to go private for effective testing & treatment.

I found out from live blood microscopy (Dr AW sent me a thumb prick blood test to post back to him) that I have borrelia etc., but my GP won't even discuss this with me. My fibro specialist is refusing to see me again because of this 'Lyme nonsense.'

My 'official' diagnosis is still M.E. & fibro & all I'm being offered on the NHS is graded exercise and cognitive behaviour therapy. It's absolute madness. The NHS will treat the similar spirochaete infection syphilis, but not Lyme.
housebound in the UK with 'severe M.E./CFs & fibromyalgia' for 21 years - have just found out I actually have had Lyme, micro-cocci & crytostrongylus pulmoni all these years


cha cha
New Member


Date Joined Dec 2008
Total Posts : 6
   Posted 12/31/2008 11:33 AM (GMT -6)   

SMIFFY51 JUST AS YOU SAID MY MUMS  BLOOD TEST CAME BACK POSITIVE AND SHE  RECEIVED THREE WEEKS OF ANTIBIOTICS, WE HAVE A FOLLOW UP APPOINTMENT ON THE 12TH OF JAN, I WILL ASK IF THERE IS A LLD DR AT THE CLINIC WHICH I DOUBT. THE CLINIC IS FOR INFECTIOUS DISEASES.  MY MUM IS WALKING AGAIN WITH A  STICK BUT SHE HAS VERY TIGHT MUSCLE CRAMPS FROM MY FEET TO MY HANDS SHE IS TAKING BACLOFEN AND DIAZIPAM AND FINDS IT HELPS. I THINK ITS ODD THAT MOST DOCTORS DISMISS THE IDEA OF LYME.

SO HOW LONG DO YOU NEED TO TAKE ANTIBIOTICS AND HOW DO THE DOCS KNOW YOU ARE CURED

YOU MUST HAVE HAD AN IDEA YOU HAD LYME DID YOU HAVE TO SEARCH FOR A LLD I HAD NEVER HEARD OF IT

I WILL GET BACK TO YOU AFTER THE 12TH OF JAN   CHA CHA


scottishlymielady
Regular Member


Date Joined Oct 2015
Total Posts : 243
   Posted 10/18/2015 1:02 PM (GMT -6)   
Hello smithy and cha cha.

How are you doing smithy and cha cha how is your mum?
Was your mum at gartvnavel brownlee infectious disease unit? in Glasgow
I live in north Ayrshire Irvine
iv had lymes disease since 2006. I did not no until 2010 I had 3 past western blott lymes positves serology tests taken late 2006 2008 2009 . like you smithy I was given a ME diagnosis in 2008 . By neurologist and infectious diseases concultant at cross house hospital Kilmarnock
However this was only because they both thought my lymes diseae tests were negative
I was not given a lymes diagnosis when a neurologist uncovered theee hidden positves.
I was given 100mg doxy for 28 days, retested still positive but doxy was not continued
I continued to decline losing my mobility im using a wheelchair now. I have had several private positive tests for tick diseases. the nhs refuse to treat these.
CHA CHA how is your mums mobility? I hope shes improved
I hope you don't mind my emailing,as I did a search on this site to see if any ones from Scotland
Can you tell me SMITHY WHO WAS IT YOU POSTED BLOOD TO FOR TESTING? DID YOU HAVE OTHER TICK DISEASES TESTED FOR? IF SO WHAT WAS THE COSTS?
I am looking for a back up incase I cthe doctor I have been given name of from very kind member.will not skype me.
please contact me how you both are?and who you are seeing now?
kind wishes elaine.
.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35723
   Posted 10/18/2015 1:09 PM (GMT -6)   
ScottishLymielady, This thread is very old- 7 yrs old and we haven't seen these members around in a long time either. While it's always a possibility that they may still monitor this site, they likely aren't. I just wanted to let you know so that you aren't sorely disappointed when they don't answer.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15
*I can usually post a link to any info that I post. Wish to see a link? Please just ask!

scottishlymielady
Regular Member


Date Joined Oct 2015
Total Posts : 243
   Posted 10/18/2015 4:05 PM (GMT -6)   
hi,

sorry I did not look at dates just saw was 2008 oops thanks moderator for letting me no.
thanks I was just trying to see if any members were in Scotland .
I posted in a google searched it lead me back to this site
Maybe there non coming back means they are recovered
Glasgow if half hour drive from my location where these 2 posters are
and I think they were at same nhs infectious diseae clinic I was at also

elaine

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35723
   Posted 10/18/2015 5:26 PM (GMT -6)   
Well, hopefully they are still monitoring this thread and will answer or get in touch with you!!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15
*I can usually post a link to any info that I post. Wish to see a link? Please just ask!
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, August 22, 2017 3:30 AM (GMT -6)
There are a total of 2,858,286 posts in 313,632 threads.
View Active Threads


Who's Online
This forum has 155226 registered members. Please welcome our newest member, SAGFHF.
476 Guest(s), 3 Registered Member(s) are currently online.  Details
George T., David1953, fiddlecanoe


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer