How many of you have Endometriosis?

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KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 1/4/2009 3:42 PM (GMT -6)   
Just wondering how many of you also have Endometriosis?  I've had it since my early 20's.  I was wondering if there is a connection.
Thanks, KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 1/5/2009 12:33 AM (GMT -6)   
There's a doctor in California who believes there is a connection between Lyme and Endo in some cases. His website states that Lyme bacteria has been found in endo implants. It's an interesting theory. He believes that if you still have endo symptoms after proper removal of all the endo implants, you should be treated for Lyme.

And yes, I have endo. I have more problems with the endo than with the Lyme.

GLbaby
Regular Member


Date Joined Aug 2006
Total Posts : 188
   Posted 1/6/2009 9:52 AM (GMT -6)   
I have Endo and have had Lyme for Years.  I feel that they are related, I am not a doctor but it makes sense to me.  You immunesystem is so busy fighting lyme is starts attacking you own body.  This is just my opinon.  I really do think its related and I have met many people with Lyme who have it, or many people with  "Lyme Symptoms" who have endo.

sj1982
New Member


Date Joined Jan 2009
Total Posts : 1
   Posted 1/14/2009 10:11 AM (GMT -6)   
 What about those of us with Endo that have never had LD? I was diagnosed two years ago with Endo and never tested positive for LD.

KO-LD
Veteran Member


Date Joined Aug 2007
Total Posts : 887
   Posted 1/14/2009 10:27 AM (GMT -6)   
sj1982,  Most people here haven't tested positive for Lyme.  The test are VERY inaccurate.  Lyme is suppose to be a clinical diagnosis (it rarely is).  Most doctors rely on the ELISA test which is, as I said very inaccurate. 
Take Care, KO
2001 symptoms started:
Tingling in fingers and toes both sides, not tested at that time for LD
2007 Summer tested pos. WB, diagnosed with LD, tested neg for co-infections thru Igenex
Abx - Doxy 100mg 2x/day for 3 weeks (before diagnosis)
Amoxicillin 1gm 2x/day for 1 month
Amoxicillin 1gm 3x/day with Probenecid 500mg 2x/day  5 months 
Currently on Dr. Zhang's protocol 

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