lyme affecting period?

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abanana07
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Date Joined Oct 2008
Total Posts : 47
   Posted 1/7/2009 11:36 AM (GMT -6)   
I have sort of always had heavy and irregular periods. To help with this I went on yasmin birth control in 2006. That has helped regulate and lighten them.
 
I was diagnosed with LD at the end of the summer - just finished antibiotics about 2 weeks ago. I have been feeling a little better and even started working out a little bit - until I got my period two days ago. It has been HORRIBLE - like worse than it's been in years. Heavy, painful, nausea, lightheadedness from anemia, etc! The only thing I can correlate this to is the lyme or stopping antibiotics. (I know that antibiotics counteract birth control and was using a back up method for the 4 months on antibiotics)
 
Has anyone else's period been affected by lyme? Is this common or am I just crazy? I really just want my life back and am hoping these bad period symptoms aren't related to the lyme/doesn't mean it's coming back...
 
Happy new year!

Dowa
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Date Joined Sep 2008
Total Posts : 1120
   Posted 1/7/2009 1:21 PM (GMT -6)   
There was a post on here asking about endometriosis being connected to LD, have you ever been tested for endo? Heavy, painful periods are classic endo symptoms. Might ask your GYN about it.  D

abanana07
Regular Member


Date Joined Oct 2008
Total Posts : 47
   Posted 1/7/2009 2:00 PM (GMT -6)   
Hi - yes I saw that thread, very interesting and kind of scary. I actually made an appointment with my gyn about this and am anxious about it.

I do have some of the symptoms of endo but more symptoms of fibroids. The thing that concerns me is that my period wasn't NEARLY this bad when I got it over the last few months while still on antibiotics. I feel like if I had endo or fibroids I would have known by now - but I guess you never know. I am mainly curious as to whether or not people noticed symptoms like this as a result of lyme or treatment for lyme. Could it be that this is just a result of finally being off abx? Like everyone else here, I am just so sick of being sick...
thanks for the response dowa!

teenLymer
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Date Joined Dec 2006
Total Posts : 186
   Posted 1/7/2009 8:35 PM (GMT -6)   

i'm fairly regular, but still have what i consider heavy periods.  And i'm borderline anemic. My Lyme syptoms increase in severity when i'm on my period.  Cramps are also really painful during my period.

But I don't know what's causing what.  Lyme causing bad period symptoms. Or being on period makes Lyme symptoms flare up.


*Bella*
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Date Joined Jan 2007
Total Posts : 1254
   Posted 1/7/2009 8:44 PM (GMT -6)   
I have had irregular and painful periods since getting Lyme. I actually have cramps that I would normally attribute to my period for about 3 weeks out of the month.

I notice an increase in Lyme symptoms the week before my period, so I definitely think the two are connected.

Martha's Vineyard
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Date Joined Jul 2008
Total Posts : 1119
   Posted 1/7/2009 9:10 PM (GMT -6)   
hey abanana,
lyme loves your hormones. if you notice your symtoms will get worse right before you start, and the days during the flow. the heavy flow and the down mood. it is hard. be careful about alcohol at this time. it really hurts you. the mirganes. and yes it is the lyme that is giving you these problems. I found that the pill mad me really sick with my lyme. I mean the pills made all of my problems really, really bad. If you can find another form of birth control, since you are going to be on abx for a while anyways. see if that does not make a big difference for you. and keep up the fight.
marie
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Keeping the Faith
Regular Member


Date Joined Nov 2008
Total Posts : 77
   Posted 1/8/2009 4:04 AM (GMT -6)   
Lyme really messed up my daughter's periods! She was having her period every two to three weeks. Now that she is on the antibiotics, they are coming every 28 days. The PMS is horrible -- intensifies the lyme symptoms. The actual period is heavy. Periods are miserable when you are healthy, but with the lyme, they are like hell for her. She cannot go on birth control because, we found out from lyme testing, she is prone to blood clots. Hope you are feeling better soon. Lisa

abanana07
Regular Member


Date Joined Oct 2008
Total Posts : 47
   Posted 1/8/2009 10:29 AM (GMT -6)   
Thank you all for the responses. It's so crazy that lyme really does wreak havoc on ALL your organ systems. The thing that really confuses me is that while I was on antibiotics, my period seemed pretty normal, if not lighter and more manageable. It's just so weird to me that after getting off abx my period is so much worse, I don't think it's just a coincidence. I feel like now, after all the ridiculous medical expenses for the lyme, the thought of starting something else is insane. I almost don't want to know if I have endo or fibriods... hopefully it's neither and hopefully it's not the lyme coming back.

Best wishes to you all!

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 1/8/2009 11:34 PM (GMT -6)   
My periods were heavy with painful cramps & migraines too, until I went on a gluten-free diet. Now, I seldom get some mild cramps, and haven't had a migraine since starting the gluten-free diet. So not everything is from Lyme...even hormone troubles.
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Heparin (to flush PICC line).


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 1/18/2009 10:46 PM (GMT -6)   
hey...
I would go off of the pill if I were you. Man my lyme loved those hormones. I hear you with the bleeding. I mean. What a mess. Unable to stand up...and the floor. It really was like afterbirth, with a 10 pound baby.
hey abana
everyone feels better while on abx, guess because it keeps the Lyme at bay. The same thing with my 5 year old. She is so great on abx..for awhile..and then off of it...the flu comes back and ect.
But if the abx treatment did not work for you. Try my clinic.
abx did not work for me either. I am getting some now...but not like before.
The dietary sugg. really do help. and getting on as many minerals and vitamins that you can take also. they have me on so much stuff! I take 50 pills a day...
But hey....I am not going to argue with my success.
But if you have not gotten better...keep going.
good luck
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


LupnerRN
Regular Member


Date Joined Sep 2008
Total Posts : 350
   Posted 1/19/2009 3:47 PM (GMT -6)   
abanana,
I know....like Lyme isn't bad enough! We have to deal with female crap worsening too!!!! I sucks!!

My LLMD is also an GYN and endocrinologist. Since I started seeing her in July, 08, she asks at every visit; are you having irregular periods yet? I said no until December. On my first visit with her in july, I was taking Yasmin too, but really to only keep my acne under control. My doc told me I could do that with supplements, that my acne was nutrient related. So I stopped Yasmin. It's too expensive anyway and hey, one less pill to take.

Anyway, my periods went from every 28 +days and no cramps to every 3 weeks or less with pelvic, hip and cramp pain. Real heavy for 3-4 days then spot for about a week. My doc said that the LD might be throughing me into early menapause!!!!! No Way......I'm only 42! So yes, this disease really screws you up big time. Also, when your on your period one of the hormone excreted is relaxine. It's the same hormone that relaxes your pelvis during childbirth. Relaxine is hormone that affects tendons and ligaments which are connective tissue. Guess what is any easy target for Lyme......yep....connective tissue. So to sum things up; that's a double wammy.

Most lymies are anemic. When on your period, and it's really heavy, you become even more anemic; which increases the headache and lightheadedness, etc. It's important to increase your fluid intake (to keep a normal blood volume so your heart doesn't have to work so hard) and make sure your are on enough iron (this is the anemia part, you need iron to bind oxygen to blood cells. When iron availability is low, oxygen carrying capcity is low. Your brain and heart are very sensitive to low O2, oxygen, levels: lightheadedness, palpatations).

I was curious too. How long were your symtoms before your Lyme treatment started? How long were you on anbx? And are you still having Lyme symptoms now that your off anbx?

I'm asking cause my LLMD's protocol is to continue meds (anbx, etc.) for 4-6 weeks after your symptoms have stopped. So I wonder if your treatment was long enough?

my prayers are with us all daily- Lisa
11/07 symptoms start
7/4/08  IGenX LD positive,gluten sensitivity,low magn, low WBC's,+yeast/bacteria/tapeworm/roundworm, EBV,HHV,CMV,Parvo,
7/25/08 started on Biaxin
9/08 IGenX co-infections neg, but probable Bart, Bab, Erhl
11/08  Biaxin,Plaquenil,Cipro, Artemisinin,3 probiotics,Transfer Immune, Bcomplex,MultiVit,omega3,magnesium,
 


LupnerRN
Regular Member


Date Joined Sep 2008
Total Posts : 350
   Posted 1/19/2009 3:50 PM (GMT -6)   
I forgot one thing,
I have a uterine fibroid that hasn't been affected by my Lyme yet. Knock on wood it stays that way!
11/07 symptoms start
7/4/08  IGenX LD positive,gluten sensitivity,low magn, low WBC's,+yeast/bacteria/tapeworm/roundworm, EBV,HHV,CMV,Parvo,
7/25/08 started on Biaxin
9/08 IGenX co-infections neg, but probable Bart, Bab, Erhl
11/08  Biaxin,Plaquenil,Cipro, Artemisinin,3 probiotics,Transfer Immune, Bcomplex,MultiVit,omega3,magnesium,
 


abanana07
Regular Member


Date Joined Oct 2008
Total Posts : 47
   Posted 1/21/2009 9:05 AM (GMT -6)   
Hi LupnerRN - basically I started feeling like something was "not right" in April 08. I have always been kind of a gym rat - but I kept it going over the summer. I was getting gradually more fatigued and had random "sick days" over the summer where I felt like I was achy with a fever and flu. I was diagnosed at the end of the summer. My CD-57 indicated that I had not been infected earlier than 6 months prior. I was on abx from early September to the last week of December. My symptoms had improved greatly by the 4th week of November. My doctor kept me on abx for another 4 weeks after that.

I did end up seeing my gyn after the super heavy period... she was not surprised it was bad. Again, I live in an area where lyme is so common so a lot of her patients have also been treated for LD. She said any kind of illness or physical set back can throw off your system. She said I was right to be concerned and ask the questions but that I had nothing to worry about. She said had it been endo or fibroids I would have still had symptoms and been in pain (I saw her a couple days after my period ended and I was feeling better by that point). She told me I could call her any time if I had any other concerns about the lyme or period.

I am continuing on yasmin because my periods have always made me sick (not as bad as the last time, but it consistently is bad enough to interfere with daily life - I mean I was still running and working out for the first 10 days on abx before I started herxing... it takes a lot to knock me on my ass). I take yasmin continually - meaning I usually skip the sugar pills for a couple packs so I only get my period once every three months. My gyn's advice was actually to stick with the yasmin - she reasoned that if my body is already stressed after fighting lyme, why put it through the additional stress of having a period? This doctor has helped me with other health issues and I trust her 100%.

I have a call with my lyme doctor today - it's been 4 weeks since I went off abx and he asked that I call him at this time just to make sure I'm doing well enough to stay off abx. I know many of you suggested I think about going back on abx - but I really am feeling about a thousand times better than I was in like October. At that time, I couldn't even get out of bed some days and now I am back at the gym 4 times a week and even lifting weights again. My energy is coming back and I am optimistic that I will be OK. I am, however, leaving the decision of whether to stay off abx in to my doctor's opinion. I'm keeping my fingers crossed!

Sorry this was so long - I hope you all are doing well and hanging in there! best wishes to everyone and thanks for the guidance

nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 1/21/2009 10:58 AM (GMT -6)   
If you are hypothyroid you will have heavy often irregular periods - and lyme messes with your thyroid. Go to a sympathic doctor - usually one that treats as much by symptoms as by tests and gives Armour Thyroid. You can look up other symptoms online but they include, weight gain, fatigue, memory loss, low body temperature, feeling cold - does this sound like lyme? - well others not related to lyme are dry skin, losing the outer third of the eyebrow, having an orange cast to the palms and soles of feet, and swelling. But you don't have to have these extreme symtoms to be hypo.

abanana07
Regular Member


Date Joined Oct 2008
Total Posts : 47
   Posted 1/21/2009 1:37 PM (GMT -6)   
Both of my parents are being treated for hypothyroidism -however- my thyroid levels are fine and were checked recently and over the summer. Actually, before I found out it was lyme I assumed it WAS hypothyroidism because of my family history. I had the fatigue, low body temp, dry skin, etc. Luckily my doctor saw through it and tested me for both thyroid levels and lyme.

LupnerRN
Regular Member


Date Joined Sep 2008
Total Posts : 350
   Posted 1/22/2009 4:24 PM (GMT -6)   
abanana,
Congratulations on your being off Lyme meds!!! That's so encouaging to hear. That's awesome that you only had to be on meds for 4 months- what a total blessing! It's really good to hear success stories, but really hard to resist being jeolous.

I liked Yasmin when I was on it also. I just didn't like the price.

How are you doing now with the fatigue? Were you able to start back working 8 hour days?

keep us updated with your recovery details--
continued blessings.
11/07 symptoms start
7/4/08  IGenX LD positive,gluten sensitivity,low magn, low WBC's,+yeast/bacteria/tapeworm/roundworm, EBV,HHV,CMV,Parvo,
7/25/08 started on Biaxin
9/08 IGenX co-infections neg, but probable Bart, Bab, Erhl
11/08  Biaxin,Plaquenil,Cipro, Artemisinin,3 probiotics,Transfer Immune, Bcomplex,MultiVit,omega3,magnesium,
 


Tor20
New Member


Date Joined Jan 2013
Total Posts : 1
   Posted 1/16/2013 10:28 PM (GMT -6)   
I've had lyme disease for almost three months now and I've been on the antibiotics for the same amont of time. I wanted to know if anyone has experienced lighter periods? My symptoms like cramps, breast tenderness, ect is worse then before the lymes, but the actual period is lighter. I just wanted to know if anyone else had this issue. It's nice there is a place to discuss our concerns. Few people understand lymes.

Lymer
Veteran Member


Date Joined Sep 2012
Total Posts : 511
   Posted 1/17/2013 12:12 AM (GMT -6)   
Tor20,

I see that this is an older thread, but there's lots of good info here! I def have strange period issues. For me, every other month is really bad, and the other months are really light. It makes me wonder if Lyme is affecting just one of my ovaries somehow? I have nothing to back this thought, it's just a personal theory.

I have breast tenderness all the time, unfortunately. I have cramps when I'm not on my period too. So idk exactly how it works, but I bet it could be the culprit of your lighter periods.

Are the abx helping? I haven't started treatment yet, I see an LLMD soon, and I'm anxious to get started! Lyme causes so many symptoms, it's frustrating. And you're so right, not many people understand.

bluebyyou
Forum Moderator


Date Joined Nov 2006
Total Posts : 1952
   Posted 1/17/2013 7:09 AM (GMT -6)   
I read somewhere that the worse periods is due to increased levels of inflammation - I'll try to find that info again.

I feel so horrible during this time. Are there any tips on how to feel better while it happens? Motrin takes a little of the edge off, and I take extra detox baths, but it is not a significant improvement, unfortunately.

hishorselover
Regular Member


Date Joined Oct 2012
Total Posts : 45
   Posted 1/17/2013 7:22 AM (GMT -6)   
I was on the pill for many (many...) years. I decided to stop taking it when I was diagnosed with Candida Albicans 3 years ago. When I was on the pill my periods were regular and easy to handle. When I stopped taking the pill, I began experiencing migraines for 4-5 prior to my period. Once it started, the migraine would subside. After being diagnosed with Lyme in July (STILL waiting for my initial LLMD visit) and being treated for ten weeks with Doxy and Biaxin, my symptoms did not change. My PCP had me start taking Magnesium to help with the headaches (I used to get daily headaches that required medication). I rarely get the migraines anymore but have noticed that my lyme symptoms, especially the fatigue and joint pain, is much worse when I have my period.

Sunnyside247
New Member


Date Joined Feb 2013
Total Posts : 11
   Posted 2/23/2013 11:09 PM (GMT -6)   
Lyme affects your periods!!! Hormones!! For years I have dealt with periods every 2 weeks, for sometimes 7-9 days. Ultra sound showed my uterus enlarged, did a biospy which found nothing.
Rest and regular bedtime helps. Take extra vitamins and Vitamin C before your periods, extra EFA's, Coconut oil, Probiotics <everyday.

I took Progestrone the natural compound in higher doses, seemed to help the cramps, also another natural compound bi est - for the estrogen. They make another Progestrone thats made with Peanut oil, I decided not to use it. ( Peanut and the fungus connection).
For low iron, I took bio salts, Ferrum Phos. ( health food stores carry). And extra Vitamin C.

samjones
Regular Member


Date Joined Jan 2013
Total Posts : 355
   Posted 2/23/2013 11:30 PM (GMT -6)   
Hey Ladies,

I have found that saventaro REALLY REALLY helps with the periods.. It helps slightly with the amount, but it has really been huge in pain and becoming more scheduled. It takes about a month or two to really start feeling the effects, but it DOES work. Both my daughter and I saw the difference. My dauhter went off it for a few months and suddenly her period was keeping her home from school again, in bed, and under a heating pad. I asked her one day if she was taking her Saventaro and she said she was not taking it for a few months! All the pain came back. She went back on it, and in a few months later, she did get better again.

Some other herbs that also help with cramps are Maca root and ashwaganda. I have endometriosis and the combo even helps with that.
Undiagnosed lyme, bartonella, anaplasmosis, babs for 25 yrs with a 16 year old that I passed lyme and coninfections to daughter through pregnancy. We both began treatment 1/6/11. Still treating. Daughter will be a success story hopefully in 2013!

moon61
Regular Member


Date Joined Nov 2012
Total Posts : 179
   Posted 2/24/2013 10:08 AM (GMT -6)   
Well I would like to know whats going on with my period.  I have had
lymes for at least 10 years.  My periods havn't been heavy or anything
I did notice symptoms worse before period.  Well Nov. period started really
weird its like i started but i spotted very very lightly for 4-5 days then had
regular bleeding, then spotted again, then stopped. same the for Dec. 
Know I havn't had one January, Febuary. I am 51 so I don't know whats
going on. See gyno Friday.  don't know if this is it or what.  LLMD, said
im still ovulating. 

peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 2/25/2013 7:31 AM (GMT -6)   
I didn't read all the replies, so this may have been said, but any illness (not just lyme) affects the adrenal glands and the glands produce 70% of our hormones, so yes, illness does effect the cycle.
What you can try is following an adrenal diet and take healing supplements for the glands.

It will work wonders

vacant
Regular Member


Date Joined Oct 2012
Total Posts : 117
   Posted 12/1/2013 11:13 AM (GMT -6)   
thank you sunnyside to mention that lyme affects period.........i have not had my period for the past month.
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