swollen lymphnodes with late stage lyme?

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2 tired for 30
Regular Member


Date Joined Nov 2008
Total Posts : 34
   Posted 1/10/2009 11:09 AM (GMT -6)   
I'm having trouble finding info about swollen lymphnodes with late stage lyme. Mine have been swollen for over 4 months (throughout my body, most noicable in groin). I don't remember them being swollen around the time of the rash. All info I can find indicates this as a symptom of early infection. Has anyone else experienced this with late stage lyme?

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 1/10/2009 2:05 PM (GMT -6)   
I have swolen lymph nodes in my neck and underarms. I dont know what it could not be late stage, lymph nodes are just a sign of infection or inflammation.

needshelp
Regular Member


Date Joined Aug 2008
Total Posts : 225
   Posted 1/11/2009 3:26 AM (GMT -6)   
2 tied for 30 and Dowa,

I too have swollen lymph nodes in my neck. I've also had pain in my underarms but don't feel enlarged nodes. Suddenly they seem worse and more painful (not constant, but sharp). I also have occassional radiating pain in my inner thigh (refered pain from groin lymph nodes???) Shouldn't the lymph nodes be shrinking with the antibiotics? My aren't. Do you feel new enlarged nodes after starting treatment?

dorit
Regular Member


Date Joined Nov 2008
Total Posts : 375
   Posted 1/11/2009 3:57 AM (GMT -6)   
when I was on top of my skin symptoms last spring/ summer, I had plenty of swollen lymph nodes mostly in groin; they got much better over the last months, dont hurt any more, the swelling nearly dissapeared.

gracietiger
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Date Joined Dec 2008
Total Posts : 129
   Posted 1/11/2009 11:43 AM (GMT -6)   
my lymph nodes in my neck, a chain of them on both sides, fluctuate in size nearly everyday. sometimes i can't feel them at all. other times they are these huge lumps. this has been going on for two years. i have not been diagnosed with lyme though, but sure don't know what else it could be!!!

phsinvent
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Date Joined Aug 2006
Total Posts : 1155
   Posted 1/11/2009 1:49 PM (GMT -6)   
Swollen or enlarged lymph nodes in the armpit, groin and neck usually point towards bartonella. Bartonella can sometimes be contracted from cat bites or scratches and even from flea bites. Of course, this cat would have to be infected and they usually show no signs of infection. The other transmission route of bartonella would be as a co-infection from a tick bite. Often present with borrelia(lyme), babesia, ehrlichia and a number of other pathogens or parasites.
 
Lyme and babesia have been rumored to cause lymph abnormalities but bartonella is more likely the culprit. I think sometimes babesia and lyme tend to affect the glands, most commonly the parotid saliva gland in the neck near the jaw.
 
Lymph nodes can also become abormal from other infections(viral, cmv virus etc) or even cancer(lymphoma) in some cases.
 
Sometimes you have to explore and try different antibiotics before you find one that works. Doxycycline does not work for certain infections, for example. But then you end up trying a macrolide or cephalsporin and start to experience a herx or see results. Trial and error in some cases.

Jeminij
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Date Joined Dec 2005
Total Posts : 1335
   Posted 1/11/2009 6:23 PM (GMT -6)   
Yes. I had swollen glands in my groin as well with late state lyme. They went away with treatment and it hasn't happened in years for me. Your body is trying to fight your infection and the glands are part of that process.

gracietiger
Regular Member


Date Joined Dec 2008
Total Posts : 129
   Posted 1/11/2009 6:44 PM (GMT -6)   
is bartonella the same as cat scratch disease? i have no other symptoms of that other than swollen glands. are the symptoms of bartonella similar to lyme? when i look at a symptom list of lyme, i have nearly every single one.
i was treated for cat scratch fever when i first went to the doc sick, because of my swollen lymph glands. i was only on antibiotics for like two weeks though.
the gland that fluctuates the most in me is definitely the one right under my jaw. that one goes nuts. the chain on my neck come and go, but much less frequently and much less severely as the one under my jaw.

where can i find out about other symptoms caused by bartonella?

phsinvent
Veteran Member


Date Joined Aug 2006
Total Posts : 1155
   Posted 1/12/2009 10:07 AM (GMT -6)   
Cat scratch disease was just a name they gave it back in the day once they realized bartonella h. was the causative agent being spread by cat bites and scratches. Not all adult cats or kittens carry it but it is very common. There is even evidence that you don't have to be in contact with the cat. Some say it can be spread from a simple flea bite. It is another one of those so called "hard to get, easy to treat ailments". They even go as far to say that it doesn't require treatment and the body will take care of it on it's own. I don't think it is very easy to get rid of. Since then, new species are being discovered. I think we are up around roughly 20 known species now. There is also the tick vector. Many on here have it and it comes along with the other co-infections and lyme when a tick bite is involved.
 
Gracietiger, aren't you in Thailand? I thought i remember you saying that your life revolves around cats and that they are everywhere. How did your Dr diagnose bartonella as a possibility?
 
Wow, that's odd, sounds like you are having some issues with the parotid gland between the ear and edge of jaw. Any facial tingling?

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 1/19/2009 4:13 PM (GMT -6)   
hey you guys, they are giving me Lymphatic drainage at the clinic...like two or three times a week.
They say that it keeps them from getting clogged and swelling.
I have had no problems with them.
It is easy and takes about 30 min.
They use this little zapping wand.
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


ponder 44
New Member


Date Joined Jan 2009
Total Posts : 6
   Posted 1/19/2009 4:34 PM (GMT -6)   
Hi,

Yes I have had swollen Lymph nodes for a long time, it means that your body is actively fighting
the Bacterial infection, unfortunately most of the time your immune system tires and you end up
with Chronic Fatigue.
The swelling is as a result of the white blood cells pooling in the lymphatic system

D

ponder 44
New Member


Date Joined Jan 2009
Total Posts : 6
   Posted 1/19/2009 4:34 PM (GMT -6)   
Hi,

Yes I have had swollen Lymph nodes for a long time, it means that your body is actively fighting
the Bacterial infection, unfortunately most of the time your immune system tires and you end up
with Chronic Fatigue.
The swelling is as a result of the white blood cells pooling in the lymphatic system

D
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