My treatment for Bart. and Lyme is working.

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Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 1/17/2009 11:29 AM (GMT -6)   
I have been getting treated for my lyme disease at a clinic in AZ. I was very sick for almost 5 years before I got here. I was going completely blank when I got here. With too many syptoms to list. But lets just say Alzthemiers for short. 35 Dr.s all over the world. Including Germany. And a friend told me about a friend that came here.
I live in Florida so I had to move here for a while. I am doing a 8-10 week therapy. I have about 3-4 weeks left. I am getting all of the drugs through a port that was surgically placed in my upper chest. It makes all of the treatments easy as pie.
I love the staff and the personal treatment that I get. It is so nice to deal with people who understand what is going on with me. The place is very well run. But really cold...lol Clean, and the people could not be nicer.
I feel better than I have felt in 5 years. I can complete sentences now. I can drive. I can workout. I can go out to dinner. I have energy. And I am not suicidal anymore.
I had never even been told I had Bart. till I got here. No one every found it before. I got a month of levaquine. It did not bother me at all. I took it at night before bed with a ton of water.
I am of course on many other things that they put in my port. But that was all I got just for the bart.
My pain is gone. My fog is gone. I am able to date for the first time in 5 years. My kids are thrilled that mommy is not laying in a dark room in pain anymore. I can to the beach without dying in the heat and the sun. It is so weird to wake up feeling good...every day. tongue
My x husband paid for my whole treatment and put me on a plane to come out here within 3 days of finding out about this place. My 12 year old was crying her eye out to him daily. I did not know who she was some days.
Many of the people at the clinic that I have had the pleasure to meet have gotten gotten 60 to 100% of coverage with their insurance. This I am hearing more and more. And this is delightful news to me.
It is also wonderful to see people come and go and leave a different and vibrant person.
I hope that they soon branch out all over the country. It saved me.
My treatment started in Oct. But I have to admit. I was a bad girl and every time I felt good I would run back home to be with my children. I was thrilled.
So were they. So this is why it has taken me a while. I also took a month off during x-mas. It is usually the sadest time of the year for me with my family gone. But I did just fine and really had a wonderful time...for a change. I was up for all of the fun and all of the parties!
But I came back and not because I wanted to finish. Becuase I feel fine already. But I we have already paid for it all. And I do need to finish. So I have make a commitment to do so. So here I am. Three weeks left and so much better and with a new life ahead of me. yeah
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


alfers
Veteran Member


Date Joined May 2005
Total Posts : 2671
   Posted 1/17/2009 11:57 AM (GMT -6)   
MV, that's great news! I'm glad you posted that some people have had their insurance cover their visits. We all know that it's hard to get coverage for lyme-related things, but that might encourage some people to at least see if they can get it covered. I hope you continue to do well!
Lyme and co-infections since approximately 2002. Diagnosed in 2005. Treated for two years solid. Diagnosed with Lymphomatoid Papulosis in October 2007. Currently back on abx.

Moderator for Lyme Disease forum


woodswalker
Regular Member


Date Joined Oct 2008
Total Posts : 99
   Posted 1/17/2009 1:19 PM (GMT -6)   
Overall that sounds wonderful. Good to hear your treatment is working.
I found someone that I think is a good doctor, but there is always that bit of doubt -- "am I getting the best treatment possible".
Sounds like you nailed it! Can you pass on some contact info?
9/28/08 - 11/8/08 100mg Doxy b.i.d. 42 days
11/5/08 - 11/20/08 Salt/C, grapefruit seed extract, COQ10, anti-inflammatory herbs with cat's claw & omega 3.
11/20/08 -> reduced Salt/C, omega 3, Acidolphilus and Saccharomyces(friendly yeast),low carb, no wheat, no alcohol, no yeast, no caffeine, no sugar.
Ceftin 500mg, 2x per day; Plaquenil 200mg, 2x per day; Mepron 750mg, 2x per day; Zithromax 500mg, 1x per day.


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 1/17/2009 1:50 PM (GMT -6)   
Alfers...I have some contact information that I will pass on to you. I have to go in Monday to the hospital. My port got bent somehow. Perhaps I should sit still more..lol
yeah right....:>)
But remind me next week to give you some info. directly.

Woods walker....what do you want? tap on me directly anytime. :>)
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


Sulma
Regular Member


Date Joined Apr 2008
Total Posts : 366
   Posted 1/17/2009 2:11 PM (GMT -6)   
Wow that's awesome. Both fantastic for you personally of course, but extremely encouraging to the rest of us. I hope the plan is to continue this aggressive treatment way past the asymptomatic threshold?

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 1/17/2009 2:26 PM (GMT -6)   
Gosh I am really wanting to go home and be a mom. I already feel good now. And the only thing that is knocking me on my --- is the treatment. The 6 hours a day are not a blast. Thank goodness they now have a movie room and wireless internet too.
Since I have to get a new port on Monday I am not going to rush and get it out real soon. But I will have to have it flushed all the time. I suggest getting it flushed more often than the directions say on my medical card I have to carry with me at all times. They say once a month. But I just knew it would clog up...darn it.
Asymptomatic...such a fancy word..:>)
I am dragging myself in there at 8:00 am in the morning. And sitting there for 6 hours a day. I do not live in AZ. So when they are done with me I am getting out of town...asap!
I am not going to continue anything except living my life. I have missed my childrens whole school year. And one of them is really not doing well. And the baby is being treated by Dr. J. So I have to focus on my life...and my kids and get back home. Of course if I get sick again..well I know where to come. But I really feel good. Even though there are hitting me so hard now. The treatments get much tougher as time goes by. I get a pint of blood taken every day and then it is Ozoned and put back. It is no cake walk. I use to faint at the sight of blood. Well now, I am way over that and needles too for that matter.
I am most exited that many more people are showing up at the clinic now. And it is busy. And that others are able to afford it and get assistance. It seems that the tide is turning in out favor!
Finally!
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 1/17/2009 3:06 PM (GMT -6)   
M V. It is soo good to hear a success story. I hope you continue to stay well. Please give a contact name number or webb address of your treatment center. Blessings

DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline
Outstare The Darkness--The Light Will Come!


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 1/17/2009 5:39 PM (GMT -6)   
Hey Minerals,
Envita natural medical centers of america,
Phone 602 569-4144
web. www.envita.com
Ask for Vanessa she is very helpful and ever so nice.
And tell her that Marie, ha...they have been dealing with me for a while...not always easy...lol
told you to call her.
Wow I am looking at your profile above....so sorry!
It looks like you have your hands full, and so sorry you are having such a hard time. Sounds like your body does not like abx....I understand that. Doxy made me "want" to die.
And lyme will make you alergic to most things too. Since your immune system as taken such a hit.
But the good news is this. It all goes away.
I compare my treatment to being in a four wheel drive covered in mud. That is how I showed up the clinic...ha
I could not see out my windows..lol...and was bumping into everything like a drunk sailor. And I was mean....a screaming migrian with acute nausea and a fever of 101 for 6 mos. will do that to you..:>)
But it is like they just ran me through the wash. My head ache and fever were gone after the first week. I had not been able to get up without all of the probelms before, every morning.
So...I feel like a new shiny girl now.
I think that getting bitten over and over for sure makes you sicker. Get skin so soft and use it daily. You must attract them like me. Me and my girls are going to have to live in the stuff.
Keep up the fight. you are going to get better!
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 1/17/2009 8:18 PM (GMT -6)   
Thank you dear Marie

DX. LYME  7 /03 -I believe I 've had it since 1985- 
oral doxi, amoxi 6 months. Have been bitten 2x since                  
Developed many chemical & food sensitivities& Allergies to many Suppliments
Swollen Burning tongue/lips
Hashimotos Thyroiditis
DX. Babsiosis 4/07 -Malerone 2 wks, Mepron & Azithromax 6 mos. 
Armour Thyroid
Probiotics are a MUST   
Almost died from 3 doses of Plaquanil 12/07
IV Rocephin began 12/4/07
Bactrim began 1/22/07
Stopped Rocephin 3/04/08
Mepron, Azithrommax, Rafampin 5/29/08
Stopped Rifampin began Bactrim and zithro 6/2/08
stopped Mepron 7 22/08
switched from bactrim to levaquin and had bad reaction to levaquin
began Mepron again till Nov, then began Malerone
began Rifampin and Minocycline
Outstare The Darkness--The Light Will Come!


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 1/17/2009 8:59 PM (GMT -6)   
Minerals
If you need anything else just e-mail me directly. Happy to give a helping hand to my fellow Lymie buddies!..:>)
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."


studeski
Regular Member


Date Joined Dec 2007
Total Posts : 62
   Posted 1/18/2009 7:29 PM (GMT -6)   
Marie,
Thanks for the update. I have to get my records together and contact them. I have an Aunt in Sun city, maybe we can stay there.

Claude

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 1/18/2009 10:10 PM (GMT -6)   
That would be so cool! Start your new year out feeling great! Plan a vacation for May!
:>)
Marie
2004 in Martha's Vineyard me and my two daughters then 11 mos and 6 all got Lyme Disease. This was only known to us because we found the tiny ticks on us and we got very ill. My dog also got lyme and he went lame.
We have fought it for 4 years to no avail.
We all got it again this summer is Texas.
I am now in treatment in Scottsdale Arizona at Envita.

"The eyes cannot see for for what the mind does not know."

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